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Dublin Core
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July 2018 List
Text
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Citation List Month
July 2018 List
URL Address
<a href="http://doi.org/10.1038/jp.2017.30" target="_blank" rel="noreferrer noopener">http://doi.org/10.1038/jp.2017.30</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Children's outcomes at 2-year follow-up after 4 years of structured multi-professional medical-ethical decision-making in a neonatal intensive care unit
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Journal of Perinatology
Date
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2017
Creator
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de Boer JC; Gennissen L; Williams M; van Dijk M; Tibboel D; Reiss I; Naghib S; Sol J
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<a href="http://doi.org/10.1038/jp.2017.30" target="_blank" rel="noreferrer noopener">10.1038/jp.2017.30</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
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OBJECTIVE: We reviewed our decisions about continuation/withdrawal of life-sustaining treatments in a group of critically ill newborns who were discussed in structured medical ethical decision-making meetings, and provide the surviving children's outcomes at 2-year follow-up. STUDY DESIGN: In an explorative observational study, 61 cases were evaluated. The children involved had been discussed in such a structured way from 2009 to 2012 in a level III-D neonatal intensive care unit. RESULTS: Decisions made were: full treatment (n=6), earlier restriction cancelled (n=3), treatment restriction (n=30) and palliative care (n=22). Parents of six children disagreed with the decision proposed. Thirteen (54%) of the 24 children who survived (39%) had moderate to severe neurological problems; 8 (33%) had additional sequelae; only one 2-year-old child was healthy. CONCLUSIONS: Decisions made varied to a large extent. The poor outcomes should be disseminated among decision makers. Future studies must explore new ways to improve outcome prediction, extend follow-up periods and consider what living with severe handicaps really means for both child and family.
2017
Child
Clinical Decision-Making/ethics
Critical Illness/mortality/therapy
de Boer JC
Female
Follow-up Studies
Gennissen L
Humans
Infant
Intensive Care Units
Journal Of Perinatology
July 2018 List
Male
Naghib S
Neonatal
Netherlands
Newborn
Palliative Care
Parents/psychology
Preschool
Prospective Studies
Reiss I
Sol J
Survival Analysis
Tibboel D
van Dijk M
Williams M
Withholding Treatment/ethics/standards