Browse Items (2 total)

Tags: Gattuso J

Sort by:

Monitoring child and parent refusals to enrol in clinical research protocols

AIMS: The aim of this paper is to report the rates and reasons for refusal given by 817 eligible participants from 10 completed and ongoing nursing and behavioural medicine studies in paediatric oncology from 1994 to 2004. BACKGROUND: Eligible…

Tags: 2006, Adolescent Adult Attitude to Health Child, Backlog, Child Psychology Data Collection/methods Decision Making Female Hematologic Tests Humans Informed Consent Male, Extramural Research Support, Gattuso J, Hinds P, Journal Article, Journal Of Advanced Nursing, N.I.H., Non-U.S. Gov't Sex Factors Terminal Care/psychology, Nursing Research Parents/, PedPal Lit, psychology Patient Selection Prospective Studies Questionnaires Refusal to Participate/ethnology/, psychology Research Support, Srivastava K, Tong X

Children With Minimal Chance For Cure: Parent Proxy Of The Child's Health-related Quality Of Life And The Effect On Parental Physical And Mental Health During Treatment.

Abstract
To assess health-related quality of life (HRQOL) from the time of diagnosis until disease progression in a cohort of children with diffuse intrinsic pontine glioma (DIPG). The assessment was collected from the perspectives of the child and…

Output Formats

atom, dcmes-xml, json, omeka-xml, rss2