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40
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Dublin Core
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Title
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September 2019 List
Text
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September 2019 List
URL Address
<a href="http://doi.org/10.1177/0269216319866576" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0269216319866576</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Hospice nurses request paediatric-specific educational resources and training programs to improve care for children and families in the community: Qualitative data analysis from a population-level survey
Publisher
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Palliative Medicine
Date
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2019
Subject
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qualitative research; Paediatrics; palliative care; education; hospice and palliative care nursing; health care surveys; hospice care; nursing
Creator
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Kaye EC; Applegarth J; Gattas M; Kiefer A; Reynolds J; Zalud K; Baker JN
Description
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BACKGROUND: Children with serious illness who receive hospice care often interface with nurses who lack training, experience and comfort in the provision of paediatric palliative and hospice care. Hospice nurse preferences for paediatric-specific training are not well known. AIM: To describe the types of paediatric-specific training received and educational content preferred by hospice nurses. DESIGN: Population-level dissemination of a cross-sectional survey with qualitative analysis of open-ended survey items. SETTING/PARTICIPANTS: Nurses from 71 community-based hospice organizations across 3 states completed the survey. RESULTS: An open-ended response was provided by 278/551 (50.5%) survey respondents. A total of 55 respondents provided 58 descriptions of prior paediatric-specific training, including a formal 2-day course (n = 36; 65.5%), on-the-job education (n = 13, 23.6%), online training (n = 5, 9.1%), nursing school (n = 2, 3.6%) and paediatric advanced life support courses (n = 2, 3.6%). A total of 67 respondents described 74 hospice-led educational efforts, largely comprised of a 2-day course (n = 39; 54.2%) or provision of written materials (n = 11; 15.3%). A total of 189 respondents described 258 preferences for paediatric-specific training, with nearly half (n = 93; 49.2%) requesting 'any' or 'all' types of education and the remainder requesting education around medication use (n = 48; 25.4%), symptom assessment/management (n = 32; 16.9%), pain assessment/management (n = 28; 14.8), communication (n = 29; 15.3%) and psychosocial assessment/management (n = 28; 14.8). CONCLUSIONS: Hospice nurses self-report inadequate exposure to educational resources and programs, in conjunction with a strong desire for increased paediatric-specific training. Identification of targetable gaps should inform the development of educational resources, policies and other supportive interventions to improve delivery of care to children and families in the community.
Identifier
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<a href="http://doi.org/10.1177/0269216319866576" target="_blank" rel="noreferrer noopener">10.1177/0269216319866576</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Applegarth J
Baker JN
Education
Gattas M
Health Care Surveys
Hospice And Palliative Care Nursing
Hospice Care
Kaye EC
Kiefer A
Nursing
Paediatrics
Palliative Care
Palliative Medicine
Qualitative Research
Reynolds J
September 2019 List
Zalud K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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August 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2020.04.085" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2020.04.085</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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"We Feel Like We Are in the Dark": A Population Level Qualitative Study of the Training and Support Needs of Hospice Nurses Caring for Children and Families in the Community (RP417)
Publisher
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Journal of Pain and Symptom Management
Date
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2020
Subject
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qualitative study; training; support needs; hospice nurses
Creator
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Porter A; Kiefer A; Gattas M; Baker J; Kaye E
Description
An account of the resource
Objectives: * Describe the evidence from a growing body of literature demonstrating the dearth of pediatric-focused training and resources for community hospice nurses, as well as the lack of comfort of community hospice nurses with providing pediatric care. * Characterize the pediatric-specific training and support needs of hospice nurses who provide care to children and families in the community. * Describe the innovative ideas proposed by study participants for development of pediatric-specific resources and training opportunities for community hospice nurses. Importance: Approximately 500,000 children suffer from serious illness annually, with 50,000 children dying each year. Many of these children and families are eligible for provision of community-based hospice care, yet few organizations offer formal pediatric services. Recent population level data demonstrate that hospice nurses lack training, experience, and comfort in provision of care to children in the community; however, the specific educational preferences and supportive needs of hospice nurses is not well understood. Objective(s): To investigate and describe the pediatric-specific training and support needs of hospice nurses providing care to children and families in the community. Method(s): From a population-level cohort of 551 hospice nurses who completed a comprehensive quantitative survey, an exploratory cohort of 40 hospice nurses were selected using purposive sampling to stratify participants into sub-cohorts based on prior self-reported levels of comfort with pediatric hospice provision. Semi-structured interviews were conducted, with subsequent inductive codebook development. Constant comparative analysis was performed across transcripts using MAXQDA software. Result(s): The majority of hospice nurses described insufficient training to care for children with serious illness. Nurses imagine an ideal training experience to involve in-person learning with prioritization of specific topics, including symptom management, medications/dosing, pediatric-specific equipment, concurrent care, anticipatory guidance on disease trajectories and end of life, supporting families, and staff resilience. Barriers to realizing training experiences include lack of awareness of available resources, training opportunities, and mentorship/networking across the pediatric palliative care landscape, as well as stigma against pediatric hospice and palliative care. Conclusion(s): Community hospice nurses express an urgent need for improvements in pediatric-specific resources and training opportunities. Importantly, they offer robust visions for improving training paradigms and available resources. Impact: These data offer opportunities for collaborative development and investigation of educational programs and policies to improve the provision of community-based pediatric hospice for children, families, and nurses. Copyright © 2020
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2020.04.085" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2020.04.085</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
August 2020 List
Baker J
Gattas M
hospice nurses
Journal of Pain and Symptom Management
Kaye E
Kiefer A
Porter A
Qualitative Study
support needs
Training
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2020.06.036" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2020.06.036</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Investigation of Modifiable Variables to Increase Hospice Nurse Comfort With Care Provision to Children and Families in the Community: A Population-Level Study Across Tennessee, Mississippi, and Arkansas
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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community; education; hospice; palliative care; pediatric; training
Creator
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Kaye E C; Gattas M; Kiefer A; Reynolds J; Zalud K; Li C; Lu Z; Baker J N
Description
An account of the resource
Context: Most hospice nurses across Tennessee, Arkansas, and Mississippi report significant discomfort with provision of pediatric palliative and hospice care (PPHC). How best to target and modify variables to increase nurse comfort levels is not well understood. Objective(s): To determine whether modifiable variables are associated with increased hospice nurse comfort with PPHC provision in the community. Method(s): A cross-sectional survey was developed, pilot tested, and distributed to hospice nurses across a tristate region to assess nurse training experiences and comfort with PPHC provision. Targeted subanalyses were conducted to investigate associations between nurse comfort level and clinical, training, and patient frequency variables. Result(s): A total of 551 respondents representing 71 hospices across Tennessee, Arkansas, and Mississippi completed surveys. Hospice nurse comfort with provision of care to children was statistically significantly associated with exposure to prior PPHC clinical experiences (P < 0.001), receipt of formal pediatric PPHC training (P < 0.001), and higher hospice-level (P = 0.01) and individual-level frequency of PPHC provision (P < 0.001). PPHC clinical experience was the most impactful variable with respect to comfort with overall and end-of-life PPHC provision; formal training was the most impactful variable with respect to comfort with management of severe symptoms at the end of life. Conclusion(s): Modifiable variables exist that are readily targetable to improve hospice nurse comfort with PPHC provision. These findings should inform the development and investigation of clinical and educational interventions to empower both nurses and hospices to optimize the provision of quality care to children with serious illness and their families in the community. Copyright © 2020 American Academy of Hospice and Palliative Medicine
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2020.06.036" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2020.06.036</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Baker J N
Community
Education
Gattas M
Hospice
Journal of Pain and Symptom Management
Kaye E C
Kiefer A
Li C
Lu Z
Palliative Care
Pediatric
Reynolds J
September 2020 List
Training
Zalud K