1
40
2
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
November 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2018 List
URL Address
<a href="http://doi.org/10.1007/s10730-017-9339-y" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s10730-017-9339-y</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Why Are There So Few Ethics Consults in Children's Hospitals?
Publisher
An entity responsible for making the resource available
HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Children's hospitals;Clinical;Decision Making ethics;Ethicists psychology;Ethics;Ethics committee;Ethics consultation;Ethics Consultation utilization;Hospitals;Humans;Pediatric organization & administration;Pediatrics
Creator
An entity primarily responsible for making the resource
Carter B;Brockman M;Garrett J;Knackstedt A;Lantos J
Description
An account of the resource
In most children's hospitals, there are very few ethics consultations, even though there are many ethically complex cases. We hypothesize that the reason for this may be that hospitals develop different mechanisms to address ethical issues and that many of these mechanisms are closer in spirit to the goals of the pioneers of clinical ethics than is the mechanism of a formal ethics consultation. To show how this is true, we first review the history of collaboration between philosophers and physicians about clinical dilemmas. Then, as a case-study, we describe the different venues that have developed at one children's hospital to address ethical issues. At our hospital, there are nine different venues in which ethical issues are regularly and explicitly addressed. They are (1) ethics committee meetings, (2) Nursing Ethics Forum, (3) ethics Brown Bag workshops, (4) PICU ethics rounds, (5) Grand Rounds, (6) NICU Comprehensive Care Rounds, (7) Palliative Care Team (PaCT) case conferences, (8) multidisciplinary consults in Fetal Health Center, and (9) ethics consultations. In our hospital, ethics consults account for only a tiny percentage of ethics discussions. We suspect that most hospitals have multiple and varied venues for ethics discussions. We hope this case study will stimulate research in other hospitals analyzing the various ways in which ethicists and ethics committees can build an ethical environment in hospitals. Such research might suggest that ethicists need to develop a different set of "core competencies" than the ones that are needed to do ethics consultations. Instead, they should focus on their skills in creating multiple "moral spaces" in which regular and ongoing discussion of ethical issues would take place. A successful ethicist would empower everyone in the hospital to speak up about the values that they believe are central to respectful, collaborative practice and patient care. Such a role is closer to what the first hospital philosophers set out to do than in the role of the typical hospital ethics consultant today.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s10730-017-9339-y" target="_blank" rel="noreferrer noopener">10.1007/s10730-017-9339-y</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Brockman M
Carter B
Children's hospitals
Clinical
Decision Making ethics
Ethicists psychology
Ethics
Ethics committee
Ethics consultation
Ethics Consultation utilization
Garrett J
HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues
Hospitals
Humans
Knackstedt A
Lantos J
November 2018 List
Pediatric organization & administration
Pediatrics
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1532-5415.1997.tb02933.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1532-5415.1997.tb02933.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
What is wrong with end-of-life care? Opinions of bereaved family members
Publisher
An entity responsible for making the resource available
Journal Of The American Geriatrics Society
Date
A point or period of time associated with an event in the lifecycle of the resource
1997
Subject
The topic of the resource
Female; Humans; Male; Physician-Patient Relations; Family; Home Nursing; Health Care Surveys; Attitude to Health; Aged; Attitude to Death; Communication; Respiration; Quality of Health Care; quality of life; Empirical Approach; Non-U.S. Gov't; Research Support; bereavement; Death and Euthanasia; cause of death; Nursing Homes/standards; Intensive Care/statistics & numerical data; Consumer Satisfaction/statistics & numerical data; North Carolina; Artificial/statistics & numerical data; Pain/nursing/therapy; Terminal Care/standards/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Hanson LC; Danis M; Garrett J
Description
An account of the resource
OBJECTIVE: To describe family perceptions of care at the end of life. METHODS: In a representative sample of older people who died from chronic diseases, family members were interviewed about satisfaction with treatment intensity, decision-making, and symptom relief in the last month of life, and gave suggestions to improve care. RESULTS: Interviews were completed with 461 family members, 80% of those contacted. They reported that 9% of decedents received CPR, 11% ventilator support, and 24% intensive care during their last month of life. Family members could not recall a discussion of treatment decisions in 23% of cases. Presence or absence of a living will did not affect the likelihood of no discussion (22% vs 24%, P = .85). Family informants desired more treatment to sustain life in 8% of deaths. They or the decedent wanted treatments doctors did not recommend in 6% of deaths but refused recommended therapies in 18% of deaths. They believed more care to relieve pain or other symptoms was indicated in 18% of deaths. Asked to make positive or negative comments about any aspect of terminal care, 91% of comments on hospice were positive. Nursing home care received the smallest proportion of positive comments (51%). Family members recommendations to improve end of life care emphasized better communication (44%), greater access to physicians' time (17%), and better pain management (10%). CONCLUSION: Bereaved family members are generally satisfied with life-sustaining treatment decisions. Their primary concerns are failures in communication and pain control. Discussions that focus on specific treatment decisions may not satisfy the real needs of dying patients and their families.
1997
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1532-5415.1997.tb02933.x" target="_blank" rel="noreferrer">10.1111/j.1532-5415.1997.tb02933.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1997
Aged
Artificial/statistics & numerical data
Attitude To Death
Attitude To Health
Backlog
Bereavement
Cause Of Death
Communication
Consumer Satisfaction/statistics & numerical data
Danis M
Death and Euthanasia
Empirical Approach
Family
Female
Garrett J
Hanson LC
Health Care Surveys
Home Nursing
Humans
Intensive Care/statistics & numerical data
Journal Article
Journal Of The American Geriatrics Society
Male
Non-U.S. Gov't
North Carolina
Nursing Homes/standards
Pain/nursing/therapy
Physician-patient Relations
Quality Of Health Care
Quality Of Life
Research Support
Respiration
Terminal Care/standards/statistics & numerical data