1
40
5
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Dublin Core
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Title
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2021 Special Edition 2 - Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2021 Special Edition - Oncology
URL Address
<a href="http://doi.org/10.1007/s00520-021-06412-5" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1007/s00520-021-06412-5</a>
Dublin Core
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Title
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Palliative Home-Based Care to Pediatric Cancer Patients: Characteristics and Healthcare Delivered
Publisher
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Supportive Care in Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
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Oncology
Creator
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de Noriega Í; García-Salido A; Martino R; Herrero B
Description
An account of the resource
OBJECTIVES: Cancer patients constitute an important group in pediatric palliative care. Though the patients' home is the preferred place of care, little is known about the characteristics of patients attended by units that provide home assistance. Our objective is to describe the characteristics of cancer patients and healthcare delivered by a pediatric palliative care unit with a home hospitalization program. METHODS: Retrospective study based on clinical records of deceased patients attended by the pediatric palliative care unit of Madrid over 10 years. Data collected included general characteristics, type of cancer, whether they received home assistance, place of death, healthcare delivered (hospitalizations, devices, oncological treatments…), and symptom prevalence. RESULTS: After excluding 47 patients, the clinical records of 144 patients were analyzed. The median age at referral was 9.4 years (IQR: 5.6-14.1), 61.2% were males; 44.2% had solid non-CNS tumors, 35.4% CNS tumors, and 20.4% hematological malignancies; 137 received home care with 89 not requiring further hospital admissions and 70.1% dying at home. The median follow-up time was 1.6 months (IQR: 0.5-2.9). The most used devices were venous ports (71.4%) and oxygen (49.4%); 53.5% of the patients received oncological support therapies. The most common symptoms were pain (91.8%) dyspnea (49.0%) and fatigue (46.9%). CONCLUSIONS: Home assistance was provided in a high number of patients, with a large proportion needing one or no hospital admissions and 70.1% of them dying at home. Further studies characterizing these patients and the factors which promote early access to palliative care are needed.
Identifier
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<a href="http://doi.org/10.1007/s00520-021-06412-5" target="_blank" rel="noreferrer noopener">10.1007/s00520-021-06412-5</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021 Special Edition - Oncology
2022
de Noriega Í
García-Salido A
Herrero B
Martino R
Oncology
Supportive Care In Cancer
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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January 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January List 2023
URL Address
<a href="http://doi.org/10.5546/aap.2022.eng.e255" target="_blank" rel="noreferrer noopener"> http://doi.org/10.5546/aap.2022.eng.e255</a>
Dublin Core
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Title
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Update on the palliative care approach at the pediatric intensive care unit
Publisher
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Archivos Argentinos de Pediatria
Date
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2022
Subject
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Child; Communication; Humans; Intensive Care Units; Palliative Care; Pediatric; Quality of Life; Terminally Ill; Critical Care; Palliative Care; Terminal Care
Creator
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García-Salido A; Navarro-Mingorance Á; Martino-Alba R; Nieto-Moro M
Description
An account of the resource
Pediatric palliative care aims at improving the care and quality of life of children who are terminally ill or have a fatal prognosis. In the hospital setting, end-of-life decisions and treatments are common in intensive care units. This is why the integration of palliative care in these units is a logical evolution of the clinical approach to severely ill children. This study provides an update on the indications and characteristics of the palliative care approach in the context of pediatric intensive care. Here we describe palliative care approach initiation, decision-making, communicative aspects, drug treatment, symptom management, and palliative sedation.
Identifier
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<a href="http://doi.org/10.5546/aap.2022.eng.e255" target="_blank" rel="noreferrer noopener">10.5546/aap.2022.eng.e255</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Child
Critical Care
Humans
Palliative Care
Terminal Care
2022
Archivos Argentinos De Pediatria
Communication
García-Salido A
Intensive Care Units
January List 2023
Martino-Alba R
Navarro-Mingorance Á
Nieto-Moro M
Pediatric
Quality Of Life
Terminally Ill
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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May 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2019 List
URL Address
<a href="http://doi.org/10.1016/j.anpedi.2019.02.001" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.anpedi.2019.02.001</a>
Dublin Core
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Title
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Hospital admissions into paediatric palliative care: A retrospective study
Publisher
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Anales de Pediatria.
Date
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2019
Subject
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child; human; female; male; palliative therapy; major clinical study; Palliative care; article; death; hospitalization; retrospective study; patient care; pediatric hospital; hospice care; hospital admission; gastrostomy; Hospice care; Hospitalisation; Paediatric hospitals; respiratory system
Creator
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de Noriega I; Barcelo M; Perez M A; Puertas V; Garcia-Salido A; Martino R
Identifier
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<a href="http://doi.org/10.1016/j.anpedi.2019.02.001" target="_blank" rel="noreferrer noopener">10.1016/j.anpedi.2019.02.001</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Description
An account of the resource
Introduction: Patients may be admitted to hospital by paediatric palliative care units (PPCU) for different reasons, due to their different needs and clinical problems. The objective of this study is to present the data of patients admitted to the PPCU of the Autonomous Community of Madrid. Method(s): Descriptive retrospective study was conducted by reviewing the clinical records of the PPCU between January 2011 and December 2016. Result(s): Of 499 patients attended in this period, 166 (33%) were admitted to hospital at some point, generating a total of 314 episodes. Respiratory problems (34%) were the main cause of admission. Gastrostomy intervention (23 patients) was the commonest reason for a surgical admission. In this period, 46 patients died during hospitalisation. The highest frequencies of death, according to the admission cause, were respiratory problems (18 out 46) and end-of-life care (11 out 46). More than half (59%) of admissions lasted less than 7 days and 88% were 15 days or less. Conclusion(s): The causes and characteristics of the hospital admissions at a PPCU are heterogeneous, with respiratory problems being the most common cause of admission. The duration of the hospitalisation appears to be similar to that described for acute palliative care units. The creation of a specific PPCU that can refer their patients for hospital admission might help to improve continuity of care.
2019
Anales de Pediatria.
Article
Barcelo M
Child
de Noriega Í
Death
Female
García-Salido A
Gastrostomy
Hospice Care
Hospital Admission
Hospitalisation
Hospitalization
Human
Major Clinical Study
Male
Martino R
May 2019 List
Paediatric hospitals
Palliative Care
Palliative Therapy
Patient Care
Pediatric Hospital
Perez M A
Puertas V
Respiratory System
Retrospective Study
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1017/S1478951514000042" target="_blank" rel="noreferrer">http://doi.org/10.1017/S1478951514000042</a>
Dublin Core
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Title
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Palliative care in children with spinal muscular atrophy type I: What do they need?
Publisher
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Palliative & Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
spinal muscular atrophy
Creator
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García-Salido A; de Paso-Mora MG; Monleón-Luque M; Martino-Alba R
Description
An account of the resource
Objective: Our aim was to describe the clinical evolution and needs of children with spinal muscular atrophy type I treated in a domiciliary palliative care program. Method: We undertook a retrospective chart review of nine consecutive patients. Descriptions of the clinical and demographic profile of children with spinal muscular atrophy (SMA) type I were referred to a pediatric palliative care team (PPCT). Results: Six males and three females were admitted to the PPCT, all before six months of age, except for one afflicted with SMA type I with respiratory distress. The median time of attention was 57 days (range 1-150). The domiciliary attention mainly consisted of respiratory care. The patient with SMA type I with respiratory distress required domiciliary mechanical ventilation by tracheotomy. In all cases, a nasogastric tube (NT) was indicated. As end-of-life care, eight required morphine to manage the dyspnea, four received it only by enteral (oral or NT) administration, and four received it first by enteral administration with continuous subcutaneous infusion (CSI) later. Three of the four patients with CSI also received benzodiazepines. While they were attended by the PPCT, none required hospital admission. All the patients died at home except for the one attended to for just one day. Significance of Results: Domiciliary care for these patients is possible. The respiratory morbidity and its management are the main issues. Application of an NT is useful to maintain nutritional balance. Morphine administration is necessary to manage the dyspnea. Palliative sedation is not always necessary.
2014-02
Identifier
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<a href="http://doi.org/10.1017/S1478951514000042" target="_blank" rel="noreferrer">10.1017/S1478951514000042</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2014
Backlog
de Paso-Mora MG
García-Salido A
Journal Article
Martino-Alba R
Monleón-Luque M
Palliative & Supportive Care
Spinal Muscular Atrophy
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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March 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2018 List
URL Address
<a href="http://doi.org/10.1017/s1478951517001067" target="_blank" rel="noreferrer">http://doi.org/10.1017/s1478951517001067</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The clock: Not a question of time
Publisher
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Palliative & Supportive Care
Date
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2018
Creator
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Garcia-Salido A; Martino-Alba R
Identifier
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<a href="http://doi.org/10.1017/s1478951517001067" target="_blank" rel="noreferrer">10.1017/s1478951517001067</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Description
An account of the resource
2018-01
2018
García-Salido A
March 2018 List
Martino-Alba R
Palliative & Supportive Care