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Text
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URL Address
<a href="http://doi.org/10.1503/cmaj.050626" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.050626</a>
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Title
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What matters most in end-of-life care: perceptions of seriously ill patients and their family members
Publisher
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Canadian Medical Association Journal
Date
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2006
Creator
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Heyland DK; Dodek P; Rocker G; Groll D; Gafni A; Pichora D; Shortt S; Tranmer J; Lazar N; Kutsogiannis J; Lam M; Canadian Researchers End-of-Life Network(CARENET)
Description
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BACKGROUND: Initiatives to improve end-of-life care are hampered by our nascent understanding of what quality care means to patients and their families. The primary purpose of this study was to describe what seriously ill patients in hospital and their family members consider to be the key elements of quality end-of-life care. METHODS: After deriving a list of 28 elements related to quality end-of-life care from existing literature, focus groups with experts and interviews with patients, we administered a face-to-face questionnaire to older patients with advanced cancer and chronic end-stage medical disease and their family members in 5 hospitals across Canada to assess their perspectives on the importance. We compared differences in ratings across various subgroups of patients and family members. RESULTS: Of 569 eligible patients and 176 family members, 440 patients (77%) and 160 relations (91%) agreed to participate. The elements rated as "extremely important" most frequently by the patients were "To have trust and confidence in the doctors looking after you" (55.8% of respondents), "Not to be kept alive on life support when there is little hope for a meaningful recovery" (55.7%), "That information about your disease be communicated to you by your doctor in an honest manner" (44.1%) and "To complete things and prepare for life's end - life review, resolving conflicts, saying goodbye" (43.9%). Significant differences in ratings of importance between patient groups and between patients and their family members were found for many elements of care. INTERPRETATION: Seriously ill patients and family members have defined the importance of various elements related to quality end-of-life care. The most important elements related to trust in the treating physician, avoidance of unwanted life support, effective communication, continuity of care and life completion. Variation in the perception of what matters the most indicates the need for customized or individualized approaches to providing end-of-life care.
2006
Identifier
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<a href="http://doi.org/10.1503/cmaj.050626" target="_blank" rel="noreferrer">10.1503/cmaj.050626</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2006
Backlog
Canadian Medical Association Journal
Canadian Researchers End-of-Life Network(CARENET)
Dodek P
Gafni A
Groll D
Heyland DK
Journal Article
Kutsogiannis J
Lam M
Lazar N
Pichora D
Rocker G
Shortt S
Tranmer J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00005650-199001000-00006" target="_blank" rel="noreferrer">http://doi.org/10.1097/00005650-199001000-00006</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Individual correlates of health service utilization and the cost of poor adjustment to chronic illness
Date
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1990
Subject
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Cohen 2006 BMC HSR Refs
Creator
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Browne G; Arpin K; Corey P; Fitch MI; Gafni A
Identifier
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<a href="http://doi.org/10.1097/00005650-199001000-00006" target="_blank" rel="noreferrer">10.1097/00005650-199001000-00006</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
Description
An account of the resource
1990
1990
Arpin K
Backlog
Browne G
Cohen 2006 BMC HSR Refs
Corey P
Fitch MI
Gafni A
Journal Article