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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2007-2681" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2007-2681</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Cancer-related symptoms most concerning to parents during the last week and last day of their child's life
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Female; Humans; Male; Palliative Care; Terminal Care; Adult; Parents; Death; Time; adolescent; Preschool; infant; Health; Parents/psychology; Neoplasms/physiopathology/psychology/therapy
Creator
An entity primarily responsible for making the resource
Pritchard M; Burghen E; Srivastava DK; Okuma J; Anderson L; Powell B; Furman WL; Hinds PS
Description
An account of the resource
OBJECTIVE: Studies of symptoms in children dying a cancer-related death typically rely on medical chart reviews or parental responses to symptom checklists. However, the mere presence of a symptom does not necessarily correspond with the distress it can cause the child's parents. The purpose of this study was to identify the cancer-related symptoms that most concerned parents during the last days of their child's life and the strategies parents identified as helpful with their child's care. METHODS: Sixty-five parents of 52 children who had died a cancer-related death within the previous 6 to 10 months participated in telephone interviews. Eligibility criteria included being the parent or guardian of a child aged 0 to 21 years who had died within the previous 6 to 10 months after being treated at a pediatric cancer center, having been with their child during the last week of the child's life, speaking English, being willing to participate, and having access to a telephone. RESULTS: Eighteen symptoms of concern were identified as occurring during their child's final week and final day of life. The most frequently reported symptoms at both times included changes in behavior, changes in appearance, pain, weakness and fatigue, and breathing changes. The proportion of reported symptoms did not differ according to patient gender, disease, or location of death (intensive care, elsewhere in the hospital, or home). The most helpful strategies used by health care professionals to assist the child or parents included giving pain and anxiety medications, spending time with the child or family, providing competent care, and giving advice. CONCLUSIONS: This knowledge can guide professionals in preparing parents for the symptoms that a child imminently dying of cancer is likely to experience and in providing care that will be helpful to parents.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2007-2681" target="_blank" rel="noreferrer">10.1542/peds.2007-2681</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adolescent
Adult
Anderson L
Backlog
Burghen E
Child
Death
Female
Furman WL
Health
Hinds PS
Humans
Infant
Journal Article
Male
Neoplasms/physiopathology/psychology/therapy
Okuma J
Palliative Care
Parents
Parents/psychology
Pediatrics
Powell B
Preschool
Pritchard M
Srivastava DK
Terminal Care
Time
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1200/jco.2005.10.538" target="_blank" rel="noreferrer">http://doi.org/10.1200/jco.2005.10.538</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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End-of-Life Care Preferences of Pediatric Patients With Cancer
Publisher
An entity responsible for making the resource available
Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
PedPal Lit
Creator
An entity primarily responsible for making the resource
Hinds PS; Drew D; Oakes L; Fouladi M; Spunt SL; Church C; Furman WL
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/jco.2005.10.538" target="_blank" rel="noreferrer">10.1200/jco.2005.10.538</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Backlog
Church C
Drew D
Fouladi M
Furman WL
Hinds PS
Journal Article
Journal Of Clinical Oncology
Oakes L
PedPal Lit
Spunt SL