1
40
3
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
"siblings Of Children With Life-limiting Conditions: Psychological Adjustment
And Sibling Relationships."
Publisher
An entity responsible for making the resource available
Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Siblings; Families & Family Life; Emotional Disorders; Adjustment; Quality Of Life
Behaviour Problems; Impact On Siblings; Life-limiting; Quality Of Life
Creator
An entity primarily responsible for making the resource
Fullerton JM; Totsika V; Hain R; Hastings RP
Description
An account of the resource
BACKGROUND:
This study explored psychological adjustment and sibling relationships of siblings of children with life-limiting conditions (LLCs), expanding on previous research by defining LLCs using a systematic classification of these conditions.
METHODS:
Thirty-nine siblings participated, aged 3-16 years. Parents completed measures of siblings' emotional and behavioural difficulties, quality of life, sibling relationships and impact on families and siblings. Sibling and family adjustment and relationships were compared with population norms, where available, and to a matched comparison group of siblings of children with autistic spectrum disorder (ASD), as a comparable 'high risk' group.
RESULTS:
LLC siblings presented significantly higher levels of emotional and behavioural difficulties, and lower quality of life than population norms. Their difficulties were at levels comparable to siblings of children with ASD. A wider impact on the family was confirmed. Family socio-economic position, time since diagnosis, employment and accessing hospice care were factors associated with better psychological adjustment.
CONCLUSIONS:
Using a systematic classification of LLCs, the study supported earlier findings of increased levels of psychological difficulties in siblings of children with a LLC. The evidence is (i) highlighting the need to provide support to these siblings and their families, and (ii) that intervention approaches could be drawn from the ASD field.
Identifier
An unambiguous reference to the resource within a given context
DOI: 10.1111/cch.12421
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adjustment
Behaviour Problems
Child: Care, Health and Development
Emotional Disorders
Families & Family Life
Fullerton JM
Hain R
Hastings RP
Impact On Siblings
Life-limiting
November 2016 List
Quality Of Life
Siblings
Totsika V
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2017 List
URL Address
http://www.ncbi.nlm.nih.gov/pubmed/27804151
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Siblings Of Children With Life‐limiting Conditions: Psychological Adjustment And Sibling Relationships
Publisher
An entity responsible for making the resource available
Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Behaviour Problems; Impact On Siblings; Life-limiting; Quality Of Life
Creator
An entity primarily responsible for making the resource
Fullerton JM; Totsika V; Hain R; Hastings RP
Description
An account of the resource
Background This study explored psychological adjustment and sibling relationships of siblings of children with life‐limiting conditions (LLCs), expanding on previous research by defining LLCs using a systematic classification of these conditions. Methods Thirty‐nine siblings participated, aged 3–16 years. Parents completed measures of siblings' emotional and behavioural difficulties, quality of life, sibling relationships and impact on families and siblings. Sibling and family adjustment and relationships were compared with population norms, where available, and to a matched comparison group of siblings of children with autistic spectrum disorder (ASD), as a comparable ‘high risk’ group. Results LLC siblings presented significantly higher levels of emotional and behavioural difficulties, and lower quality of life than population norms. Their difficulties were at levels comparable to siblings of children with ASD. A wider impact on the family was confirmed. Family socio‐economic position, time since diagnosis, employment and accessing hospice care were factors associated with better psychological adjustment. Conclusions Using a systematic classification of LLCs, the study supported earlier findings of increased levels of psychological difficulties in siblings of children with a LLC. The evidence is (i) highlighting the need to provide support to these siblings and their families, and (ii) that intervention approaches could be drawn from the ASD field. (PsycINFO Database Record (c) 2016 APA, all rights reserved)
Identifier
An unambiguous reference to the resource within a given context
10.1111/cch.12421
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Behaviour Problems
Child: Care, Health and Development
Fullerton JM
Hain R
Hastings RP
Impact On Siblings
June 2017 List
Life-limiting
Quality Of Life
Totsika V
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2023 Special Edition 2 - Parent Perspectives List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2026 SE2 - Parent Perspectives
URL Address
<a href="http://doi.org/10.1111/cch.12421" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1111/cch.12421</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Siblings of children with life‐limiting conditions: Psychological adjustment and sibling relationships
Publisher
An entity responsible for making the resource available
Child: Care, Health and Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Behavior Problems; behaviour problems; Childhood Development; Emotional Adjustment; impact on siblings; life‐limiting; quality of life; Quality of Life; Sibling Relations; Terminally Ill Patients
Creator
An entity primarily responsible for making the resource
Fullerton JM; Totsika V; Hain R; Hastings RP
Description
An account of the resource
Background: This study explored psychological adjustment and sibling relationships of siblings of children with life‐limiting conditions (LLCs), expanding on previous research by defining LLCs using a systematic classification of these conditions. Methods: Thirty‐nine siblings participated, aged 3–16 years. Parents completed measures of siblings' emotional and behavioural difficulties, quality of life, sibling relationships and impact on families and siblings. Sibling and family adjustment and relationships were compared with population norms, where available, and to a matched comparison group of siblings of children with autistic spectrum disorder (ASD), as a comparable ‘high risk’ group. Results: LLC siblings presented significantly higher levels of emotional and behavioural difficulties, and lower quality of life than population norms. Their difficulties were at levels comparable to siblings of children with ASD. A wider impact on the family was confirmed. Family socio‐economic position, time since diagnosis, employment and accessing hospice care were factors associated with better psychological adjustment. Conclusions: Using a systematic classification of LLCs, the study supported earlier findings of increased levels of psychological difficulties in siblings of children with a LLC. The evidence is (i) highlighting the need to provide support to these siblings and their families, and (ii) that intervention approaches could be drawn from the ASD field. (PsycInfo Database Record (c) 2020 APA, all rights reserved)
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/cch.12421" target="_blank" rel="noreferrer noopener">10.1111/cch.12421</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
2026 SE2 - Parent Perspectives
behavior problems
Behaviour Problems
Child: Care, Health and Development
Childhood Development
Emotional Adjustment
Fullerton JM
Hain R
Hastings RP
Impact On Siblings
Life‐limiting
Quality Of Life
Sibling Relations
Terminally Ill Patients
Totsika V