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Dublin Core
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September 2018 List
Text
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October 2018 List
URL Address
<a href="http://doi.org/10.1186/s12887-018-1021-2" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12887-018-1021-2</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Patterns of paediatric end-of-life care: A chart review across different care settings in Switzerland
Publisher
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BMC Pediatrics
Date
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2018
Subject
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terminal care; human; child; female; male; cohort analysis; neurology; newborn; article; neonatology; home care; major clinical study; retrospective study; child care; Switzerland; oncology; resuscitation; medical record review; child death; life sustaining treatment; treatment withdrawal; health care utilization; hospital admission; 103-90-2 (paracetamol); paracetamol; adolescent; infant; intensive care unit; cause of death; length of stay; drug use; cardiology; community care; invasive procedure; narcotic analgesic agent
Creator
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Zimmermann K; Cignacco E; Engberg S; Ramelet AS; von der Weid N; Eskola K; Bergstraesser E; Ansari M; Aebi C; Baer R; Popovic MB; Bernet V; Brazzola P; Bucher HU; Buder R; Cagnazzo S; Dinten B; Dorsaz A; Elmer F; Enriquez R; Fahrni-Nater P; Finkbeiner G; Frey B; Frey U; Greiner J; Hassink RI; Keller S; Kretschmar O; Kroell J; Laubscher B; Leibundgut K; Malaer R; Meyer A; Stuessi C; Nelle M; Neuhaus T; Niggli F; Perrenoud G; Pfammatter JP; Plecko B; Rupf D; Sennhauser F; Stade C; Steinlin M; Stoffel L; Thomas K; Vonarburg C; von Vigier R; Wagner B; Wieland J; Wernz B
Description
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Background: Paediatric end-of-life care is challenging and requires a high level of professional expertise. It is important that healthcare teams have a thorough understanding of paediatric subspecialties and related knowledge of disease-specific aspects of paediatric end-of-life care. The aim of this study was to comprehensively describe, explore and compare current practices in paediatric end-of-life care in four distinct diagnostic groups across healthcare settings including all relevant levels of healthcare providers in Switzerland. Methods: In this nationwide retrospective chart review study, data from paediatric patients who died in the years 2011 or 2012 due to a cardiac, neurological or oncological condition, or during the neonatal period were collected in 13 hospitals, two long-term institutions and 10 community-based healthcare service providers throughout Switzerland. Results: Ninety-three (62%) of the 149 reviewed patients died in intensive care units, 78 (84%) of them following withdrawal of life-sustaining treatment. Reliance on invasive medical interventions was prevalent, and the use of medication was high, with a median count of 12 different drugs during the last week of life. Patients experienced an average number of 6.42 symptoms. The prevalence of various types of symptoms differed significantly among the four diagnostic groups. Overall, our study patients stayed in the hospital for a median of six days during their last four weeks of life. Seventy-two patients (48%) stayed at home for at least one day and only half of those received community-based healthcare. Conclusions: The study provides a wide-ranging overview of current end-of-life care practices in a real-life setting of different healthcare providers. The inclusion of patients with all major diagnoses leading to disease- and prematurity-related childhood deaths, as well as comparisons across the diagnostic groups, provides additional insight and understanding for healthcare professionals. The provision of specialised palliative and end-of-life care services in Switzerland, including the capacity of community healthcare services, need to be expanded to meet the specific needs of seriously ill children and their families.
Identifier
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<a href="http://doi.org/10.1186/s12887-018-1021-2" target="_blank" rel="noreferrer noopener">10.1186/s12887-018-1021-2</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here.
103-90-2 (paracetamol)
2018
Adolescent
Aebi C
Ansari M
Article
Baer R
Bergstraesser E
Bernet V
Bmc Pediatrics
Brazzola P
Bucher HU
Buder R
Cagnazzo S
Cardiology
Cause Of Death
Child
Child Care
Child Death
Cignacco E
Cohort Analysis
community care
Dinten B
Dorsaz A
Drug Use
Elmer F
Engberg S
Enriquez R
Eskola K
Fahrni-Nater P
Female
Finkbeiner G
Frey B
Frey U
Greiner J
Hassink RI
Health Care Utilization
Home Care
Hospital Admission
Human
Infant
Intensive Care Unit
invasive procedure
Keller S
Kretschmar O
Kroell J
Laubscher B
Leibundgut K
Length Of Stay
Life Sustaining Treatment
Major Clinical Study
Malaer R
Male
Medical Record Review
Meyer A
narcotic analgesic agent
Nelle M
Neonatology
Neuhaus T
Neurology
Newborn
Niggli F
October 2018 List
Oncology
Paracetamol
Perrenoud G
Pfammatter JP
Plecko B
Popovic MB
Ramelet AS
Resuscitation
Retrospective Study
Rupf D
Sennhauser F
September 2018 List
Stade C
Steinlin M
Stoffel L
Stuessi C
Switzerland
Terminal Care
Thomas K
Treatment Withdrawal
Von der Weid N
von Vigier R
Vonarburg C
Wagner B
Wernz B
Wieland J
Zimmermann K