1
40
6
-
Text
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Citation List Month
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URL Address
<a href="http://doi.org/10.12968/ijpn.2008.14.2.28600" target="_blank" rel="noreferrer">http://doi.org/10.12968/ijpn.2008.14.2.28600</a>
Dublin Core
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Title
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Continuing bonds: A human response within paediatric palliative care
Publisher
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International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
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Human
Creator
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Foster TL; Gilmer MJ
Identifier
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<a href="http://doi.org/10.12968/ijpn.2008.14.2.28600" target="_blank" rel="noreferrer">10.12968/ijpn.2008.14.2.28600</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2008
2008
Backlog
Foster TL
Gilmer MJ
Human
International Journal of Palliative Nursing
Journal Article
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
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URL Address
<a href="http://doi.org/10.1177/1043454209340322" target="_blank" rel="noreferrer">http://doi.org/10.1177/1043454209340322</a>
<a href="http://jpo.sagepub.com.ezproxy.library.ubc.ca/content/26/6/369" target="_blank" rel="noreferrer">http://jpo.sagepub.com.ezproxy.library.ubc.ca/content/26/6/369</a>
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Title
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Bereaved Parents’ and Siblings’ Reports of Legacies Created by Children With Cancer
Publisher
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Journal Of Pediatric Oncology Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Parents; Family Relations; Siblings; Qualitative Research; Time Factors; childhood cancer; adolescent; Adaptation; Psychological; bereavement; Psychological; Stress; bereaved parent; Neoplasms/psychology; sibling bereavement; bereaved sibling; legacy; pediatric death
Creator
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Foster TL; Gilmer MJ; Davies B; Barrera M; Fairclough D; Vannatta K; Gerhardt CA
Description
An account of the resource
This qualitative study explored bereaved parents’ and siblings’ reports of legacies created by children with advanced cancer. Participants included 40 families of children who died from cancer, with 36 mothers, 27 fathers, and 40 siblings (ages 8-18 years). Individual interviews were completed at home approximately 10.68 months (SD = 3.48) after the child’s death. Content analysis of interviews indicated that many children living with cancer did specific things to be remembered, such as making crafts for others, willing away belongings, writing letters to loved ones, and giving special gifts. Some children, particularly those who were very ill or died unexpectedly, did not intentionally do or say anything to be remembered. Legacies included bereaved individuals remembering children’s qualities, concern for family, and beliefs about afterlife. Having advanced cancer appeared to motivate children to influence others’ lives and prepare for their own deaths. Children’s advice about how to live life inspired bereaved family members. Findings contribute to the current knowledge of legacy-making in children and offer implications for practice and future research.
2009-11
Identifier
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<a href="http://doi.org/10.1177/1043454209340322" target="_blank" rel="noreferrer">10.1177/1043454209340322</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adaptation
Adolescent
Adult
Backlog
Barrera M
Bereaved Parent
bereaved sibling
Bereavement
Child
Childhood Cancer
Davies B
Fairclough D
Family Relations
Female
Foster TL
Gerhardt CA
Gilmer MJ
Humans
Journal Article
Journal Of Pediatric Oncology Nursing
legacy
Male
Neoplasms/psychology
Parents
Pediatric Death
Psychological
Qualitative Research
sibling bereavement
Siblings
Stress
Time Factors
Vannatta K
-
Dublin Core
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Title
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PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/15524256.2011.593153" target="_blank" rel="noreferrer">http://doi.org/10.1080/15524256.2011.593153</a>
<a href="http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=medl&AN=21895435" target="_blank" rel="noreferrer">http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=medl&AN=21895435</a>
Dublin Core
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Title
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A qualitative study of advice from bereaved parents and siblings.
Publisher
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Journal Of Social Work In End-of-life & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
IM; sibling bereavement
Creator
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Thompson AL; Miller KS; Barrera M; Davies B; Foster TL; Gilmer MJ; Hogan N; Vannatta K; Gerhardt CA
Description
An account of the resource
Despite a growing bereavement literature, relatively little is known about what families find helpful after a child's death and how best to assist them during the grieving process. In this qualitative study, the authors explored advice from 40 families (65 parents, 39 siblings) of children who died from cancer 6-19 months earlier. Content analysis emphasized the individual nature of grief and revealed advice that fit into three temporal categories: before the death, soon after, and long-term. Findings are discussed in the context of contemporary theory and provide insight into the development and timing of grief interventions.
Identifier
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<a href="http://doi.org/10.1080/15524256.2011.593153" target="_blank" rel="noreferrer">10.1080/15524256.2011.593153</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Barrera M
Davies B
Foster TL
Gerhardt CA
Gilmer MJ
Hogan N
IM
Journal Article
Journal of Social Work in End-of-Life & Palliative Care
Miller KS
sibling bereavement
Thompson AL
Vannatta K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/jpepsy/jsr082" target="_blank" rel="noreferrer">http://doi.org/10.1093/jpepsy/jsr082</a>
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Title
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Peer relationships of bereaved siblings and comparison classmates after a child's death from cancer
Publisher
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Journal Of Pediatric Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
adolescent; Child; Female; Humans; Male; bereavement; Neoplasms; Interpersonal Relations; Siblings; Peer Group; social support; Age Factors; Sex Factors; Schools; Social Behavior; sibling bereavement
Creator
An entity primarily responsible for making the resource
Gerhardt CA; Fairclough DL; Grossenbacher JC; Barrera M; Gilmer MJ; Foster TL; Compas BE; Davies B; Hogan NS; Vannatta K
Description
An account of the resource
OBJECTIVES: To compare peer relationships among bereaved siblings and matched classmates, and to examine gender, grade level, and time since death as moderators. METHODS: Families were recruited from cancer registries at four hospitals 3-12 months after a child's death. Measures of social behavior and peer acceptance were completed by children in the classrooms of 105 bereaved siblings (ages 8-17 years). Teachers also reported on children's social behavior. Three classmates were matched for gender, race, and age to each bereaved sibling to form a comparison group (n = 311). RESULTS: Teachers reported bereaved siblings were more prosocial than comparison classmates. Peers perceived bereaved boys as more sensitive-isolated and victimized, while bereaved siblings in elementary grades were perceived by peers as less prosocial, more sensitive-isolated, less accepted, and as having fewer friends. Peers and teachers viewed bereaved siblings in middle/high school grades as higher on leadership-popularity. CONCLUSIONS: Bereaved siblings who were male and in elementary grades were more vulnerable to social difficulties, while those in middle/high school may exhibit some strengths. Ongoing research to inform the development of interventions for bereaved siblings is warranted.
Identifier
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<a href="http://doi.org/10.1093/jpepsy/jsr082" target="_blank" rel="noreferrer">10.1093/jpepsy/jsr082</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Adolescent
Age Factors
Backlog
Barrera M
Bereavement
Child
Compas BE
Davies B
Fairclough DL
Female
Foster TL
Gerhardt CA
Gilmer MJ
Grossenbacher JC
Hogan NS
Humans
Interpersonal Relations
Journal Article
Journal of Pediatric Psychology
Male
Neoplasms
Peer Group
Schools
Sex Factors
sibling bereavement
Siblings
Social Behavior
Social Support
Vannatta K
-
Dublin Core
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Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/NCC.0b013e3182365646" target="_blank" rel="noreferrer">http://doi.org/10.1097/NCC.0b013e3182365646</a>
<a href="http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=medl&AN=22067687" target="_blank" rel="noreferrer">http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=medl&AN=22067687</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Changes in siblings after the death of a child from cancer.
Publisher
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Cancer Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
adolescent; Child; Cross-Sectional Studies; Female; Humans; Male; bereavement; Death; Neoplasms; Adult; Parents; Middle Aged; Siblings; Qualitative Research; Time Factors; Nursing Methodology Research; Adaptation; Psychological; IM; sibling bereavement; N
Creator
An entity primarily responsible for making the resource
Foster TL; Gilmer MJ; Vannatta K; Barrera M; Davies B; Dietrich MS; Fairclough DL; Gerhardt CA
Description
An account of the resource
IMPLICATIONS FOR PRACTICE: Our findings offer guidance to improve aftercare for bereaved siblings and their families. Additional research is needed to further delineate the needs of bereaved siblings and to develop strategies to promote adaptation to loss.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/NCC.0b013e3182365646" target="_blank" rel="noreferrer">10.1097/NCC.0b013e3182365646</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Adaptation
Adolescent
Adult
Backlog
Barrera M
Bereavement
Cancer Nursing
Child
Cross-sectional Studies
Davies B
Death
Dietrich MS
Fairclough DL
Female
Foster TL
Gerhardt CA
Gilmer MJ
Humans
IM
Journal Article
Male
Middle Aged
N
Neoplasms
Nursing Methodology Research
Parents
Psychological
Qualitative Research
sibling bereavement
Siblings
Time Factors
Vannatta K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="https://doi.org/10.1016/j.jpainsymman.2011.10.017" target="_blank" rel="noreferrer">https://doi.org/10.1016/j.jpainsymman.2011.10.017</a>
Notes
<p>1873-6513<br />Gilmer, Mary Jo<br />Foster, Terrah L<br />Vannatta, Kathryn<br />Barrera, Maru<br />Davies, Betty<br />Dietrich, Mary S<br />Fairclough, Diane L<br />Grollman, Jamie<br />Gerhardt, Cynthia A<br />R01 CA098217/CA/NCI NIH HHS/United States<br />R01 CA98217/CA/NCI NIH HHS/United States<br />Journal Article<br />Research Support, N.I.H., Extramural<br />United States<br />J Pain Symptom Manage. 2012 Oct;44(4):572-82. doi: 10.1016/j.jpainsymman.2011.10.017. Epub 2012 Jul 10.</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Title
A name given to the resource
Changes In Parents After The Death Of A Child From Cancer
Publisher
An entity responsible for making the resource available
Journal Of Pain And Symptom Management
Subject
The topic of the resource
Adaptation Psychological; Bereavement; Death; Adult; Canada; Child; Emotions; Family/ Psychology; Female; Humans; Male; Parents/ Psychology; Siblings/psychology; United States
Creator
An entity primarily responsible for making the resource
Gilmer MJ; Foster TL; Vannatta K; Barrera M; Davies B; Dietrich MS; Fairclough DL; Grollman J; Gerhardt CA
Description
An account of the resource
CONTEXT: Few studies have compared multiple perspectives of changes experienced by parents after a child's death. OBJECTIVES: This study used interviews with bereaved parents and siblings to examine changes in parents during the first year after the death of a child from cancer. METHODS: Mothers (n=36), fathers (n=24), and siblings (n=39) from 40 families were recruited from three hospitals in the U.S. and Canada three to 12 months after the death (M=10.7, SD=3.5). Semistructured interviews with open-ended questions were conducted in the home with each participating parent and sibling separately. Content analysis identified emerging themes, and frequencies were compared between each paired set of reports (mother vs. sibling, father vs. sibling, and mother vs. father). RESULTS: Parents and siblings identified two major categories of change experienced by bereaved parents. These changes occurred in their personal lives (e.g., emotions, perspectives and priorities, physical state, work habits, coping/behaviors, spiritual beliefs, and feeling something is missing) and relationships (e.g., family, others). Ninety-four percent of the mothers, 87% of the fathers, and 69% of the siblings reported parental changes in at least one of these categories. Parents were more likely to report changes in priorities, whereas siblings reported more sadness in parents after the death. CONCLUSION: Positive and negative changes in parents after the death of a child from cancer occur in both personal and relational domains. Additional research is needed to determine the impact of a child's death on bereaved parents over time and to develop strategies to promote healthy adjustment.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://doi.org/10.1016/j.jpainsymman.2011.10.017" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2011.10.017</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2012
Adaptation Psychological
Adult
Barrera M
Bereavement
Canada
Changes In Parents After The Death Of A Child From Cancer
Child
Davies B
Death
Dietrich MS
Emotions
Fairclough DL
Family/ Psychology
Female
Foster TL
Gerhardt CA
Gilmer MJ
Grollman J
Humans
Journal of Pain and Symptom Management
Male
Parents/ Psychology
Siblings/psychology
United States
Vannatta K