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'A Short Time but a Lovely Little Short Time': Bereaved Parents' Experiences of Having a Child with Spinal Muscular Atrophy Type 1

AIM: Spinal muscular atrophy (SMA) type 1 is a relatively common, untreatable and invariably fatal neuromuscular disorder of early childhood. Psychosocial care is vital in management of families affected by this disease. There are few studies…

Tags: 2016, Bereavement, Forbes R, Genetics, Higgs EJ, Journal of Paediatrics and Child Health, July 2017 List, McClaren BJ, Neuromuscular Disease, Qualitative Research, Ryan MM, Sahhar MAR, Spinal Muscular Atrophy

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