Planning for the end of children's lives--the lifetime framework.
Child; Humans; Parent-Child Relations; Attitude to Death; Time Factors; Delphi Technique; adolescent; Preschool; decision making; infant; DNAR; Palliative Care/st [Standards]; Terminal Care/st [Standards]; Advance Care Planning/st [Standards]; Child Health Services/og [Organization & Administration]
AIM: This paper describes the development of 'a best practice framework', following review of a sample of notes of children known to the Lifetime Service, where the child has a non-malignant life limiting condition, to improve child and family engagement in the planning process at the end of life., BACKGROUND: There is very little literature about how to engage with families to decide end of life plans for children with life limiting conditions., METHOD: An audit of clinical case notes was followed by the development of 'a best practice framework' through a Delphi process involving clinical practitioners., RESULTS: The 3 x 3 framework is presented to aid communication with parents and children at this difficult time of decision-making., CONCLUSION: This new framework has been well received by both parents and practitioners, and its use will be audited in the future.
2008
Finlay F; Lewis M; Lenton S; Poon M
Child: Care, Health And Development
2008
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1111/j.1365-2214.2008.00843.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2008.00843.x</a>
Advanced care planning in children with life-limiting conditions – the Wishes Document
Child; Humans; Young Adult; Advance Directives; Great Britain; Health Policy; Prognosis; adolescent; Preschool; infant; DNAR; Patient Care Planning/og [Organization & Administration]; Terminal Care/og [Organization & Administration]
2010-02
Fraser J; Harris N; Berringer AJ; Prescott H; Finlay F
Archives Of Disease In Childhood
2010
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1136/adc.2009.160051" target="_blank" rel="noreferrer">10.1136/adc.2009.160051</a>
Supporting Best Practice For Attending A Child's Funeral As Part Of Our Professional Role: Guidelines For Developing Service Policy
Child Care; Health Care Policy; Posthumous Care; Practice Guideline; Professional Standard; Bereavement; Human; Letter; Palliative Therapy
Finlay F; MacCallam J
Journal Of Palliative Medicine
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
10.1089/jpm.2017.0173