1 40 1 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource April 2023 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month April List 2023 URL Address <a href="http://doi.org/10.1177/02692163231154300" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1177/02692163231154300</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource What Does 'Good' Palliative Care Look Like for Children and Young People? A Qualitative Study of Parents' Experiences and Perspectives Publisher An entity responsible for making the resource available Palliative Medicine Date A point or period of time associated with an event in the lifecycle of the resource 2023 Subject The topic of the resource End-of-life care; Child; Palliative Care; child; parents; qualitative research; palliative care; Only Child Creator An entity primarily responsible for making the resource Fields D; Fraser LK; Taylor J; Hackett J Description An account of the resource BACKGROUND: Worldwide, around 21 million children would benefit from palliative care and over 7 million babies and children die each year. Whilst provision of paediatric palliative care is advancing, there major gaps between what should be done, and what is being done, in clinical practice. In 2017, the National Institute for Health and Care Excellence (NICE) introduced a quality standard, to standardise and improve children's palliative care in England. However, there is little evidence about what good experiences of palliative care for children are, and how they relate to the quality standard for end-of-life care. AIM: This study explored how the NICE quality standard featured in parental experiences of palliative care for children to understand what 'good' palliative care is. DESIGN: Qualitative study, employing in-depth, telephone and video-call, semi-structured interviews. Data were analysed using thematic analysis, informed by Appreciative Inquiry. SETTING/PARTICIPANTS: Participants were parents of children and young people (aged 0-17?years) in England, who were receiving palliative care, and parents whose child had died. RESULTS: Fourteen mothers and three fathers were interviewed. Seven were bereaved. Parents were recruited via four children's hospices, one hospital, and via social media. Good palliative care is co-led and co-planned with trusted professionals; is integrated, responsive and flexible; encompasses the whole family; and enables parents to not only care for, but also to parent their child to end of life. CONCLUSIONS: Findings have implications for informing evidence based practice and clinical guidelines, overall improving experiences of care. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1177/02692163231154300" target="_blank" rel="noreferrer noopener">10.1177/02692163231154300</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2023 April List 2023 Child End-of-life Care Fields D Fraser LK Hackett J Only Child Palliative Care Palliative Medicine Parents Qualitative Research Taylor J