Browse Items (1703 total)
- Tags: Female
Youth With Chronic Conditions and Risky Behaviors: An Indirect Path
Tags: 2018, Adolescent, Akre C, Article, Barrense-Dias Y, Berchtold A, Chronic Disease, Controlled Study, daily life activity, December 2018 List, Eating, Education, Female, gambling, Gubelmann A, Health Status, high risk behavior, Human, internet addiction, Journal of Adolescent Health., juvenile, Major Clinical Study, Male, Newman CJ, psychological adjustment, statistical analysis, structural equation modeling, Student, substance use, Suris J C, vision, Wellbeing
Youth and young adults with cerebral palsy: their use of physician and hospital services
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Ambulatory Care/utilization, Archives Of Physical Medicine And Rehabilitation, Ayling-Campos A, Backlog, Boydell K, Cerebral Palsy/therapy, Chronic Disease, Fehlings DL, Female, Gilbert TK, Hospitalization/statistics & numerical data, Humans, Journal Article, Law M, Male, McCormick A, Medical/statistics & numerical data, Mukherjee S, Ontario/epidemiology, Specialties, Wedge JH, Williams JI, Young NL
Your child is dead
Tags: 1991, Attitude Of Health Personnel, Attitude To Death, Backlog, Bereavement, Bmj (clinical Research Ed.), Cause Of Death, Child, Communication, Dallimore D, Female, Finlay I, France, Great Britain, Humans, Infant, Interviews As Topic, Journal Article, Male, Newborn, Nurses, Parents/psychology, Physicians, Police, Preschool, Professional-family Relations, Questionnaires, Tissue and Organ Procurement, Tissue Donors
Young people's satisfaction of transitional care in adolescent rheumatology in the UK
Tags: 2007, Adolescent, Adolescent Health Services/organization & administration, Adolescent Rheumatology, Adolescent Transitions, Adult, Arthritis, Backlog, British Society of Paediatric, Child, Child: Care, Health and Development, Chronic Disease, Cohort Studies, Continuity Of Patient Care/organization & Administration, Female, Great Britain, Humans, Journal Article, Juvenile Rheumatoid/psychology/rehabilitation, Male, McDonagh JE, Parents, Patient Satisfaction, Program Development, Quality Of Life, Questionnaires, Self Care/methods, Shaw KL, Sickness Impact Profile, Southwood TR
Young adults as users of adult healthcare: experiences of young adults with complex or life-limiting conditions
X-linked adrenoleukodystrophy: clinical, metabolic, genetic and pathophysiological aspects
Wrapped with love-art therapy in paediatric palliative care
Withholding life support for children with severe neurological impairment: Prevalence and predictive factors prior to admission in the PICU
Tags: 2023, Alexandre M, Archives de Pediatrie, Article, assisted ventilation, Brossier D, Child, Controlled Study, Disability, Duval C, February List 2024, Female, Functional Status, Human, Intensive Care, Intensive Care Unit, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Pediatrician, Porcheret F, Prevalence, Retrospective Study, Roulland C, special situation for pharmacovigilance, Therapy, Toulouse J, Viallard ML
Withholding and withdrawal of life-sustaining treatments for neonate in Japan: Are hospital practices associated with physicians' beliefs, practices, or perceived barriers?
Tags: 2019, Advance Care Planning, Article, Early Human Development, February 2020 List, Female, Feudtner C, Honda J, hospital policy, Human, Human Experiment, Iijima K, institutional care, Intensive Care, Japan, Kizawa Y, Life Sustaining Treatment, Male, Nabetani M, Neonatologist, Newborn, Questionnaire, Yotani N
Withdrawal of ventilatory support outside the intensive care unit: guidance for practice
Tags: 2014, Adolescent, Archives of Disease in Childhood, Backlog, Bluebond-Langner M, Brierley J, Child, Craig F, Female, Guildlines, Humans, Infant, Intensive Care Units, Journal Article, Kelly P, Laddie J, Male, Mechanical, Newborn, Paediatric Intensive Care (PICU), Palliative Care, Pediatric, Place Of Death, Practice Guidelines As Topic, Preschool, Resuscitation Orders, Retrospective Studies, Ventilators
Wishing well, a home-based Pediatric palliative care service for childhood cancer in thailand
Tags: 2018, 52-26-6 (morphine), 57-27-2 (morphine), Bereavement, Brain Tumor, cancer center, Cancer Recurrence, Cancer Survival, Cancer Therapy, Chamnanprai S, Child, Childhood Cancer, Cohort Analysis, conference abstract, Controlled Study, Counseling, Death, Developing World 2018 List, Female, Follow Up, Home Visit, Human, Leukemia, Lymphoma, Major Clinical Study, Male, median survival time, Morphine, Nuchprayoon I, Pain, Palliative Therapy, Pediatric Blood and Cancer, Quality Of Life, Raksrithong T, solid malignant neoplasm, Thailand
Wilson's disease: a longitudinal study of psychiatric symptoms
Tags: 1990, Adolescent, Adult, Amnestic, Backlog, Berrios GE, Biological Psychiatry, Cognitive Disorders/di [Diagnosis], Cognitive Disorders/px [Psychology], Cohort Studies, Delirium, Dementia, Dening TR, Female, Follow-up Studies, Hepatolenticular Degeneration/di [Diagnosis], Hepatolenticular Degeneration/px [Psychology], Humans, IM, Journal Article, Liver Function Tests, Longitudinal Studies, Male, Neurologic Examination, Neuropsychological Tests, Retrospective Studies
Widespread pain in fibromyalgia is related to a deficit of endogenous pain inhibition
Tags: 2005, Adult, Arsenault P, Backlog, Cold/diagnostic use, Comparative Study, Cross-Over Studies, Female, Fibromyalgia/diagnosis/physiopathology, Goffaux P, Humans, Journal Article, Julien N, Male, Marchand S, Middle Aged, Neural Inhibition/physiology, Non-U.S. Gov't, Pain, Pain Measurement/methods, Pain/diagnosis/physiopathology, Regression Analysis, Research Support
Who Will Speak for Me? Disparities in Palliative Care Research with "unbefriended" Adolescents Living with HIV/AIDS
Tags: 2017, Adolescent, Adult, City, Clinical Trial, Controlled Study, D'Angelo LJ, December 2017 List, Female, Houston PE, Human, Human Dignity, Human Immunodeficiency Virus, Journal of Palliative Medicine, Justice, Kimmel AL, Lee BC, Lyon ME, Major Clinical Study, Male, Medical Decision Making, Mortality, Multicenter Study, Nonhuman, Palliative Therapy, Pediatric Hospital, Rana SR, Randomized Controlled Trial, Single Blind Procedure, Stigma
Who should discuss goals of care during acute deteriorations in patients with life threatening illnesses? A survey of clinicians from diverse pediatric specialties
Tags: 2019, Advanced Cancer, brain disease, Cancer Patient, cancer resistance, Child, Clinician, conference abstract, Controlled Study, Cote A J, Data Analysis Software, Decision Making, Deterioration, disease exacerbation, E-mail, Emergency Ward, Female, Gaucher N, Human, Human Tissue, Hypoplastic Left Heart Syndrome, Leukemia, Likert scale, Major Clinical Study, Male, nonparametric test, October 2019 List, Paediatrics and Child Health (Canada), Palliative Therapy, Payot A, Pediatrician, Perception, respiratory distress, Spinal Muscular Atrophy, vignette
Who are the children using hospice care?
Tags: 2014, Adolescent, April 2019 List, California, Child, Child Preschool, Female, Health Services Needs and Demand/og [Organization & Administration], Health Services Needs and Demand/sn [Statistics & Numerical Data], Hospice Care/mt [Methods], Hospice Care/sn [statistics & Numerical Data], Humans, Infant, Infant Newborn, Journal for Specialists in Pediatric Nursing, Lindley LC, Male, Neuromuscular Diseases/nu [Nursing], Nurse-patient Relations, Palliative Care/mt [methods], Palliative Care/sn [Statistics & Numerical Data], Pediatric Nursing/mt [methods], Pediatric Nursing/sn [Statistics & Numerical Data], Professional-family Relations, Shaw SL, Socioeconomic Factors, Young Adult
Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998
Tags: 2002, Adolescent, Backlog, Cause Of Death, Child, Christakis DA, Chronic Disease/mortality, Female, Feudtner C, Humans, ICU Decision Making, Infant, Journal Article, Location Of Death, Male, Newborn, P.H.S., Pediatrics, Preschool, Research Support, Retrospective Studies, Silveira MJ, Survival Analysis, U.S. Gov't, Washington/epidemiology
Where children die: A retrospective analysis of child death overview panel (CDOP) data
Tags: 2019, anonymised data, Archives of Disease in Childhood, Asian, August 2019 List, British citizen, Cancer Diagnosis, Cause Of Death, Child, Child Death, Chromosome Aberration, Clarkson L, conference abstract, Congenital Malformation, Controlled Study, Data Analysis Software, Ethnic Group, Ethnicity, Female, Gender, Hartley D, Hospice, Human, Lyles L, Major Clinical Study, Male, Mayer A, McKeating C, Mortality Rate, Newborn, Palliative Therapy, Renton K, Retrospective Study, strategic planning, Terminal Care
When Technology Fails: Community-Based Pediatric Hospice
Tags: 2016, Biomedical Technology, Butler S, Child, Child Health Services/og [organization & Administration], Child Preschool, Female, Haas K, Health Care Reform, Hospice And Palliative Care Nursing/og [organization & Administration], Hospice Care/og [organization & Administration], Hospices/og [organization & Administration], Humans, Journal of Pediatric Nursing, Kramer N, Male, November 2017 List, Pediatrics, Quality Assurance Health Care, Residence Characteristics, Risk Assessment, Ryan JG, United States, Vizzachero N, Waechtler E
When Parents Face The Death Of Their Child: A Nationwide Cross-sectional Survey Of Parental Perspectives On Their Child’s End- Of Life Care.
Parents facing the death of their child have a strong need for compassionate professional support. Care services should be based on empirical evidence, be sensitive to the needs of the families concerned, take into account the…
Tags:
2016, Attitude Of Health Personnel, Attitude To Death, Bergstraesser E, BMC Palliative Care, Chantal Grandjean, Cross-sectional Studies, Death, Decision Making, End Of Life, Engberg S, Eva Cignacco
K, Female, Humans, Infant Newborn, Male, Marfurt-Russenberger, May 2016 List, Nicolas Von der Weid, Parental Perspectives, Parents/psychology, Patricia Fahrni-Nater, Pediatrics, Pediatrics/standards, Perception, Questionnaire Survey, Ramelet AS, Resuscitation Orders/psychology, Surveys And Questionnaires, Switzerland, Terminal Care, Terminal Care/standards, Von der Weid N, Zimmermann K
When and Why Do Neonatal and Pediatric Critical Care Physicians Consult Palliative Care?
Tags: 2018, American Journal Of Hospice And Palliative Care, Bourget E, Care coordination, Communication, Complex Chronic Conditions, Critical Care, Critical Care/organization & Administration, Doorenbos AZ, Family, Female, Hays R, Health Care Quality, Humans, Intensive Care Units, Interviews As Topic, Length Of Stay, Lindhorst T, Male, Neonatal/organization & administration, November 2018 List, O'Connor MR, Palliative Care, Palliative Care/organization & Administration, Patient Care Planning/organization & administration, Pediatric Intensive Care Unit, Pediatric/organization & Administration, Pediatricians/psychology, Professional Family Relations, Qualitative Research, Richards CA, Starks H
What's Missing in Missing Data? Omissions in Survey Responses among Parents of Children with Advanced Cancer
Tags: 2014, Adolescent, Adult, Backlog, Disease Progression, Dussel V, Female, Feudtner C, Geyer JR, Humans, Journal Article, Journal of Palliative Medicine, Kang TI, Life Expectancy, Male, Neoplasms, Orellana L, Parents, prog, Prognosis, Quality Of Life, Questionnaires, Research, Rosenberg AR, surveys, Wolfe J
What works for therapists conducting family meetings: treatment integrity in family-focused grief therapy during palliative care and bereavement
Tags: 2004, Adult, Australia/epidemiology, Backlog, Bereavement, Chan EK, Family Therapy/methods/statistics & numerical data, Family/psychology, Female, Grief, Health Care/methods/standards, Health Surveys, Hospice Care/methods/psychology/statistics & numerical data, Humans, Journal Article, Journal of Pain and Symptom Management, Kissane DW, Love A, Male, McKenzie M, Middle Aged, Neoplasms/mortality/psychology, O'Neill I, Palliative Care/psychology/statistics & numerical data, Professional Competence/statistics & numerical data, Quality Assurance, SSHRC CURA, Treatment Outcome
What is wrong with end-of-life care? Opinions of bereaved family members
Tags: 1997, Aged, Artificial/statistics & numerical data, Attitude To Death, Attitude To Health, Backlog, Bereavement, Cause Of Death, Communication, Consumer Satisfaction/statistics & numerical data, Danis M, Death and Euthanasia, Empirical Approach, Family, Female, Garrett J, Hanson LC, Health Care Surveys, Home Nursing, Humans, Intensive Care/statistics & numerical data, Journal Article, Journal Of The American Geriatrics Society, Male, Non-U.S. Gov't, North Carolina, Nursing Homes/standards, Pain/nursing/therapy, Physician-patient Relations, Quality Of Health Care, Quality Of Life, Research Support, Respiration, Terminal Care/standards/statistics & numerical data
What influences parents' decisions to limit or withdraw life support?
Tags: 2005, Adolescent, Adult, Attitude To Death, Backlog, Child, Decision Making, Emotions, Female, Humans, ICU Decision Making, Infant, Journal Article, Life Change Events, Life Support Care/psychology, Male, Meert KL, Middle Aged, Parents/psychology, Pediatric Critical Care Medicine, Pilot Projects, Preschool, Prospective Studies, Sarnaik AP, Sharman M, Withholding Treatment
What impedes timely pediatric palliative care consults? A preliminary report
What do transplant physicians think about palliative care? A national survey study
Tags: 2017, Adult, Blood, bone marrow, Burns LJ, Caregiver, Child, conference abstract, Denzen E, El-Jawahri A, Female, friend, Graft Recipient, graft versus host reaction, hematologic disease, Hematopoietic stem cell transplantation, Hispanic, Hospice, Human, Human Tissue, LeBlanc TW, Male, March 2018 List, Mau LW, medical oncologist, Meyer CL, outpatient care, Palliative Therapy, Patient Referral, Perception, Petersdorf E, Questionnaire, Roeland EJ, Trust, United States, Wood WA
What do plasma beta-endorphin levels reveal about endogenous opioid analgesic function?
Tags: 2012, Acute Pain/blood/physiopathology, Adult, Analgesia/methods, Backlog, beta-Endorphin/blood, Biomarkers of Pain, Bruehl S, Burns JW, Chont M, Chronic Pain/blood/physiopathology, Chung OY, Cross-Over Studies, Double-Blind Method, European Journal Of Pain, Female, Humans, Journal Article, Low Back Pain/blood/physiopathology, Male, Middle Aged, Naloxone/pharmacology, Narcotic Antagonists/pharmacology, Pain Measurement/drug effects, Pain Threshold/drug effects/physiology, Physical Stimulation
What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis
Tags: 2023, Adolescent, Adverse Drug Reaction, Aged, Article, Burgess A, Child, Child Parent Relation, Controlled Study, Disability, Drug Therapy, February List 2024, Female, Health Care System, Health Expectations, Hospital care, Human, Intellectual Impairment, Interpersonal Communication, Interview, kindness, Long J, Lucien A, Male, Ong N, Palliative Therapy, Parent, Patient Safety, Pediatric Hospital, Preschool Child, Qualitative Research, School Child, Semi Structured Interview, Side Effect, special situation for pharmacovigilance, Thematic Analysis, Walton M, Weise J
What constitutes 'good quality care' from the perspectives of children and young people with life-limiting and life-threatening conditions?
Tags: 2023, Adolescent, Archives of Disease in Childhood, Braybrook D, Bristowe K, Child, Clinical Article, conference abstract, Conversation, Coombes L, developmental stage, Female, Fraser L, genetic transcription, Harding R, Haroardottir D, Hospital Patient, Human, Male, Malignant Neoplasm, Nervous System, October List 2029, Only Child, Outpatient, Preschool Child, Scott HM, Semi Structured Interview, Social Care
Welcoming expertise: Bereaved parents' perceptions of the parent-healthcare provider relationship when a critically ill child is admitted to the paediatric intensive care unit
Tags: 2019, Adult, Australian Critical Care, Bereavement, Butler A E, Child, child and family wishes, Copnell B, Critical Illness -- Singapore, Death, Female, Grounded Theory, Hall H, Health Personnel Attitude, Hospital Mortality, Hospitalized, Humans, Intensive care unit-paediatric, Intensive Care Units Pediatric, Interviews As Topic, June 2020 List, Male, Nurse, Parents, Parents/*psychology, Pediatric, Professional-family Relations, Victoria
WeeFIM: Normative sample of an instrument for tracking functional independence in children.
Tags: 1994, Adaptation, Age Factors, Backlog, Braun S, Child, Clinical Pediatrics, Cross-sectional Studies, DiGaudio K, Disability Evaluation, Duffy LC, Female, Granger CV, Humans, Infant, Journal Article, LaForest S, Longitudinal Studies, Male, Msall ME, Neuropsychological Tests, Preschool, Psychological, Self Care
Was there a plan? End-of-life care for children with life-limiting conditions: a review of multi-service healthcare records
Tags: 2014, Adolescent, Advance Directives, advance planning, Backlog, Beringer AJ, Child, child and family wishes, Child: Care, Health and Development, Communication, Decision Making, DNAR, Documentation, End Of Life, Female, Heckford EJ, Humans, Infant, Journal Article, Male, Medical Records, Neoplasms, Neoplasms/mo [mortality], Parents, Parents/px [psychology], Patient Care Planning/og [Organization & Administration], Patient Care Planning/st [Standards], Pediatrics, Physician-patient Relations, Practice Guidelines As Topic, Preschool, Quality Of Life, Resuscitation Orders, Retrospective Studies, Review, Terminal Care, Terminal Care/og [organization & Administration], Terminal Care/px [psychology], Time Factors
Vulnerable Populations Receiving Palliative Radiation in a Children's Hospital: Reporting on the Underreported
Tags: 2019, Adult, Anesthesia, Asia, cancer radiotherapy, Central Nervous System Tumor, Child, conference abstract, Controlled Study, Death, electronic medical record, employer, Female, Follow Up, fraud, housing, Human, Hwang L, immigration, International Journal Of Radiation Oncology Biology Physics, Lee H J, Liu K X, lowest income group, Major Clinical Study, Male, Medical Record Review, Mental Stress, Neuroblastoma, Olch A J, Oncology 2019 List, Organization, Pain, Poverty, race, radiation oncologist, Radiotherapy, Retrospective Study, Rhabdomyosarcoma, School Child, South and Central America, Terminal Care, vulnerable population, Wong K, Young Adult
Vulnerability and Agency across Treatment-Seeking Journeys for Acutely Ill Children: How Family Members Navigate Complex Healthcare Before, During and After Hospitalisation in A Rural Kenyan Setting
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Acute Disease, Adult, agency, Berkley JA, Caregivers, Charo A, Child Health, Child Mortality, Child Preschool, Childhood acute illness, Cohort Studies, Continuity Of Patient Care, Delivery of Health Care/standards, Family, Family Characteristics, Female, Health Facilities, Hospitalization, Humans, Infant, International Journal for Equity in Health, Kelley M, Kenya/epidemiology, Kimani MN, Male, Marsh V, Molyneux S, Muraya K, Njeru RW, Prospective Studies, Qualitative Research, Rural Population, Sanga G, Sarma H, Social Support, Treatment-seeking, Uddin MF, VULNERABILITY, Vulnerable Populations, Walson JL, Zakayo SM
Volunteer Activity In Specialist Paediatric Palliative Care: A National Survey
Tags: 2015, Adolescent, Adult, BMJ Supportive & Palliative Care, Bravery R, Burbeck R, Candy B, Cross-sectional Study, England, Female, Health Care Survey, Home Care, Hospice, Hospice Care, Hospital Volunteer, Human, Internet, Low J, Male, Organization And Management, Palliative Therapy, Pediatrics, Procedures, Questionnaire, Sampson E L, Scott R, September 2017 List, Specialization, Statistics And Numerical Data, Young Adult
Visualization of protein losing enteropathy in infantile systemic hyalinosis with Tc-99m HSA after albumin challenge
Tags: 1996, Albumins/diagnostic use, Backlog, Chung CJ, Clinical Nuclear Medicine, Contracture/complications, Diarrhea/complications, Female, Humans, Hyalin, Infant, Joint Diseases/complications, Journal Article, Meyers W, Protein-Losing Enteropathies/complications/radionuclide imaging, Shields E, Skin Diseases/complications/radionuclide imaging, Technetium Tc 99m Aggregated Albumin/diagnostic use, Tucker T
Views of pediatric intensive care physicians on the ethics of organ donation after cardiac death
Views of adolescents and parents on pediatric research without the potential for clinical benefit
Tags: 2012, Abdoler E, Adolescent, Adolescent Psychology, Adult, Altruism, Attitude To Health, Backlog, Benefits of PPC, Female, Grady C, Humans, Journal Article, Male, Motivation, Nontherapeutic Human Experimentation, Parents/psychology, Pediatrics, Questionnaires, Research Subjects/psychology, Risk-Taking, Wendler D, Wiener L
View through a window may influence recovery from surgery
Tags: 100 to 299, 1984, Adult, Aged, Analgesics, Backlog, Cholecystectomy, Comparative Study, Female, Health Facilities, Health Facility Environment, Hospital Bed Capacity, Human, Journal Article, Length Of Stay, Male, Middle Age, Non-P.H.S., Opioid/tu [Therapeutic Use], Patients' Rooms, Pennsylvania, Postoperative Care/px [Psychology], Postoperative Complications, Postoperative Period, Science, Support, Trees, U.S. Gov't, Ulrich RS