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Tags: 2014, Adaptation Psychological, Adolescent, Andrews GS, Archives of Disease in Childhood, Cadell S, Charting the territory, Child, Child Preschool, Cross-sectional Studies, Davies B, Disability Evaluation, Disease Progression, Feeding And Eating Disorders Of Childhood/diagnosis, Feichtinger L, Female, Genetic Diseases Inborn/diagnosis/physiopathology, Genetics, Humans, Infant, Longitudinal Studies, Male, Mental Disorders/diagnosis/physiopathology, Metabolic, Metabolic Diseases/diagnosis/physiopathology, Neurodisability, Outcome Assessment (health Care), Pain/diagnosis, Palliative Care, Parents/psychology, Siden H, Singh M, Sleep Wake Disorders/diagnosis, Steele R, Young Adult
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