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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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June 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2020 List
URL Address
<a href="http://doi.org/10.1097/NJH.0000000000000628" target="_blank" rel="noreferrer noopener">http://doi.org/10.1097/NJH.0000000000000628</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Nurses' Perceptions of the Palliative Care Needs of Neonates With Multiple Congenital Anomalies
Publisher
An entity responsible for making the resource available
Journal of Hospice and Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
Abnormalities; Age Factors; Consent (Research); Content Analysis; Data Analysis Software; Descriptive Statistics; Educational Status; Feedback; Female; Health Services Needs and Demand – In Infancy and Childhood; Human; Infant; Intensive Care Units; Interviews; Male; Multiple; Neonatal; Neonatal Intensive Care Nursing; Newborn; Nurse Attitudes – Evaluation; Palliative Care; Quality of Life; Questionnaires; Semi-Structured Interview; Thematic Analysis; Time Factors
Creator
An entity primarily responsible for making the resource
Şener Taplak A; Gürol A; Polat S
Description
An account of the resource
This study was conducted to determine neonatal intensive care unit (NICU) nurses' opinions about the palliative care needs of neonates with multiple congenital anomalies. The study sample consisted of the 20 nurses who agreed to participate in the study and worked in the NICU between November and December 2017. A one-to-one interview method was utilized using a semistructured interview form. Written consent was obtained from participants and reconfirmed verbally prior to data collection. In the study, most of the nurses stated that the therapeutic medical treatment should not be started for dying neonates with multiple congenital anomalies. It was also found that nurses did not have enough palliative care knowledge for neonates. The palliative care needs of the neonates with multiple congenital anomalies in NICUs were found to be pain management, infection care, enhancing quality of life by avoiding unnecessary medical practices, skin care, the care of the baby in the ventilator, timely application of the treatment of neonates, and supporting family.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/NJH.0000000000000628" target="_blank" rel="noreferrer noopener">10.1097/NJH.0000000000000628</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Abnormalities
Age Factors
Consent (Research)
Content Analysis
Data Analysis Software
Descriptive Statistics
Educational Status
Feedback
Female
Gürol A
Health Services Needs and Demand – In Infancy and Childhood
Human
Infant
Intensive Care Units
Interviews
Journal of Hospice and Palliative Nursing
June 2020 List
Male
Multiple
Neonatal
Neonatal Intensive Care Nursing
Newborn
Nurse Attitudes – Evaluation
Palliative Care
Polat S
Quality Of Life
Questionnaires
Semi-Structured Interview
Şener Taplak A
Thematic Analysis
Time Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1200/JCO.2013.51.5981" target="_blank" rel="noreferrer">http://doi.org/10.1200/JCO.2013.51.5981</a>
<a href="http://jco.ascopubs.org/content/early/2014/03/10/JCO.2013.51.5981" target="_blank" rel="noreferrer">http://jco.ascopubs.org/content/early/2014/03/10/JCO.2013.51.5981</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Improving the Care of Children With Advanced Cancer by Using an Electronic Patient-Reported Feedback Intervention: Results From the PediQUEST Randomized Controlled Trial
Publisher
An entity responsible for making the resource available
Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Child; Female; Humans; Male; Palliative Care; Neoplasms; Treatment Outcome; Electronic Health Records; Pilot Projects; Symptom Assessment; Feedback; Intervention Studies; Sickness Impact Profile; quality of life; Preschool
Creator
An entity primarily responsible for making the resource
Wolfe J; Orellana L; Cook EF; Ullrich CK; Kang TI; Geyer JR; Feudtner C; Weeks Jane C; Dussel V
Description
An account of the resource
Purpose This study aimed to determine whether feeding back patient-reported outcomes (PROs) to providers and families of children with advanced cancer improves symptom distress and health-related quality of life (HRQoL). Patients and Methods This study was a parallel, multicentered pilot randomized controlled trial. At most once per week, children age ≥ 2 years old with advanced cancer or their parent completed the computer-based Pediatric Quality of Life and Evaluation of Symptoms Technology (PediQUEST) survey consisting of age- and respondent-adapted versions of the Memorial Symptom Assessment Scale (MSAS), Pediatric Quality of Life Inventory 4.0 Generic Core Scales (PedsQL4.0), and an overall Sickness question. In the intervention group (n = 51), oncologists and families received printed reports summarizing PROs; e-mails were sent to oncologists and subspecialists when predetermined scores were exceeded. No feedback was provided in the control group (n = 53). Primary outcomes included linear trends of MSAS, PedsQL4.0 total and subscale scores, and Sickness scores during 20 weeks of follow-up, along with child, parent, and provider satisfaction with PediQUEST feedback. Results Feedback did not significantly affect average MSAS, PedsQL4.0, or Sickness score trends. Post hoc subgroup analyses among children age ≥ 8 years who survived 20 weeks showed that feedback improved PedsQL4.0 emotional (+8.1; 95% CI, 1.8 to 14.4) and Sickness (−8.2; 95% CI, −14.2 to −2.2) scores. PediQUEST reports were valued by children, parents, and providers and contributed at least sometimes to physician initiation of a psychosocial consult (56%). Conclusion Although routine feedback of PROs did not significantly affect the child’s symptoms or HRQoL, changes were in expected directions and improvements observed in emotional HRQoL through exploratory analyses were encouraging. Importantly, children, parents, and providers value PRO feedback.
2014-03
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/JCO.2013.51.5981" target="_blank" rel="noreferrer">10.1200/JCO.2013.51.5981</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Backlog
Child
Cook EF
Dussel V
Electronic Health Records
Feedback
Female
Feudtner C
Geyer JR
Humans
Intervention Studies
Journal Article
Journal Of Clinical Oncology
Kang TI
Male
Neoplasms
Orellana L
Palliative Care
Pilot Projects
Preschool
Quality Of Life
Sickness Impact Profile
Symptom Assessment
Treatment Outcome
Ullrich CK
Weeks Jane C
Wolfe J
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/qshc.2005.017707" target="_blank" rel="noreferrer">http://doi.org/10.1136/qshc.2005.017707</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Improving comfort and communication in the ICU: a practical new tool for palliative care performance measurement and feedback
Publisher
An entity responsible for making the resource available
Quality & Safety in Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Humans; United States; Pain Measurement; Professional-Family Relations; Cooperative Behavior; Communication; Pilot Projects; Program Development; Patient Satisfaction; Spirituality; Hospitals; Proxy; Feedback; decision making; Health Care; Quality Assurance; Health Care/organization & administration; Quality Indicators; Palliative Care/psychology/standards; Intensive Care Units/standards; Critical Care/psychology/standards; Voluntary/organization & administration/standards
Creator
An entity primarily responsible for making the resource
Nelson JE; Mulkerin CM; Adams LL; Pronovost PJ
Description
An account of the resource
OBJECTIVE: To develop a practical set of measures for routine monitoring, performance feedback, and improvement in the quality of palliative care in the intensive care unit (ICU). DESIGN: Use of an interdisciplinary iterative process to create a prototype "bundle" of indicators within previously established domains of ICU palliative care quality; operationalization of indicators as specified measures; and pilot implementation to evaluate feasibility and baseline ICU performance. SETTING: The national Transformation of the Intensive Care Unit program developed in the United States by VHA Inc. PATIENTS: Critically ill patients in ICUs for 1, > 3, and > 5 days. MEASUREMENTS AND MAIN RESULTS: Palliative care processes including identification of patient preferences and decision making surrogates, communication between clinicians and patients/families, social and spiritual support, and pain assessment and management, as documented in medical records. Application is triggered by specified lengths of ICU stay. Pilot testing in 19 ICUs (review of > 100 patients' records) documented feasibility, while revealing opportunities for quality improvement in clinician-patient/family communication and other key components of ICU palliative care. CONCLUSIONS: The new bundle of measures is a prototype for routine measurement of the quality of palliative care in the ICU. Further investigation is needed to confirm associations between measured processes and outcomes of importance to patients and families, as well as other aspects of validity.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/qshc.2005.017707" target="_blank" rel="noreferrer">10.1136/qshc.2005.017707</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adams LL
Backlog
Communication
Cooperative Behavior
Critical Care/psychology/standards
Decision Making
Feedback
Health Care
Health Care/organization & administration
Hospitals
Humans
Intensive Care Units/standards
Journal Article
Mulkerin CM
Nelson JE
Pain Measurement
Palliative Care/psychology/standards
Patient Satisfaction
Pilot Projects
Professional-family Relations
Program Development
Pronovost PJ
Proxy
Quality & Safety in Health Care
Quality Assurance
Quality Indicators
Spirituality
United States
Voluntary/organization & administration/standards
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.7861/clinmedicine.5-4-368" target="_blank" rel="noreferrer">http://doi.org/10.7861/clinmedicine.5-4-368</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Plasticity and functional recovery in neurology
Publisher
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Clinical Medicine (london, England)
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Feedback; Psychological; Brain/physiopathology; Caloric Tests; Complex Regional Pain Syndromes/physiopathology/psychology/rehabilitation; Kinesthesis/physiology; Labyrinth; Neuronal Plasticity/physiology; Paralysis/physiopathology/psychology/rehabilitation; Paresis/physiopathology/rehabilitation; Phantom Limb/physiopathology/psychology/rehabilitation; Stroke/physiopathology/rehabilitation; Vestibule
Creator
An entity primarily responsible for making the resource
Ramachandran VS
Description
An account of the resource
Experiments on patients with phantom limbs suggest that neural connections in the adult human brain are much more malleable than previously assumed. Three weeks after amputation of an arm, sensations from the ipsilateral face are referred to the phantom; this effect is caused by the sensory input from the face skin 'invading' and activating deafferented hand zones in the cortex and thalamus. Many phantom arms are 'paralysed' in a painful position. If a mirror is propped vertically in the sagittal plane and the patient looks at the reflection of his/her normal hand, this reflection appears superimposed on the 'felt' position of the phantom. Remarkably, if the real arm is moved, the phantom is felt to move as well and this sometimes relieves the painful cramps in the phantom. Mirror visual feedback (MVF) has shown promising results with chronic regional pain syndrome and hemiparesis following stroke. These results suggest two reasons for a paradigm shift in neurorehabilitation. First, there appears to be tremendous latent plasticity even in the adult brain. Second, the brain should be thought of, not as a hierarchy of organised autonomous modules, each of which delivers its output to the next level, but as a set of complex interacting networks that are in a state of dynamic equilibrium with the brain's environment. Both principles can be potentially exploited in a clinical context to facilitate recovery of function.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.7861/clinmedicine.5-4-368" target="_blank" rel="noreferrer">10.7861/clinmedicine.5-4-368</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Backlog
Brain/physiopathology
Caloric Tests
Clinical Medicine (london, England)
Complex Regional Pain Syndromes/physiopathology/psychology/rehabilitation
Feedback
Humans
Journal Article
Kinesthesis/physiology
Labyrinth
Neuronal Plasticity/physiology
Paralysis/physiopathology/psychology/rehabilitation
Paresis/physiopathology/rehabilitation
Phantom Limb/physiopathology/psychology/rehabilitation
Psychological
Ramachandran VS
Stroke/physiopathology/rehabilitation
Vestibule
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/000992289803701106" target="_blank" rel="noreferrer">http://doi.org/10.1177/000992289803701106</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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A computerized school-based health assessment with rapid feedback to improve adolescent health
Publisher
An entity responsible for making the resource available
Clinical Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
1998
Subject
The topic of the resource
Female; Humans; Male; Adolescent Psychology; Questionnaires; Adolescent Health Services; Adolescent Behavior; Feedback; Primary Health Care; adolescent; Adolescent Transitions; Health Surveys; School Health Services
Creator
An entity primarily responsible for making the resource
Bracken AC; Hersh AL; Johnson DJ
Description
An account of the resource
Adolescent health problems are often undetected in physicians' offices. The Dartmouth Primary Care Cooperative Information Project has developed a validated and reliable approach to identify adolescent health problems and initiate education in a school setting. A self-administered, anonymous, 26-item questionnaire was given to 204 students in a rural high school. Responses were scanned into PC-based software. Within one working day students were given individualized letters identifying their problem health issues as detected by the questionnaire and recommendations for education. Ninety-nine percent of students participated. Six weeks later 49% of a sample of 41 students reported reading the information and 50% planned to change behavior. This standardized, validated strategy of adolescent health assessment, feedback, and education was feasible for use in schools. The school responded to the data by employing a psychologist to address mental health needs.
1998
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/000992289803701106" target="_blank" rel="noreferrer">10.1177/000992289803701106</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1998
Adolescent
Adolescent Behavior
Adolescent Health Services
Adolescent Psychology
Adolescent Transitions
Backlog
Bracken AC
Clinical Pediatrics
Feedback
Female
Health Surveys
Hersh AL
Humans
Johnson DJ
Journal Article
Male
Primary Health Care
Questionnaires
School Health Services