Browse Items (63 total)
- Tags: Family/psychology
Exploring The Spiritual Needs Of Families With Seriously Ill Children
Tags: 2016, Adolescent, August 2016 List, Child, Cultural Characteristics, Family/psychology, Female, Ferrell B, Humans, International Journal of Palliative Nursing, Male, Needs Assessment, Nursing, Nursing Assessment, Palliative Care, Pediatrics, Professional-family Relations, Qualitative, Qualitative Research, Spirituality
Family And Healthcare Professionals’ Perceptions Of A Pilot Hospice At Home Programme For Children: A Qualitative Study
Parents commonly report a significant improvement in quality of life following the provision of hospice and supportive care and have identified a need for such a service in the home. The purpose of this study was to understand the…
Tags: 2016, Adaptation Psychological, Attitude Of Health Personnel, BMC Palliative Care, Child, Child Family Qualitative Research, Child Health Services, Claire Quinn, Critical Illness/psychology, Des Cawley, Disabled Children, Family/psychology, Female, Frances Howlin, Hospice And Palliative Care Nursing, Hospice Care/psychology, Humans, Interviews As Topic, Jay Berry, Male, Maria Brenner, Michael Connolly, Nurses/psychology, October 2016 List, Pilot Projects
Perceptions Of The Pediatric Hospice Experience Among English- And Spanish-speaking Families
Many children who die are eligible for hospice enrollment but little is known about parental perceptions of the hospice experience, the benefits, and disappointments. The objective of this study was to explore parental perspectives of the…
Tags: 2016, Adolescent, Adult, Attitude To Death/ethnology, Caregivers/psychology, Child, Child Preschool, Communication, Ethnic Groups/psychology, European Continental Ancestry, Family/psychology, Female, Funes M, Group/psychology, Hispanic Americans/psychology, Hospice Care/psychology, Humans, Infant, Journal of Palliative Medicine, Lee SC, Male, Marks E, Martinez-Puente LM, Middle Aged, Neoplasms/nursing, Neoplasms/psychology, October 2016 List, Thienprayoon R, Winick N, Young Adult
The Needs Of Children With Life-limiting Conditions: A Healthcare-provider-based Model
Tags: 2005, Attitude Of Health Personnel, Child, Child Advocacy, Cluster Analysis, Decision Making, Donnelly James P, Family/psychology, Feasibility Studies, Health Services Accessibility/organization & administration, Health Services Needs And Demand/organization & Administration, Huff Susan M, Humans, Lindsey Michael L, May 2017 List, McMahon Kathy A, Medical Futility, Models Organizational, New York, Pain/prevention & control, Patient Care Team/organization & administration, Patient-Centered Care/organization & administration, Pediatrics/organization & Administration, Psychology Child, Qualitative Research, Quality Assurance Health Care, Quality Of Life, Right to Die, Schumacher JDonald, Spirituality, Terminal Care/organization & Administration, The American Journal of Hospice & Palliative Care
How holistic nursing can enhance the quality of life of children with cystic fibrosis
Tags: 2016, Adolescent, August 2017 List, Child Health, Cystic Fibrosis, Cystic Fibrosis/ Nursing/psychology, Family/psychology, Female, Holistic Nursing/ Methods, Humans, Hunt J, life-limiting illness, Nursing Children and Young People, Paediatrics, Quality Of Life, Respiratory System, Siblings/psychology, Tointon K, Well-being
Research priorities in pediatric palliative care: a delphi study
Tags: 2007, Attitude Of Health Personnel, Attitude To Health, Benchmarking, Bereavement, Bosma H, Cadell S, Canada, Child, Consensus, Davies B, Delphi Technique, Evidence-based Practice, Family/psychology, Fleming C, Fletcher JM, Humans, Journal Of Palliative Care, Needs Assessment/organization & administration, Pain/prevention & control, Palliative Care/organization & Administration, Pediatrics/organization & Administration, Practice Guidelines As Topic, Psychological/prevention & control, Questionnaires, Research Design, Research/organization & administration, Siden H, Steele R, Straatman L, Stress
Measuring the quality of dying
Tags: 2001, Attitude Of Health Personnel, Attitude To Death, Attitude To Health, Backlog, Chronic/psychology, Family/psychology, Health Services Research/methods/standards, Human, Journal Article, Journal of Palliative Medicine, Kidney Failure, Moss AH, Quality Of Health Care, Quality Of Life, Research Design/standards, Terminal Care/psychology/standards
Community resources for children with special healthcare needs
Tags: 1997, Backlog, Blasco PA, Child, Chronic Disease, Community Health Services, Family/psychology, Health Services Needs And Demand, Humans, Information Services, Johnson CP, Journal Article, Pediatric Annals, Pediatrics/organization & Administration, Physician's Role, Social Support, United States
Crisis intervention strategies when caring for families of children with cancer
Tags: 2000, Adult, Backlog, Child, Crisis Intervention/methods, Family/psychology, Hendricks-Ferguson VL, Humans, Intervention, Interventions, Journal Article, Journal Of Pediatric Oncology Nursing, Neoplasms/nursing/psychology, Nursing Assessment/methods, Parent caregivers, Patient Care Planning, Professional-family Relations
A theory of healing in the aftermath of youth suicide. Implications for holistic nursing practice
Tags: 2001, Adaptation, Adolescent, Adult, Aged, Backlog, Child, Davies B, Family/psychology, Female, Holistic Health, Holistic Nursing, Humans, Journal Article, Journal Of Holistic Nursing, Kalischuk RG, Life Change Events, Love, Male, Mental Healing, Middle Aged, Non-U.S. Gov't, Psychological, Questionnaires, Research Support, Suicide
Continuity of care: influence of general practitioners' knowledge about their patients on use of resources in consultations.
Tags: 1991, Adolescent, Adult, Aged, Backlog, Borchgrevink CF, British Medical Journal, Child, Continuity Of Patient Care, Cross-sectional Studies, Drug Prescriptions, Family/psychology, Female, Health Resources/utilization, Hjortdahl P, Humans, Infant, Journal Article, Male, Middle Aged, Norway, Physician-patient Relations, Physicians, Preschool, Referral And Consultation, Time Factors
Cornerstone care for families of children with life-threatening illness.
Tags: 1991, Adaptation, Backlog, Baum JD, Brain Diseases/psychology/therapy, Child, Continuity Of Patient Care, Developmental Medicine and Child Neurology, Family/psychology, Forrest GC, Grief, Home Nursing/psychology, Hospices, Humans, Journal Article, Longitudinal Studies, Neuromuscular Diseases/psychology/therapy, Patient Care Team, Professional-family Relations, Psychological, Public Assistance, Sick Role, Social Support, Stein A, Terminal Care/psychology, Woolley H
Support as a crucial predictor of good compliance of adolescents with a chronic disease
Tags: 2001, Adolescent, Adolescent Behavior/psychology, Adolescent Psychology/statistics & numerical data, Adolescent Transitions, Arthritis, Asthma/prevention & control/psychology, Backlog, Chronic Disease/psychology/therapy, Diabetes Mellitus, Epilepsy/prevention & control/psychology, Family/psychology, Female, Finland, Humans, Interpersonal Relations, Journal Article, Journal of Clinical Nursing, Juvenile Rheumatoid/prevention & control/psychology, Kyngas H, Logistic Models, Male, Motivation, Nurse-patient Relations, Patient Compliance/psychology/statistics & numerical data, Physician-patient Relations, Predictive Value of Tests, Questionnaires, Rissanen M, Social Support, Type 1/prevention & control/psychology
The family, crisis and chronic illness: an evolutionary model
Tags: 1992, Adolescent, Attitude To Health, Backlog, Chronic Disease/nursing/psychology, Crisis Intervention, Emergencies/nursing/psychology, Family/psychology, Female, Halliday PH, Humans, Journal Article, Journal Of Advanced Nursing, Models, Nursing, Parent caregivers, Role, Shaw MC, Systems Theory
Experiencing transitions: an emerging middle-range theory
Tags: 2000, Adaptation, Advances in Nursing Science, Attitudes, Backlog, Caregivers/psychology, Cultural Diversity, Emigration and Immigration, Family/psychology, Health Care, Health Knowledge, Health Status, Helping Behavior, Hilfinger Messias DK, Humans, Im EO, Journal Article, Life Change Events, Meleis AI, Menopause/psychology, Nursing Care/methods/psychology/standards, nursing theory, Outcome And Process Assessment (health Care), Parenting/psychology, Practice, Psychological, Psychological Theory, Quality Indicators, Quality Of Life, Sawyer LM, Schumacher K
Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision-making capacity
Tags: 2001, Anxiety/epidemiology/etiology, Azoulay E, Backlog, Canoui P, Chevret S, Critical Care Medicine, Critical Illness/therapy, Decision Making, Depressive Disorder/epidemiology/etiology, Dhainaut JF, Ethics, Euthanasia, Family/psychology, Female, France/epidemiology, Grassin M, Group French FAMIREA, Hubert P, Humans, Intensive Care Units, Journal Article, LeGall JR, Lemaire F, Life Support Care/utilization, Logistic Models, Male, Medical, Multivariate Analysis, Nonparametric, Passive, Pochard F, Prevalence, Prospective Studies, Questionnaires, Schlemmer B, Statistics, Zittoun R
Reasons for dissatisfaction: A survey of relatives of intensive care patients who died
Tags: 1998, Adult, Age Distribution, Aged, Backlog, Badia F, Bettelini CM, Cause Of Death, Communication, Consumer Satisfaction/statistics & numerical data, Critical Care Medicine, Cross-sectional Studies, Death, Degrate A, Family/psychology, Female, Hospital, Humans, Intensive Care Units/standards, Journal Article, Malacrida R, Male, Martinez M, Medical Staff, Middle Aged, Non-U.S. Gov't, Piazza J, Professional-family Relations, Questionnaires, Rapin CH, Research Support, Switzerland, Terminal Care/psychology/standards, Vizzardi N, Wullschleger R
Factors explaining variability among caregivers in the intent to restrict life-support interventions in a pediatric intensive care unit
Tags: 1997, Activities of Daily Living, Adult, Attitude Of Health Personnel, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Empirical Approach, Euthanasia, Family/psychology, Hospital/psychology, Humans, ICU Decision Making, Intensive Care Units, Intervention, Interventions, Journal Article, Life Support Care, Linear Models, Medical Staff, Nursing Staff, Passive, Pediatric, Professional Patient Relationship, Prognosis, Questionnaires, Randolph AG, Wigton RS, Yeh TS, Zollo MB
Bereavement care in the critical care setting
The long-term effects of later life spousal and parental bereavement on personal functioning
Tags: 1995, Adaptation, Adult, Age Factors, Aged, Arbuckle NW, Backlog, Bereavement, Bereavement Leave Policy Paper, de Vries B, Family/psychology, Female, Humans, Journal Article, Life Change Events, Male, Psychological, Quality Of Life, Regression Analysis, Sampling Studies, Sex Factors, The Gerontologist, Time Factors, Widowhood/psychology
A community survey of children with severe intellectual disability and their families: psychological adjustment, carer distress and the effect of respite care
Tags: 1998, Adaptation, Backlog, Caregivers/psychology, Child, Community Mental Health Services, Family/psychology, Female, Harris M, Hoare P, Humans, Jackson P, Journal Article, Journal Of Intellectual Disability Research, Kerley S, Male, Mental Retardation/diagnosis, Parent caregivers, Psychological, Psychological/psychology, Questionnaires, Respite Care, Severity Of Illness Index, Social Adjustment, Stress
The attitude of young adults with chronic disease or handicaps towards enforced treatment and euthanasia
Tags: 1999, Adolescent, Adolescent Psychology, Attitude To Death, Attitude To Health, Backlog, Brook U, Case-Control Studies, Chronic Disease/psychology, Decision Making, Disabled Persons/psychology, Euthanasia/psychology, Family/psychology, Female, Humans, Informed Consent, Israel, Journal Article, Male, Medical Futility, Patient Education and Counseling, Physician's Role, Prognosis, Quality Of Life, Questionnaires, Terminal Care/psychology, Treatment Refusal/psychology
Decisions about life-sustaining treatment. Impact of physicians' behaviors on the family
Tags: 1995, Archives Of Internal Medicine, Backlog, Communication, Consensus, Death and Euthanasia, Decision Making, Disclosure, Empirical Approach, Family/psychology, Garland MJ, Humans, Interviews, Journal Article, Life Support Care, Nelson CA, Nurse's Role, P.H.S., Physician's Role, Practice Guidelines, Professional Patient Relationship, Professional-patient Relations, Research Support, Tilden VP, Tolle SW, U.S. Gov't, Withholding Treatment
Preventing psychosocial impairment in siblings of terminally ill children
Addressing spirituality in pediatric hospice and palliative care
Tags: 2002, Adult, Backlog, Brenner P, Child, Child Psychology, Davies B, Family/psychology, Holistic Health, Human, Journal Article, Journal Of Palliative Care, Needs Assessment, Nursing Assessment, Orloff S, Palliative Care/methods/psychology/standards, Pastoral Care/methods/standards, Pediatrics/methods, Practice Guidelines, Religion and Medicine, Religion and Psychology, Spirituality, Sumner L, Worden W
Hospital staff and family perspectives regarding quality of pediatric palliative care.
Tags: 2004, Attitude Of Health Personnel, Attitude To Health, Backlog, Bereavement, Child, Cohen HJ, Communication, Contro N, Data Collection, Family/psychology, Hospital/psychology, Humans, Journal Article, Larson J, Longitudinal Studies, Non-U.S. Gov't, Pain/therapy, Palliative Care/standards, Pediatrics, Pediatrics/education/standards, Personnel, Professional-family Relations, Quality Of Health Care, Research Support, Scofield S, Sourkes B
Family-centered care and the pediatrician's role
Nature of conflict in the care of pediatric intensive care patients with prolonged stay
Tags: 2003, Backlog, Brennan T, Burns JP, Case-Control Studies, Communication Barriers, Dissent And Disputes, Family/psychology, Female, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Length of Stay/trends, Male, Mello MM, Newborn, Patient Care Planning/trends, Patient Satisfaction/statistics & Numerical Data, Pediatric Nursing/trends, Pediatric/trends, Pediatrics, Physician-patient Relations, Predictive Value of Tests, Prospective Studies, Puopolo AL, Studdert DM, Truog RD, Withholding Treatment/trends
Relationship between three palliative care outcome scales
Tags: 2004, 80 And Over, Adaptation, Adult, Aged, Backlog, Caregivers/psychology, Donaldson N, England, Family/psychology, Female, Health And Quality Of Life Outcomes, Higginson IJ, home care services, Hospitalization, Humans, Journal Article, Male, Middle Aged, Neoplasms/physiopathology/psychology/therapy, Outcome Assessment (Health Care)/methods, Palliative Care/psychology, Psychological, Psychometrics, Quality Of Life/psychology, Questionnaires, Sickness Impact Profile, Socioeconomic Factors
Palliative care: rapid redesign to support systemwide quality improvement
Tags: 2002, Backlog, Catholicism, Family/psychology, Hospice Care/standards, Hospital Restructuring, Hospitals, Humans, Institutional Management Teams, Journal Article, Journal For Healthcare Quality, Leadership, Length Of Stay, Midwestern United States, Multi-Institutional Systems/organization & administration, Multi-Institutional Systems/standards, Outcome Assessment (health Care), Palliative Care/organization & Administration, Palliative Care/standards, Patient Satisfaction, Practice Guidelines As Topic, Program Development, Quinn C, Religious/organization & administration, Religious/standards, Thomas MB, Total Quality Management/organization & administration
Forgoing life support across borders: who decides and why?
Tags: 2004, Adult, Backlog, Child, Death and Euthanasia, Decision Making, Empirical Approach, Euthanasia, Family/psychology, Frader JE, Humans, ICU Decision Making, Intensive Care Units, Intensive Care/ethics/psychology, Journal Article, Organizational, Passive/ethics/psychology, Patient Participation/psychology, Pediatric, Pediatric Critical Care Medicine
Half the family members of intensive care unit patients do not want to share in the decision-making process: a study in 78 French intensive care units
Tags: 2004, Adrie C, Adult, Aged, Annane D, anxiety, Attitude Of Health Personnel, Attitude To Health, Azoulay E, Backlog, Bleichner G, Bornstain C, Bouffard Y, Chevret S, Cohen Y, Consumer Satisfaction, Critical Care Medicine, Decision Making, Depression, Family/psychology, FAMIREA Study Group, Feissel M, Female, France, Goldgran-Toledano D, Guitton C, Hayon J, Humans, ICU Decision Making, Iglesias E, Intensive Care Units, Joly LM, Jourdain M, Journal Article, Laplace C, Lebert C, LeGall JR, Logistic Models, Male, Middle Aged, Multivariate Analysis, Pingat J, Pochard F, Poisson C, Prospective Studies, Renault A, Sanchez O, Schlemmer B, Selcer D, Timsit JF
Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction
Tags: 2004, Backlog, Communication, Consumer Satisfaction, Critical Care, Critical Care Medicine, Cross-sectional Studies, Curtis JR, Elliott TB, Engelberg RA, Family/psychology, Female, Hospital Mortality, Humans, Intensive Care Units, Journal Article, Male, McDonagh JR, Middle Aged, Patrick DL, Questionnaires, Rubenfeld GD, Shannon SE, Terminal Care/psychology, Treece PD, Washington
Issues in end-of-life care: patient, caregiver, and clinician perceptions
Tags: 2003, 80 And Over, Adult, Aged, Attitude Of Health Personnel, Attitude To Death, Backlog, Caregivers/psychology, Cohort Studies, Cost Of Illness, Egnew TR, Family/psychology, Farber SJ, Female, Guldin GE, Herman-Bertsch JL, Humans, Interpersonal Relations, Interviews, Journal Article, Journal of Palliative Medicine, Male, Middle Aged, Non-U.S. Gov't, Palliative Care/psychology, Patients/psychology, Physicians, Qualitative Research, Quality Of Health Care, Research Support, Taylor TR, Terminal Care/psychology, Washington
Family beliefs regarding the nutritional care of a terminally ill relative: a qualitative study
Tags: 18th Century, 2003, Adolescent, Adult, Attitudes, Backlog, Canada, Degner LF, Family/psychology, Female, Harlos MS, Health Knowledge, History, Humans, Interviews, Journal Article, Journal of Palliative Medicine, Male, McClement SE, Middle Aged, Neoplasms/psychology/therapy, Non-U.S. Gov't, Nutritional Support, Palliative Care, Practice, Research Support, Terminally Ill/psychology
Understanding uncertainty and minimizing families' anxiety at the time of transfer from intensive care
Tags: 2003, anxiety, Backlog, Communication, Courtney M, Coyer F, Critical Illness/psychology, Emotions, Family/psychology, Humans, ICU Decision Making, Intensive Care Units, Intensive Care/psychology, Journal Article, Mitchell ML, Nursing & Health Sciences, Patient Transfer, Professional-family Relations, Questionnaires, Stress (Psychology), Uncertainty
Maternal and paternal stress in families with school-aged children with disabilities
What works for therapists conducting family meetings: treatment integrity in family-focused grief therapy during palliative care and bereavement
Tags: 2004, Adult, Australia/epidemiology, Backlog, Bereavement, Chan EK, Family Therapy/methods/statistics & numerical data, Family/psychology, Female, Grief, Health Care/methods/standards, Health Surveys, Hospice Care/methods/psychology/statistics & numerical data, Humans, Journal Article, Journal of Pain and Symptom Management, Kissane DW, Love A, Male, McKenzie M, Middle Aged, Neoplasms/mortality/psychology, O'Neill I, Palliative Care/psychology/statistics & numerical data, Professional Competence/statistics & numerical data, Quality Assurance, SSHRC CURA, Treatment Outcome
Reducing family members' anxiety and uncertainty in illness around transfer from intensive care: an intervention study
Tags: 2004, 80 And Over, Adolescent, Adult, Aged, Analysis of Variance, Anxiety/prevention & control, Australia, Backlog, Courtney M, Family/psychology, Female, Humans, ICU Decision Making, Intensive and Critical Care Nursing, Intensive Care Units, Intervention, Interventions, Journal Article, Male, Middle Aged, Mitchell ML, Pamphlets, Patient Transfer, Social Support
Pediatric palliative care: the time has come.
Tags: 2002, Archives Of Pediatrics & Adolescent Medicine, Attitude To Health, Backlog, Child, Child Psychology, Chronic Disease, Communication, Family/psychology, Humans, Hutton N, Journal Article, Longitudinal Studies, Needs Assessment, Palliative Care/methods/psychology/trends, Pediatrics/methods/trends, Professional-family Relations, Quality Of Life, Terminal Care/methods/psychology/trends