1
40
4
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
October 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2022 List
URL Address
<a href="http://doi.org/10.1017/S1478951522000797">http://doi.org/10.1017/S1478951522000797</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Neonatal Palliative Care Attitude Scale: Psychometric properties for Portuguese neonatal nurses
Publisher
An entity responsible for making the resource available
Palliative and Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
End-of-life; neonatal; nursing; newborn; Neonatal; reliability; validity; education; nurse; palliative; Palliative; of; human; article; female; male; face; software; therapy; scale; validation; error; care; attitude; clinical; controlled; intensive; major; study; unit; factor; alpha; analysis; coefficient; confirmatory; consistency; convergent; Cronbach; degree; discriminant; experiment; Factor; freedom; internal; mean; quantitative; root; squared; supportive; terminal; Validation
Creator
An entity primarily responsible for making the resource
Sousa F P; Roldao MG; Rebotim AM; Figueira AR; Barbosa J; Fradique E; Santos Curado MA
Description
An account of the resource
BACKGROUND: This study is aimed to perform the translation and cultural adaptation of the Neonatal Palliative Care Attitude Scale (NiPCAS) and evaluation of its psychometric properties with Portuguese neonatal nurses. METHOD(S): The research started with a scoping review that allowed the identification of the NiPCAS. It was a methodological study with a quantitative approach. The semantic equivalence of the items was adjusted with the participation of 20 neonatal nurse experts. They performed facial and quantitative content validation. Psychometric validation of the NiPCAS was performed on a nonprobability nurses sample (n = 283) in 13 level 3 neonatal units between July 2021 and February 2022. Confirmatory factor analysis using the polychoric correlation matrix was performed to estimate factor validity using the "lavaan" package for R statistical software. Internal consistency was estimated using Cronbach's alpha coefficient, and item sensitivity was assessed using the asymmetry and kurtosis coefficients. Empirical indices were considered: chi-square over degrees of freedom; comparative fit index; normed fit index; Tucker-Lewis index, and root mean square error of approximation; average extracted variance and composite reliability were used to assess convergent validity. RESULT(S): Asymmetry and kurtosis were < 3 and < 7 , respectively, suggesting psychometric sensitivity. The convergent validity of the factors was: F1, FCF1 = 0.90 and for F2, FCF2 = 0.80, and a lower value for F3, FCF3 = 0.40. According to the squared correlation criterion average variance extracted (AVE) between the factors, there was no discriminant validity for F1 and F2, but there was discriminant validity for F1, F3, F2, and F3. SIGNIFICANCE OF RESULTS: This instrument has implications for providing end-of-life care to newborns and their families. The use of this instrument reveals several barriers and facilitating elements inherent in the organization and culture of the facility and nursing education.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1017/S1478951522000797">10.1017/S1478951522000797</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
alpha
Analysis
Article
Attitude
Barbosa J
CARE
Clinical
coefficient
confirmatory
consistency
controlled
convergent
Cronbach
degree
discriminant
Education
end-of-life
error
experiment
Face
factor
Female
Figueira AR
Fradique E
Freedom
Human
intensive
internal
Major
Male
mean
Neonatal
Newborn
Nurse
Nursing
October 2022 List
Of
Palliative
Palliative & Supportive Care
quantitative
Rebotim AM
Reliability
Roldao MG
root
Santos Curado MA
Scale
Software
Sousa F P
squared
study
supportive
terminal
Therapy
Unit
VALIDATION
Validity
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
February 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2020 List
URL Address
<a href="https://pediatrics.aappublications.org/content/141/1_MeetingAbstract/391">https://pediatrics.aappublications.org/content/141/1_MeetingAbstract/391</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Use of electronic media in a pediatric palliative aquatics program: Legacy, teaching, research and caveats
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
awareness; brother; California; child; conference abstract; documentation; face; female; grief; hearing; heat; hot water; human; literature; male; memory; motion; palliative therapy; pediatrics; photography; physician; sound; teacher; teaching; touch; videorecording; voice
Creator
An entity primarily responsible for making the resource
Pyatt S; Fisher J M
Description
An account of the resource
Program Goals: Appropriate use of electronic media in a pediatric palliative care setting enhances a family's experience of care given to their child over time and assists in the grieving process. Here we explore multiple uses of electronic media in a pediatric palliative aquatics program operating within a pediatric palliative care facility in California. Evaluation: Electronic media has changed many facets of daily life, including providing palliative care to medically fragile children. Its use provides families with an "electronic biography" of their child and offers siblings a connection to a brother or sister who might have died before their birth. Oral histories are further supported with video data, thereby providing families with an enduring legacy. Loved ones unable to be present at events in "real time" can enjoy the electronic version of the child's experience. The legacy created in this manner exists beyond the grief of the present moment, extending into a time when painful memories become muted, allowing families to remember joyful events in the child's life. Families can photograph and video the child's responses to aquatic sessions, documenting movements and abilities virtually impossible for the child on land. Information can be shared with pediatric care practitioners using electronic media, providing them with detailed documentation of the patient's responses and enhanced abilities during warm water sessions. Consent is always obtained prior to facility use. As always, precautions against inappropriate use of electronic media during aquatics sessions must be assured. Public use of specific photos and film are sensitively screened for appropriateness. In researching program outcomes, the child ultimately becomes both subject and teacher during palliative aquatic sessions. Individual patient responses to sessions can be documented over time, allowing researchers opportunities to observe in slow motion subtle reactions of the patient to movement and touch. The aquatic practitioner-trainees' sense of touch, sight and hearing becomes more acute as s/he observes a child's facial and body reactions to movement, warmth, water pressure and sound. In our ongoing work of training new practitioners, appropriate use of electronic media and careful documentation of sessions has become one of our most valuable teaching tools.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Awareness
Brother
California
Child
conference abstract
Documentation
Face
February 2020 List
Female
Fisher J M
Grief
hearing
Heat
hot water
Human
literature
Male
Memory
motion
Palliative Therapy
Pediatrics
Photography
Physician
Pyatt S
Sound
Teacher
Teaching
touch
videorecording
Voice
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1891/0730-0832.25.6.387" target="_blank" rel="noreferrer">http://doi.org/10.1891/0730-0832.25.6.387</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative care delivery in the NICU: What barriers do neonatal nurses face?
Publisher
An entity responsible for making the resource available
Neonatal Network
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Nurses; Face
Creator
An entity primarily responsible for making the resource
Kain Victoria J
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1891/0730-0832.25.6.387" target="_blank" rel="noreferrer">10.1891/0730-0832.25.6.387</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2006
2006
Backlog
Face
Journal Article
Kain Victoria J
Neonatal Network
Nurses
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0304-3959(01)00314-1" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0304-3959(01)00314-1</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Faces Pain Scale-Revised: toward a common metric in pediatric pain measurement
Publisher
An entity responsible for making the resource available
Pain
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Child; Humans; Adult; Communication; Child Psychology; Reproducibility of Results; Preschool; Biomarkers of Pain; Biomarkers Reference List; Face; Pain Measurement/standards; Pain/diagnosis/psychology
Creator
An entity primarily responsible for making the resource
Hicks CL; von Baeyer CL; Spafford PA; van Korlaar I; Goodenough B
Description
An account of the resource
The Faces Pain Scale (FPS; Bieri et al., Pain 41 (1990) 139) is a self-report measure used to assess the intensity of children's pain. Three studies were carried out to revise the original scale and validate the adapted version. In the first phase, the FPS was revised from its original seven faces to six, while maintaining its desirable psychometric properties, in order to make it compatible in scoring with other self-rating and observational scales which use a common metric (0-5 or 0-10). Using a computer-animated version of the FPS developed by Champion and colleagues (Sydney Animated Facial Expressions Scale), psychophysical methods were applied to identify four faces representing equal intervals between the scale values representing least pain and most pain. In the second phase, children used the new six-face Faces Pain Scale-Revised (FPS-R) to rate the intensity of pain from ear piercing. Its validity is supported by a strong positive correlation (r=0.93, N=76) with a visual analogue scale (VAS) measure in children aged 5-12 years. In the third phase, a clinical sample of pediatric inpatients aged 4-12 years used the FPS-R and a VAS or the colored analogue scale (CAS) to rate pain during hospitalization for surgical and non-surgical painful conditions. The validity of the FPS-R was further supported by strong positive correlations with the VAS (r=0.92, N=45) and the CAS (r=0.84, N=45) in this clinical sample. Most children in all age groups including the youngest were able to use the FPS-R in a manner that was consistent with the other measures. There were no significant differences between the means on the FPS-R and either of the analogue scales. The FPS-R is shown to be appropriate for use in assessment of the intensity of children's acute pain from age 4 or 5 onward. It has the advantage of being suitable for use with the most widely used metric for scoring (0-10), and conforms closely to a linear interval scale.
2001
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0304-3959(01)00314-1" target="_blank" rel="noreferrer">10.1016/s0304-3959(01)00314-1</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Adult
Backlog
Biomarkers of Pain
Biomarkers Reference List
Child
Child Psychology
Communication
Face
Goodenough B
Hicks CL
Humans
Journal Article
Pain
Pain Measurement/standards
Pain/diagnosis/psychology
Preschool
Reproducibility of Results
Spafford PA
van Korlaar I
von Baeyer CL