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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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October 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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October 2020 List
URL Address
<a href="http://doi.org/10.1016/j.annals.2020.102900" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.annals.2020.102900</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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When a child is sick: the role of social tourism in palliative and end-of-life care
Publisher
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Annals of Tourism Research
Date
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2020
Subject
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animals; Britain; British Isles; child care; childhood diseases; children; Chordata; Commonwealth of Nations; Developed Countries; emotions; eukaryotes; Europe; European Union Countries; health care; health policy; Hominidae; Homo; mammals; man; OECD Countries; primates; social tourism; UK; United Kingdom; vertebrates; Western Europe
Creator
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Hunter-Jones P; Sudbury-Riley L; Al-Abdin A; Menzies L; Neary K
Description
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Drawing upon transformative service research and social tourism literature, this paper explores the relationship between respite care and childhood illness. It focuses specifically upon the short break opportunities attached to respite care offered in children's hospices in the United Kingdom. Pathographies (illness narratives), shared by patients, siblings and family (n = 23), provide unique insights into ways in which each participate in respite care. Participation prompts inclusivity and normality. It offers a break from illness, and contributes to uplifting feelings of optimism, escapism and new beginnings. Conclusions drawn argue the need for healthcare policy to move beyond 'Dying Well' narratives into ones which celebrate 'Living Well with Dying'. Tourism participation has much to offer such a progressive healthcare policy.
Identifier
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<a href="http://doi.org/10.1016/j.annals.2020.102900" target="_blank" rel="noreferrer noopener">10.1016/j.annals.2020.102900</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Al-Abdin A
Animals
Annals of Tourism Research
Britain
British Isles
Child Care
childhood diseases
Children
Chordata
Commonwealth of Nations
Developed Countries
Emotions
Eukaryotes
Europe
European Union Countries
Health Care
Health Policy
Hominidae
Homo
Hunter-Jones P
Mammals
Man
Menzies L
Neary K
October 2020 List
OECD Countries
Primates
social tourism
Sudbury-Riley L
UK
United Kingdom
Vertebrates
Western Europe
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
February 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2018 List
URL Address
<a href="http://doi.org/10.1001/jamapediatrics.2017.0197" target="_blank" rel="noreferrer">http://doi.org/10.1001/jamapediatrics.2017.0197</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Association of mortality with the death of a sibling in childhood
Publisher
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Jama Pediatrics
Date
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2017
Subject
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Animals; bereavement; causes of death; Children; Chordata; Cohort Studies; Death; death rate; Denmark; Developed Countries; eukaryotes; Europe; European Union Countries; Hominidae; Homo; mammals; man; mortality; Nordic Countries; Northern Europe; OECD Countries; primates; Risk Factors; Scandinavia; Siblings; Sweden; vertebrates
Creator
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Yu YongFu; Liew ZeYan; Cnattingius S; Olsen J; Vestergaard M; Fu Bo; Parner ET; Qin GuoYou; Zhao NaiQing; Li Jiong
Description
An account of the resource
Importance: The death of a close relative is associated with an increased mortality risk among the bereaved, but much less is known about the potential association of the death of a sibling in childhood with mortality in this population. Objective: To examine the association between sibling death in childhood and subsequent mortality risk. Design, Setting, and Participants: This population-based cohort study of 5 005 029 participants evaluated linked national registers in Denmark (January 1, 1973, through December 31, 2009) and Sweden (January 1, 1973, through December 31, 2008). A total of 2 060 354 Danish and 2 944 675 Swedish children who survived the first 6 months of their life were included. We excluded 14 children who died of the same external cause as their siblings within 30 days. Data were analyzed from November 2, 2015, through October 14, 2016. Exposures: Participants were classified as exposed if a sibling died in childhood (age <18 years). Main Outcomes and Measures: Poisson regression was used to estimate mortality rate ratio (MRR) with the exposure as a time-varying variable. Results: Among the 55 818 participants who experienced sibling death in childhood (51.5% male and 48.5% female; median age at loss, 7.0 [interquartile range, 3.3-12.1] years), all-cause mortality risk was increased by 71% (MRR, 1.71; 95% CI, 1.57-1.87) during the follow-up of 37 years. The excess mortality risk was observed for groups with specific causes of death, and the higher MRRs were found when the sibling pairs died of the same cause (death due to disease [MRR, 2.16; 95% CI, 1.87-2.49]; death due to external cause [MRR, 1.91; 95% CI, 1.54-2.37]). The increased mortality risk after sibling death was seen across the follow-up period, regardless of the age at bereavement and the type of death among bereaved siblings, but the magnitude of association was stronger during the first year after sibling death (MRR, 2.51; 95% CI, 1.79-3.54). Higher MRRs were found among sibling pairs with the same sex (MRR, 1.92; 95% CI, 1.70-2.18) and close age (MRR, 1.94; 95% CI, 1.58-2.37). Conclusions and Relevance: Bereavement in childhood because of the death of a sibling was associated with an increased risk for mortality in the short and long term. Health care professionals should be aware of individuals' vulnerability due to sibling death, especially for sibling pairs of close age or the same sex. Social and health care support may help to minimize the potential adverse effects on the bereaved sibling.
Identifier
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<a href="http://doi.org/10.1001/jamapediatrics.2017.0197" target="_blank" rel="noreferrer">10.1001/jamapediatrics.2017.0197</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Animals
Bereavement
causes of death
Children
Chordata
Cnattingius S
Cohort Studies
Death
death rate
Denmark
Developed Countries
Eukaryotes
Europe
European Union Countries
February 2018 List
Fu Bo
Hominidae
Homo
JAMA Pediatrics
Li Jiong
Liew ZeYan
Mammals
Man
Mortality
Nordic Countries
Northern Europe
OECD Countries
Olsen J
Parner ET
Primates
Qin GuoYou
Risk Factors
Scandinavia
Siblings
Sweden
Vertebrates
Vestergaard M
Yu YongFu
Zhao NaiQing