Buffers for the bereaved: the impact of social factors on the emotional health of bereaving parents
Child; Female; Humans; Male; Grief; Adult; Interpersonal Relations; Follow-Up Studies; Socioeconomic Factors; Cultural Characteristics; Social Environment; Israel; Preschool; Adaptation; Psychological; infant; Parents/psychology; Somatoform Disorders/psychology; Bereavement Leave Policy Paper; Anxiety Disorders - psychology; Depressive Disorder/psychology; Ethnic Groups/psychology; Obsessive-Compulsive Disorder/psychology
Emotional health of bereaving parents (N = 62; control N = 56) were explored 5 years after the death of a child (age 0-12) in Israel. The Symptom Check List-90 was utilized as the primary measurement instrument. Comparisons to controls according to geographic area of birth indicated more interpersonal (over)sensitivity, obsessive-compulsiveness and anxiety among Asia/African born parents as compared to either European/American or Israeli-born. All geographical groupings of bereaving parents indicated significantly greater somatic concerns than their respective controls. The college-educated Israeli-born bereaving parents indicated significantly healthier SCL-90 scores than similarly educated European/American-born bereaving parents. This was in contrast to the trend in which European-American-born parents (regardless of educational level) exhibited scores indicating the least symptomatology.
1984
Roskin M
The International Journal Of Social Psychiatry
1984
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1177/002076408403000408" target="_blank" rel="noreferrer">10.1177/002076408403000408</a>
Perceptions Of The Pediatric Hospice Experience Among English- And Spanish-speaking Families
Adolescent; Adult; Attitude To Death/ethnology; Caregivers/psychology; Child; Child Preschool; Communication; Ethnic Groups/psychology; European Continental Ancestry; Group/psychology; Family/psychology; Female; Hispanic Americans/psychology; Hospice Care/psychology; Humans; Infant; Male; Middle Aged; Neoplasms/nursing; Neoplasms/psychology; Young Adult
OBJECTIVE:
Many children who die are eligible for hospice enrollment but little is known about parental perceptions of the hospice experience, the benefits, and disappointments. The objective of this study was to explore parental perspectives of the hospice experience in children with cancer, and to explore how race/ethnicity impacts this experience.
STUDY DESIGN:
We held 20 semistructured interviews with 34 caregivers of children who died of cancer and used hospice. Interviews were conducted in the caregivers' primary language: 12 in English and 8 in Spanish. Interviews were recorded, transcribed, and analyzed using accepted qualitative methods.
RESULTS:
Both English and Spanish speakers described the importance of honest, direct communication by medical providers, and anxieties surrounding the expectation of the moment of death. Five English-speaking families returned to the hospital because of unsatisfactory symptom management and the need for additional supportive services. Alternatively, Spanish speakers commonly stressed the importance of being at home and did not focus on symptom management. Both groups invoked themes of caregiver appraisal, but English-speaking caregivers more commonly discussed themes of financial hardship and fear of insurance loss, while Spanish-speakers focused on difficulties of bedside caregiving and geographic separation from family.
CONCLUSIONS:
The intense grief associated with the loss of a child creates shared experiences, but Spanish- and English-speaking parents describe their hospice experiences in different ways. Additional studies in pediatric hospice care are warranted to improve the care we provide to children at the end of life.
Thienprayoon R; Marks E; Funes M; Martinez-Puente LM; Winick N; Lee SC
Journal Of Palliative Medicine
2016
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
DOI: 10.1089/jpm.2015.0137