1 40 1 Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month May 2016 List Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Elective Ventilation To Facilitate Organ Donation In Infants With Anencephaly: Perinatal Professionals’ Views And An Ethical Analysis. Publisher An entity responsible for making the resource available International Journal Of Paediatrics Date A point or period of time associated with an event in the lifecycle of the resource 2016 Subject The topic of the resource Anencephaly/diagnosis; Anencephaly/therapy; Attitude Of Health Personnel; Ethical Analysis; Female; Humans; London; Male; Palliative Care/ethics; Palliative Care/methods; Perinatal Care/ethics; Perinatal Care/methods; Pregnancy; Prenatal-diagnosis; Respiration Artificial/ethics; Tissue And Organ Procurement/ethics Ethics; Major Congenital Anomaly; Neonates; Organ Donation Creator An entity primarily responsible for making the resource Jivraj A; Scales A; Brierley J Description An account of the resource AIM: Following the elective ventilation and referral for organ donation of an infant with anencephaly, we sought local perinatal professionals' views of this practice. METHODS: Anonymous online survey: demographics, ethical viewpoints and potential public/maternal perceptions (standard 5-part Likert scale and free text). RESULTS: DEMOGRAPHICS: 49 replies (38 female): 4 obstetricians, 14 neonatologists, 6 foetal clinicians, 23 nurses, 1 anaesthetist and 1 reproductive specialist. EXPERIENCE: 0.5-33 years (average 12). Twenty-one had experience of anencephalic delivery, and 10 reported pregnancy continued for religious reasons. ETHICS: (i) 73% thought anencephalic donation acceptable, of which 64% supported elective ventilation, 20% neutral and 16% disagreed. (ii) Provision of treatments not in infant's strict best interest to facilitate donation: 22% strongly agreed, 36% agreed, 33% neutral and 9% disagreed. (iii) Accept ventilation to permit donation if societal benefit: 53% agreed, 33% neutral and 13% disagreed. (iv) Public opinion: 59% disagreed anencephalic donation would harm public opinion about donation and 19% agreed. CONCLUSION: We found a supportive local environment for donation in the setting of anencephaly, including support for elective ventilation. Given this, and our ethical analysis, we recommend provision of organ donation information as part of palliative care counselling for women carrying a foetus with a condition likely to be fatal in infancy. Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2016 Anencephaly/diagnosis Anencephaly/therapy Attitude Of Health Personnel Brierley J Ethical Analysis Ethics Female Humans International Journal of Paediatrics Jivraj A London Major Congenital Anomaly Male May 2016 List Neonates Organ Donation Palliative Care/ethics Palliative Care/methods Perinatal Care/ethics Perinatal Care/methods Pregnancy Prenatal-diagnosis Respiration Artificial/ethics Scales A Tissue And Organ Procurement/ethics