1 40 1 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. URL Address <a href="http://doi.org/10.2217/nmt-2017-0019" target="_blank" rel="noreferrer noopener">http://doi.org/​10.2217/nmt-2017-0019</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource A survey-based study identifies common but unrecognized symptoms in a large series of juvenile Huntington's disease Publisher An entity responsible for making the resource available Neurodegenerative Disease Management Date A point or period of time associated with an event in the lifecycle of the resource 2017 Subject The topic of the resource adolescent; priority journal; health survey; human; pain; article; child; female; male; controlled study; adult; clinical article; sleep disorder; Huntington chorea; pruritus; psychosis; tic; auditory hallucination; CAG repeat; juvenile; leg pain; skin irritation; visual hallucination; sleep disturbance/disorders; Juvenile Huntington disease; trajectory; characteristics Creator An entity primarily responsible for making the resource Moser A D; Epping E; Espe-Pfeifer P; Martin E; Zhorne L; Mathews K; Nance M; Hudgell D; Quarrell O; Nopoulos P Description An account of the resource Aim: The symptoms of Huntington's disease are well known, yet the symptoms of juvenile Huntington's disease (JHD) are less established due to its rarity. The study examined a cluster of symptoms considered to be common, but under-recognized in JHD: pain, itching, sleeping difficulties, psychosis and tics. Materials & methods: A symptom survey was constructed using the online tool Qualtrics and dispersed to JHD caregivers through websites. Results: A total of 33 surveys were completed. Disrupted sleep was the most prevalent symptom (87%), followed by tics (78%), pain (69%), itching (60%) and psychosis (39%). Conclusion: Despite limitations, the study supports that there are symptoms in the JHD population that are not considered classic, however, are common and significant for patients and caregivers. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.2217/nmt-2017-0019" target="_blank" rel="noreferrer noopener">10.2217/nmt-2017-0019</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2017 Adolescent Adult Article auditory hallucination CAG repeat characteristics Child Clinical Article Controlled Study Epping E Espe-Pfeifer P Female Health Survey Hudgell D Human Huntington chorea juvenile Juvenile Huntington disease leg pain Male Martin E Mathews K Moser A D Nance M Neurodegenerative Disease Management Nopoulos P Pain Priority Journal pruritus psychosis Quarrell O skin irritation sleep disorder sleep disturbance/disorders tic Trajectory visual hallucination Zhorne L