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Dublin Core
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Title
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May 2021 List
Text
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May 2021 List
URL Address
<a href="http://doi.org/10.1080/17549507.2020.1866073" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/17549507.2020.1866073</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Recommendations for speech-language pathologists in paediatric palliative care teams (ReSP3CT): An international modified Delphi study
Publisher
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International Journal of Speech-Language Pathology
Date
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2021
Subject
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child; end-of-life; paediatric; palliative care; speech-language pathology
Creator
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Krikheli L; Carey LB; Erickson S; Carey-Sargeant CL; Mathisen BA
Description
An account of the resource
Purpose: There is emerging recognition within the literature that speech-language pathologists (SLPs) have a role in the provision of paediatric palliative care (PPC). SLPs, however, experience unique challenges when working with this vulnerable young cohort of patients, their families and multidisciplinary teams. This study aims to develop practice recommendations based on best available evidence. Method(s): A modified Delphi technique was utilised to develop group consensus over a series of survey rounds. Statements for voting were synthesised by critically reviewing recurring themes from previous studies, involving (i) a scoping literature review, (ii) an online survey, and (iii) interview data. Nine participants were recruited using consecutive sampling from the interview phase related to this study. Result(s): Twenty-one statements were voted upon over two survey rounds (100% response rate). Agreement levels of >=70% across all statements were reached after the first round. There was a significant correlation between rating a statement as "essential" and a strong level of agreement (p<0.0001). Intraparticipant agreement between rounds is also reported. Conclusion(s): The 21 statements form Recommendations for Speech-Language Pathologists in Paediatric Palliative Care Teams (ReSP3CT). The statements will support SLPs working within PPC to promote advocacy, professional development and enhance team involvement in this developing field.
Identifier
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<a href="http://doi.org/10.1080/17549507.2020.1866073" target="_blank" rel="noreferrer noopener">10.1080/17549507.2020.1866073</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Carey LB
Carey-Sargeant CL
Child
end-of-life
Erickson S
International Journal of Speech-Language Pathology
Krikheli L
Mathisen BA
May 2021 List
Paediatric
Palliative Care
speech-language pathology
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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February 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2021 List
URL Address
<a href="http://doi.org/10.1044/2020_ajslp-20-00090" target="_blank" rel="noreferrer noopener">http://doi.org/10.1044/2020_ajslp-20-00090</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Speech-Language Pathologists in Pediatric Palliative Care: An International Study of Perceptions and Experiences
Publisher
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American Journal of Speech-Language Pathology
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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families; multidisciplinary; palliative care; Patient Care; pediatric; qualitative analysis; speech-language pathology
Creator
An entity primarily responsible for making the resource
Krikheli L; Erickson S; Carey LB; Carey-Sargeant CL; Mathisen BA
Description
An account of the resource
Purpose The purpose of this study is to gather qualitative data regarding the experiences and perceptions of speech-language pathologists (SLPs) practicing in pediatric palliative care (PPC) and investigate their approaches for working with patients, families, and the multidisciplinary team. Method Ten participants from Australia, Canada, and the United States were recruited from a previous survey study. In-depth interviews were conducted via videoconferencing. Two coders used NVivo software to record and organize the data into themes. Interrater reliability of the coding was established with a third coder. The COnsolidated criteria for REporting Qualitative research 32-item checklist has been used for reporting the research. Results Interrater coding reliability (using weighted kappa) was .81, indicating "almost perfect" agreement on the selection of themes from the code frame. Emerging themes included clinical interventions, unique SLP skills in PPC, multidisciplinary team relationships, workforce issues, education and training, governance, medicolegal considerations, bioethical issues, and holistic care. Additional subthemes are also noted. In the absence of research evidence and practice recommendations, SLPs rely on client perspectives and clinical experience to guide their professional practice in PPC. Conclusions Qualitative survey analysis of the perceptions and experiences of SLP clinicians from three postindustrial countries identified nine major themes regarding PPC. Results expand on limited literature to date in the area of PPC. Future research using larger samples is needed to provide clinicians with best practice recommendations for working with patients, families, and the broader care team.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1044/2020_ajslp-20-00090" target="_blank" rel="noreferrer noopener">10.1044/2020_ajslp-20-00090</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
American Journal of Speech-Language Pathology
Carey LB
Carey-Sargeant CL
Erickson S
Families
February 2021 List
Krikheli L
Mathisen BA
multidisciplinary
Palliative Care
Patient Care
Pediatric
Qualitative Analysis
speech-language pathology
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
February 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2019 List
URL Address
<a href="http://doi.org/10.1136/bmjspcare-2018-001667" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/10.1136/bmjspcare-2018-001667</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Speech-language pathologists in paediatric palliative care: a Delphi study protocol
Publisher
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BMJ Supportive & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Creator
An entity primarily responsible for making the resource
Krikheli L; Carey Lindsay B; Mathisen BA; Erickson S; Carey-Sargeant CL
Description
An account of the resource
BACKGROUND: Given the dearth of literature and no clinical practice guidelines written for speech-language pathologists (SLPs) working in paediatric palliative care (PPC), a need has been identified to explore the scope of clinical practice and strategies used by SLPs. OBJECTIVE: This study aims to undertake an international investigation into the role and scope of practice of SLPs working in PPC to develop consensus-driven 'Recommendations for Speech-Language Pathologists in Paediatric Palliative Care Teams' (ReSP3CT). METHODS: A modified Delphi process will be used to synthesise consensus-based statements from SLPs in six different countries about their role and practice working in PPC. Initially, preliminary survey data will be collected from SLPs to obtain demographic and caseload information. Respondents will then be invited to participate in an in-depth interview to explore common and unique themes that emerge from the online survey. Participants from the interview will then 'opt-in' to become Delphi panel members and receive questionnaires comprising statements for agreement over multiple rounds. Statements will be based on common themes that arise from the literature review, survey and interview data. The Delphi process for each statement will stop if statements achieve ? 70 % agreement and an IQR of ? 1 (maximum of five rounds). CONCLUSION: This is the first study to investigate the role and practice of SLPs in PPC across internationally accepted scope of practice areas. The study will use existing frameworks for statistical analysis and a mixed-methods approach to aid in the synthesis of statements/recommendations for international consensus.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/bmjspcare-2018-001667" target="_blank" rel="noreferrer noopener">10.1136/bmjspcare-2018-001667</a>
2018
BMJ Supportive & Palliative Care
Carey Lindsay B
Carey-Sargeant CL
Erickson S
February 2019 List
Krikheli L
Mathisen BA