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Dublin Core
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Title
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Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
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<a href="http://doi.org/10.1177/0883073816650037" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0883073816650037</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Diagnosis and Management of Drooling in Children With Progressive Dystonia: A Case Series of Patients With MEGDEL Syndrome
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Journal of Child Neurology
Date
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2016
Subject
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feeding difficulties; MEGDEL syndrome; surgical intervention; pharmacological intervention; bilateral submandibular gland excision; parotid duct ligation; advice to interrupt tongue protrusion; adenotonsillectomy; feeding advice; antireflux medication
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Blommaert D; van Hulst K; Hoogen F J A van den; Erasmus C E; Wortmann S B
Description
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Drooling is a common problem in children with progressive dystonia. The authors noted a 58% incidence of drooling in 22/38 children with MEGDEL, a rare neurodegenerative cause of dystonia and report on the clinical course of four patients. Drooling of varying severity and subsequent respiratory problems were treated at the authors' multidisciplinary saliva-control outpatient clinic. One patient improved on antireflux medication, the second after medication with drooling as side effect was changed. Two other patients underwent salivary gland surgery, one of whom significantly improved; the other died shortly after surgery. The heterogeneity of the cases presented shows the need for stepwise and personalized treatment. The authors recommend the following: (1) optimize the treatment of the underlying neurological condition and replace medication that stimulates saliva secretion; (2) treat constipation, scoliosis, and gastroesophageal reflux if there is still a risk of chronic aspiration of saliva; (3) perform more intense/invasive treatment (botulinum toxin, salivary gland surgery).
Identifier
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<a href="http://doi.org/10.1177/0883073816650037" target="_blank" rel="noreferrer noopener">10.1177/0883073816650037</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
adenotonsillectomy
advice to interrupt tongue protrusion
antireflux medication
bilateral submandibular gland excision
Blommaert D
Erasmus C E
feeding advice
feeding difficulties
Hoogen F J A van den
Journal of Child Neurology
MEGDEL syndrome
parotid duct ligation
pharmacological intervention
surgical intervention
van Hulst K
Wortmann S B