1 40 1 Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month March 2017 List Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource [end-of-life In Specialized Medical Pediatrics Department: A French National Survey] Publisher An entity responsible for making the resource available Archives Pédiatrie Date A point or period of time associated with an event in the lifecycle of the resource 2017 Subject The topic of the resource Accompagnement de fin de vie; End-of-life accompanying; Intensive care; Neurologie; Neurology; Onco-hematology; Onco-hématologie; Pediatric palliative care; Pediatrics; Pédiatrie; Réanimation; Soins palliatifs pédiatriques Creator An entity primarily responsible for making the resource Ravanello A; Desguerre I; Frache S; Hubert P; Orbach D; Aubry R Description An account of the resource AIMS: In France, most of children die in the hospital. This national survey aimed to achieve better understanding of end-of life care in specialized medical pediatrics departments for children facing the end-of-life, identify the available resources, put forward the difficulties encountered by professionals and describe end-of-life paths of children who died in these departments. MATERIAL AND METHODS: This study is based on a nationwide survey conducted among all existing specialized medical pediatrics departments (onco-haematology, neurology, reanimation) in France in 2015. RESULTS: Among 94 specialized medical pediatrics departments in France, 53 participated in our survey (response rate=56%). At the time of the survey, 13% of inpatients were facing the end-of-life. Regarding training, 13% of departments did not have personnel trained in palliative care and 21% did not set up any professional support. However, when taking care of a child's end of life in 2014, 77% of these departments solicited a regional resource team of pediatric palliative care. This survey helps describe 225 end-of-life paths of children decease of a terminal illness in the specialized pediatrics departments. Seventy-two percent suffered from refractory symptoms before their death, 64% were concerned by a terminal sedation and 75% by a limitation of life-sustaining treatment decision. CONCLUSION: End-of-life care is a reality for specialized pediatrics departments. The frequency of major and refractory symptoms often requires the completion of sedation. The resources of service are acceptable but some deficiencies have been noted especially concerning training and support for caregivers, adaptation of premises or family support. Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2017 Accompagnement de fin de vie Archives Pédiatrie Aubry R Desguerre I End-of-life accompanying Frache S Hubert P Intensive Care March 2017 List Neurologie Neurology Onco-hématologie Onco-hematology Orbach D Pediatric Palliative Care Pediatrics Pédiatrie Ravanello A Réanimation Soins palliatifs pédiatriques