Telling the truth to dying children-End-of-life communication with families
pediatric palliative care; pediatrics; palliative care; families; end-of-life communication; communication
Lovgren M; Melin-Johansson C; Udo C; Sveen J
Acta Paediatrica
2019
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1111/apa.14935" target="_blank" rel="noreferrer noopener">10.1111/apa.14935</a>
Physician Communication In Pediatric End-of-life Care: A Simulation Study
2016; End-of-life Communication; Palliative Care; Pediatric End-of-life Care; Pediatrics; Physician–parent Communication; Qualitative Methods; Simulation; Therapeutic Processes
Objective: The objective of this exploratory study is to describe communication between physicians and the actor parent of a standardized 8-year-old patient in respiratory distress who was nearing the end of life. Methods: Thirteen pediatric emergency medicine and pediatric critical care fellows and attendings participated in a high-fidelity simulation to assess physician communication with an actor-parent. Results: Fifteen percent of the participants decided not to initiate life-sustaining technology (intubation), and 23% of participants offered alternatives to life-sustaining care, such as comfort measures. Although 92% of the participants initiated an end-of-life conversation, the quality of that discussion varied widely. Conclusion: Findings indicate that effective physician–parent communication may not consistently occur in cases involving the treatment of pediatric patients at the end of life in emergency and critical care units. Practice Implications: The findings in this study, particularly that physician–parent end-of-life communication is often unclear and that alternatives to life-sustaining technology are often not offered, suggest that physicians need more training in both communication and end-of-life care. (PsycINFO Database Record (c) 2016 APA, all rights reserved)
Bateman LB; Tofil Nancy M; White Marjorie Lee; Dure Leon S; Clair Jeffrey Michael; Needham Belinda L
American Journal Of Hospice And Palliative Medicine
2016
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
10.1177/1049909115595022