Browse Items (63 total)
- Tags: Emotions
'Just gripping my heart and squeezing': Naming and explaining the emotional experience of receiving bad news in the paediatric oncology setting
"What about me?": lived experiences of siblings living with a brother or sister with a life-threatening or life-limiting condition
Tags: 2024, Adaptation Psychological, April List 2024, Attention, Castor C, Child, Emotions, Hermeneutics, Humans, International Journal Of Qualitative Studies On Health And Well-being, Kittelsen TB, Kvarme LG, Lee A, Life-limiting Condition, Life-threatening Condition, lived experience, Male, paediatric palliative care, Parents, Sibling, Siblings, Winger A
“have No Regrets:” Parents’ Experiences And Developmental Tasks In Pregnancy With A Lethal Fetal Diagnosis.
Lethal fetal diagnoses are made in 2% of all pregnancies. The pregnancy experience is certainly changed for the parents who choose to continue the pregnancy with a known fetal diagnosis but little is known about how the psychological…
Tags: 2016, Adult, Choice Behavior, Côté-Arsenault D, Denney-Koelsch E, Developmental Task, Emotions, Female, Fetal Diseases/diagnosis, Fetal Diseases/mortality, Humans, Infant, Lethal Fetal Diagnosis, Longitudinal, Longitudinal Studies, Male, March 2016 List, Middle Aged, Needs Assessment, Palliative Care, Parents/psychology, Perinatal Care, Perinatal Palliative Care, Phenomenology, Pregnancy, Prenatal Diagnosis, Prenatal Diagnosis/psychology, Qualitative Research, Social science & medicine, Usa, Young Adult
After the child dies
Behavioural and emotional problems, intellectual impairment and health-related quality of life in patients with organic acidurias and urea cycle disorders
Tags: 2016, alertness, Baric I, Baumgartner M R, behavioral problems, bowel incontinence, Burgard P, characteristics, Child Preschool, emotional problems, Emotions, feeding difficulties, Female, Garcia-Cazorla A, Glahn E M, Gleich F, Haege G, Humans, Intellectual Disability/etiology/metabolism, Jamiolkowski D, Journal Of Inherited Metabolic Disease, Kolker S, Male, Mental Disorders/etiology/metabolism, Metabolic Diseases/complications/metabolism, Metabolism Inborn Errors/complications/metabolism, Muhlhausen C, Ornithine Carbamoyltransferase Deficiency Disease/complications/metabolism, Quality Of Life, sleep disturbance, Trajectory, Urea Cycle Disorders Inborn/complications/metabolism, urinary incontinence, Zeman J
Caregiver-Child Discrepancies in Reports of Child Emotional Symptoms in Pediatric Chronic Pain
Tags: 2020, Allyn KE, anxiety, Anxiety/epidemiology, April 2021 List, Caregivers, Child, Children, chronic and recurrent pain, Chronic Pain, Depression, Emotions, Female, Humans, informant discrepancies, Journal of Pediatric Psychology, Male, Martin SR, Pain Measurement, Parents, Payne LA, Quality Of Life, Seidman LC, Zeltzer LK
Changes In Parents After The Death Of A Child From Cancer
Tags: 2012, Adaptation Psychological, Adult, Barrera M, Bereavement, Canada, Changes In Parents After The Death Of A Child From Cancer, Child, Davies B, Death, Dietrich MS, Emotions, Fairclough DL, Family/ Psychology, Female, Foster TL, Gerhardt CA, Gilmer MJ, Grollman J, Humans, Journal of Pain and Symptom Management, Male, Parents/ Psychology, Siblings/psychology, United States, Vannatta K
Children's perspectives on the benefits and burdens of research participation
Tags: 2018, 2023 SE1 - Parent Perspectives, Adolescent, AJOB empirical bioethics, Attitude, Barned C, benefits burdens, Canada, Child, Child Health, Children, Chronic Disease, Delivery of Health Care, Dobson J, Emotions, Ethics, Female, health care systems, Humans, Inflammatory Bowel Diseases, Informed Consent By Minors/psychology, Learning, Mack D, Male, Motivation, O'Doherty KC, Patient Participation, psychology Qualitative Research, Research, Research Subjects, Stintzi A
Chronic illness and disability
Tags: 2005, Adolescent, Adolescent Transitions, Backlog, Bmj (clinical Research Ed.), Chronic Disease/psychology/therapy, Disabled Persons/psychology, Educational Status, Emotions, Family Health, Humans, Journal Article, Mental Health, Patient Compliance, Patient Transfer, Primary Health Care, Sawyer S, Yeo M
Communication with parents concerning withholding or withdrawing of life-sustaining interventions in neonatology
Tags: 2014, Backlog, Barrington K, Bronchopulmonary Dysplasia, Cardiopulmonary Resuscitation, Communication, CPR, Emotions, Empathy, end of life decisions, Extreme Prematurity, extremely low-gestational-age infants, Family Centered Care, Farlow B, Gestational Age, Janvier A, Journal Article, Life-sustaining Interventions, Necrotizing Enterocolitis, Neonatology, Nicu, Personalized medicine, Seminars in Perinatology, Withhold and withdraw intensive care
Continuing Bonds with the Living: Bereaved Parents’ Narratives of their Emotional Relationship with their Children
The death of a child can be seen as one of the most devastating experiences for parents which can result in a unique and enduring grief. Parents with surviving children face the task of navigating their own grief while continuing to parent.…
Contrasting emotional approach coping with passive coping for chronic myofascial pain
Tags: 2002, 80 And Over, Activities of Daily Living, Adaptation, Adult, Affect, Aged, Annals Of Behavioral Medicine: A Publication Of The Society Of Behavioral Medicine, Backlog, Chronic Disease, Depression, Emotions, Facial Pain, Female, Humans, Journal Article, Longo DJ, Lumley Mark A, Male, Middle Aged, Models, Multivariate Analysis, Pennsylvania, Psychological, Regression Analysis, Reproducibility of Results, Sex Factors, Smith JA, Socioeconomic Factors
Coping through emotional approach: a new look at emotion, coping, and health-related outcomes
Coping with chronic pain
Tags: 2005, Adaptation, Adult, Aged, Attitude To Health, Backlog, Chronic Disease, Depression, Dysvik Elin, Eikeland Ole-Johan, Emotions, Female, Humans, International Journal Of Nursing Studies, Journal Article, Lindstrøm TC, Male, Middle Aged, Models, Multivariate Analysis, Natvig GK, Norway, Nurse's Role, Nursing Methodology Research, Pain, Predictive Value of Tests, Problem Solving, Psychiatric Status Rating Scales, Psychological, Questionnaires, Regression Analysis, Self Concept, Social Support, Stress
Coping, self-efficacy and psychiatric history in patients with both chronic widespread pain and chronic fatigue
Tags: 2009, Activities of Daily Living, Adaptation, Adolescent, Adult, Aged, Attitude To Health, Backlog, Buchwald D, Chronic, Chronic Disease, Comorbidity, Depressive Disorder, Emotions, Fatigue, Fatigue Syndrome, Female, Fibromyalgia, General Hospital Psychiatry, Humans, Journal Article, Major, Male, Middle Aged, Pain, Post-traumatic, Problem Solving, Psychological, Questionnaires, Regression Analysis, Self Efficacy, Severity Of Illness Index, Smith WR, Strachan ED, Stress Disorders, Young Adult
Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions
Early integrated palliative approach for idiopathic pulmonary fibrosis: A narrative study of bereaved caregivers' experiences
Tags: 2018, Accountability, Adult Children, Advance Care Planning, anxiety, Attitude To Death, Bereavement, Canada, Caregiver Attitudes, Collaboration, Communication, Content Analysis, December 2018 List, Emotions, Health Facilities -- Canada, Home Health Care, Hospital Mortality, Human, Idiopathic Pulmonary Fibrosis -- Prognosis, Idiopathic Pulmonary Fibrosis -- Therapy -- Canada, Interpersonal Relations, Interviews, Kalluri M, Life Change Events, Life Experiences, Memory, Narratives, Palliative Care, Palliative Medicine, Patient Attitudes, Patient Care Plans, Pooler C, Pulmonologists, Purposive Sample, Quality Of Life, Richman-Eisenstat J, Spouses, Stress Psychological, Support Psychosocial, Thematic Analysis
Emotion regulation in patients with rheumatic diseases: validity and responsiveness of the Emotional Approach Coping Scale (EAC)
Tags: 2009, 80 And Over, Activities of Daily Living, Adaptation, Adolescent, Adult, Aged, Backlog, Bmc Musculoskeletal Disorders, Cross-sectional Studies, Emotions, Female, Finset A, Garratt A, Hagen KB, Humans, Journal Article, Male, Middle Aged, Mowinckel P, Pain Measurement, Psychological, Rheumatic Diseases, Stanton AL, Stress, Young Adult, Zangi HA
Emotion work in the palliative nursing care of children and young people
Tags: 2006, Adaptation, Adolescent, Adolescent Psychology, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Burnout, Child, Child Psychology, Emotions, Empathy, Family/psychology, Health Services Needs And Demand, Holistic Health, Humans, International Journal of Palliative Nursing, Job Satisfaction, Journal Article, Maunder EZ, Nurse-patient Relations, Nurse's Role/psychology, Organizational Culture, Palliative Care/organization & administration/psychology, PedPal Lit, Professional/prevention & control/psychology, Psychological, Quality Of Life, Self Concept, Social Support, Work/psychology
Emotional Responses of Neonatal Intensive Care Nurses to Neonatal Death
Empathy Expression in Interpreted and Noninterpreted Care Conferences of Seriously Ill Children
Ethics, Emotions, And The Skills Of Talking About Progressing Disease With Terminally Ill Adolescents: A Review.
For clinicians caring for adolescent patients living with progressive, life-threatening illness, discussions regarding prognosis, goals of care, and treatment options can be extremely challenging. While clinicians should respect and help…
Tags: 2016, Adolescent, Advanced Cancer, Analysis, Bad-news, Child, Communication, Emotions, End, Ethics, Feudtner C, JAMA Pediatrics, Lyon M, October 2016 List, Of-life Care, Parents, Pediatric Palliative Care, Pediatrics, Prognostic Disclosure, Psychological Aspects, Rosenberg AR, Teenagers, Wiener L, Wolfe J, Young Adult, Youth
Evaluating Palliative Care Resources Available to the Public Using the Internet and Social Media
Tags: 2018, American Journal of Hospice & Palliative Medicine, Claudio CH, Cross Sectional Studies, Dizon ZB, Emotions, Facebook, Health Education, Health Information Evaluation, Human, Information Seeking Behavior, Internet Utilization, Medline, October TW, Palliative Care, Quality Of Life, Search Engines, September 2018 List, Social Media Utilization, Thematic Analysis, Twitter, videorecording, World Wide Web
Examining posttraumatic growth among Japanese university students
Experience of Perinatal Death From the Father's Perspective
Experiences of fathers of children with a life-limiting condition: a systematic review and qualitative synthesis
Gasping in Dying Children: Health Care Professionals' Feelings and Knowledge
Grief Journey: Perception and Response Based on Cultural Beliefs in Thai Women Experiencing Perinatal Death
Tags: 2022, Adolescence, Adult, anxiety, April List 2023, Bih-Ching S, Content Analysis, cultural competence, cultural sensitivity, Culture, Descriptive Research, Emotions, Evaluation, Fear, Female, field notes, Forgiveness, Grief, Health Knowledge, Health Personnel, Hope, Hospitals Community, Human, Interviews, Medical Records, Nedruetai P, Pacific Rim International Journal of Nursing Research, Perinatal Death, Psychosocial Factors, Puangpaka K, Purposive Sample, Qualitative Studies, Quality Of Health Care, Reflection, Self Concept, Self-Talk, Social Norms, Thailand, Women
Healthcare Users' Experiences of Communicating with Healthcare Professionals About Children Who Have Life-Limiting Conditions: A Qualitative Systematic Review
Tags: 2018, Adult, Bradford Natalie K, Child, CINAHL Database, Collaboration, Danby S, December 2018 List, Ekberg S, Embase, Emotions, Herbert A, Honesty, Human, Journal of Palliative Medicine, Life Expectancy -- In Infancy and Childhood, Medline, Palliative Care -- In Infancy and Childhood, Patient Attitudes, Professional-patient Relations, Psycinfo, PubMed, Qualitative Studies, Siblings, Systematic Review, Thematic Analysis, Yates P
Impact of euthanasia on primary care physicians in the Netherlands.
Tags: 2007, Active, Active/px [Psychology], Adaptation, Attitude Of Health Personnel, Backlog, Decision Making, Emotions, Euthanasia, Female, Haverkate I, Humans, Journal Article, Male, Netherlands, Palliative Medicine, Physician Assisted Dying PAD, Physician's Role, Physician's Role/px [Psychology], Primary Health Care, Professional-patient Relations, Psychological, Qualitative Research, The Anne-Mei, van Marwijk H, van Royen P
Interactive Processes in Grief and Couples' Adjustment After the Death of a Child
Tags: 2019, Albuquerque S, Bereavement, Emotions, Empathy, Ferreira L C, Grief, Grounded Theory, Human, Infant Death -- Psychosocial Factors, Interpersonal Relations, Journal Of Family Issues, May 2019 List, Narciso I, Parents -- Psychosocial Factors, Pereira M, Semi-Structured Interview, Support Psychosocial
Life Transitions Of Adolescents And Young Adults With Life-limiting Conditions
A systematic review was conducted to appraise and classify evidence related to the life transitions of adolescents and young adults with life-limiting conditions.
Methods:
The databases searched were MEDLINE, CINAHL, PsycINFO, CancerLit, and…
Tags: 2016, Adaptation Psychological, Adolescent, Adolescent Development, Adolescents, Adult, Brain Neoplasms, Child, Cystic Fibrosis, December 2016 List, Disease Progression, Emotions, Family, Health Status, Humans, International Journal of Palliative Nursing, Jindal-Snape, Johnston, Life Transitions, Life-limiting Conditions, Mental Health, Muscular Dystrophy Duchenne, Neurodegenerative Diseases, Pringle J, Terminally Ill, Young Adult, Young Adults
Living in the in-between: families caring for a child with a progressive neurodegenerative illness
Tags: 2013, Adaptation, Adolescent, Adult, Backlog, Canada, Caregivers, Child, Emotions, Family, Female, home care services, Humans, Journal Article, Male, Neurodegenerative Diseases, Palliative Care, Pediatrics, Preschool, Psychological, Qualitative Health Research, Raffin-Bouchal S, Rallison LB, Respite Care, Stress
Loss, trauma, and human resilience: have we underestimated the human capacity to thrive after extremely aversive events?
Meaning in caregiving and its contribution to caregiver well-being.
Tags: 1997, 80 And Over, Adult, Aged, Backlog, Caregivers/psychology, Child, Comparative Study, Disabled Persons, Education, Emotions, Female, Frail Elderly, Gerontologist, Home Nursing, Humans, Income, Interviews, Journal Article, Longitudinal Studies, Male, Middle Aged, Noonan AE, P.H.S., Regression Analysis, Research, Research Support, Spouses, Tennstedt SL, Time Factors, U.S. Gov't
Medical adherence and childhood chronic illness: family daily management skills and emotional climate as emerging contributors
Navigator-Based Intervention to Support Communication in the Pediatric Intensive Care Unit: A Pilot Study
Tags: 2020, Adolescent, American Journal of Critical Care, Aniciete DY, Attitude Of Health Personnel, August 2021 List, Brown M, Charleston E, Child, Ciolino JD, Clayman ML, Communication, Decision Making, Emotions, Family/psychology, Fragen P, Infant, Intensive Care Units Pediatric/organization & administration/standards, Jones V A, Malakooti M, Michelson KN, Parents/psychology, Patient Discharge, Persell SD, Pilot Projects, Preschool Child, Professional-family Relations, Rychlik K, Socioeconomic Factors, Sorce LR, Spadino P, White D
Occupational goals of mothers of children with disabilities: influence of temporal, social, and emotional contexts
Tags: (II) doing and being with others: expanding my social life, (III) improving my child's quality of life, (IV) household management: organizing time and resources, (V) balancing work, 2005, Adult Child, American Journal Of Occupational Therapy, and community responsibilities, Backlog, Crowe TK, Disabled Children, Donovan JM, Emotions, Employment Female, Goals Humans Middle Aged Mothers/, Home, Journal Article, Keefe EB, Non-U.S. Gov't Retrospective Studies, PedPal Lit, psychology New Mexico Research Support, Social Behavior, VanLeit BJ
One month after diagnosis: quality of life, coping and previous functioning in siblings of children with cancer
Tags: 2005, Adaptation, Adolescent, Age Factors, Backlog, Child, Child welfare, Child: Care, Health and Development, Cognition Disorders, Emotions, Female, Grootenhuis MA, Health Status, Hoekstra-Weebers JE, Houtzager BA, Humans, Journal Article, Last BF, Male, Neoplasms, Psychological, Quality Of Life, Sex Factors, sibling bereavement, Siblings