Browse Items · Pediatric Palliative Care Library

Sibling involvement at the end of life

When a child is diagnosed with a life-threatening illness, such as cancer, there is much disruption to the family. It is a struggle for parents to divide their time between the hospital, home, and other healthy siblings. Nurses strive to provide…

Tags: 2005, Attitude To Death, Attitude to DeathBereavement Child Emotions HumansNeoplasms/nursing/psychology Oncologic NursingSibling Relations Siblings/psychology Terminal Care/psychology, Backlog, Bereavement, Child, Emotions, Giovanola J, Humans, Journal Article, Journal Of Pediatric Oncology Nursing, Neoplasms, Oncology Nursing, PedPal Lit, sibling bereavement, Sibling Relations, Siblings, Terminal Care

Tell me about it: drawing as a communication tool for children with cancer

2005

Tags: (b) explore and compare the coping measures they use to manage these stressors, 2005, AdolescentArt Therapy Attitude to Health Child Child, and (c) examine the use of drawing to enhance communication. Participants included 22 children ages 7 to 18 years, Backlog, Communication, Comparative Study, Emotions, Female, Great Britain, Hospitalized/psychology, Humans, Interviews, Journal Article, Journal Of Pediatric Oncology Nursing, Male Neoplasms/nursing/psychology, Non-U.S. Gov't Stress, Nurse-patient Relations, Oncologic Nursing/methods, PedPal Lit, Psychological/nursing United States%X As health-related research on children shifts from seeking information about children to seeking information directly from them, Qualitative Research, regardless of their ethnicity and other cultural comp onents, Research Support, respond to the childhood cancer experience in a similar manner. The use of drawing enhanced communication through direct visual expression and/or through verbal expression via the "campfire effect.", Rollins JA

Physical and mental health of mothers caring for a child with Rett syndrome

OBJECTIVES: Our goal was to investigate the physical and mental health of mothers who care for a child with Rett syndrome. METHODS: We assessed maternal physical and mental health by using the SF-12 version 1 physical component summary and mental…

Occupational goals of mothers of children with disabilities: influence of temporal, social, and emotional contexts

Emotion work in the palliative nursing care of children and young people

The nurse's role in supporting and caring for children and young people with life-limiting illness/conditions and their families requires specialist expertise. This domain can be one of the most emotionally challenging areas of practice. The concept…

Loss, trauma, and human resilience: have we underestimated the human capacity to thrive after extremely aversive events?

Many people are exposed to loss or potentially traumatic events at some point in their lives, and yet they continue to have positive emotional experiences and show only minor and transient disruptions in their ability to function. Unfortunately,…

Tags: 2004, Adaptation, Adult, Backlog, Bonanno GA, Emotions, Grief, Humans, Journal Article, Laughter, Models, Psychological, Repression, The American Psychologist, Wounds and Injuries/psychology

Understanding uncertainty and minimizing families' anxiety at the time of transfer from intensive care

When general ward registered nurses (RN) receive patients from an intensive care unit (ICU) they report that much of their time in the initial phases revolves around meeting family needs (Farvis, 2002). Families experience anxiety when leaving the…

The ethics of withholding/withdrawing nutrition in the newborn

The provision of nutrition and hydration to newborn infants is considered fundamental care. For premature and critically ill newborns, similar considerations generally hold true. Nutrition may be provided for these infants using assisted measures…

Resolving disputes between clinicians and family about "futility" of treatment

Family resistance to withdrawal of life support from children presents difficult issues of clinical practice and of principle. Legal recognition of unilateral physician authority for withdrawal on grounds of clinical "futility"-even in the most…

Tags: 2003, Backlog, Brain Death, Burt RA, Emotions, Family, Humans, ICU Decision Making, Journal Article, Life Support Care, Medical Futility/ethics/psychology, Pediatrics, Physician's Role, Physicians, Seminars in Perinatology

Coping through emotional approach: a new look at emotion, coping, and health-related outcomes

Researchers studying stress and coping processes have attempted to identify which coping strategies are most adaptive in stressful encounters. A generally accepted conclusion has been that emotion-focused coping processes are associated with…

Tags: 2004, Adaptation, Adult, Austenfeld Jennifer L, Backlog, Emotions, Health Status, Humans, Journal Article, Journal Of Personality, Outcome Assessment (health Care), Psychological, Psychometrics, Stanton AL, Stress

Contrasting emotional approach coping with passive coping for chronic myofascial pain

Passive or emotion-focused coping strategies are typically related to worse pain and adjustment among chronic pain patients. Emotional approach coping (EAC), however, is a type of emotion-focused coping that appears to be adaptive in some nonpain…

Discussing do-not-resuscitate orders in the hospital setting: Part 2

2002

Tags: 2002, Backlog, Emotions, Human, Journal Article, Journal of Palliative Medicine, Medical Futility, Resuscitation Orders, von Gunten CF, Weissman DE

The 2002 Schering Lecture. Children's cancer symptom experiences: keeping the spirit alive in children and their families

Despite the finding that each child and family experienced cancer in their own unique way, they all shared the need to maintain a sense of spirit. Just as the suffering united the families, so too did their sense of spirit. Talk of the spirit is not…

After the child dies

The parents of a child who dies feel the emotions of shock, mourning, and confusion as they slowly come to accept the finality of the child's death. In contemporary America they frequently feel isolated and abandoned. The individuals and institutions…

Tags: 1976, Attitude To Death, Backlog, Child, Death, Emotions, Female, Fischhoff J, Humans, Journal Article, Male, O'Brien N, Parents, Professional-family Relations, Self-Help Groups, The Journal Of Pediatrics

The nature of suffering and the goals of medicine

The question of suffering and its relation to organic illness has rarely been addressed in the medical literature. This article offers a description of the nature and causes of suffering in patients undergoing medical treatment. A distinction based…

Tags: 1982, Backlog, Cassel EJ, Disease, Emotions, Holistic Health, Humans, Journal Article, Medical, Non-P.H.S., Pain/psychology, Patients/psychology, Philosophy, Research Support, Sick Role, The New England Journal Of Medicine, Therapeutics, U.S. Gov't

Meaning in caregiving and its contribution to caregiver well-being.

This multivariate study examined the relationship between meaning in caregiving--positive beliefs about the caregiving situation and the self as caregiver--and the psychological well-being of 131 informal caregivers to community-residing frail…

The interactional context of problem-, emotion-, and relationship-focused coping: the role of the big five personality factors

This study examined the role that personality and situational factors play in three forms of coping responses: problem-, emotion- and relationship-focused. Coping responses were strongly associated with whether the situation involved a primarily…

Tags: 1996, Adaptation, Backlog, Defense Mechanisms, DeLongis A, Emotions, Empathy, Humans, Individuality, Interpersonal Relations, Journal Article, Journal Of Personality, Non-U.S. Gov't, O'Brien TB, Personality, Problem Solving, Psychological, Research Support, Social Environment

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