1
40
5
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archinte.164.18.1999" target="_blank" rel="noreferrer">http://doi.org/10.1001/archinte.164.18.1999</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Talking with terminally ill patients and their caregivers about death, dying, and bereavement: is it stressful? Is it helpful?
Publisher
An entity responsible for making the resource available
Archives Of Internal Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Female; Humans; Male; United States; Terminal Care; Adult; Prospective Studies; Aged; Middle Aged; Attitude to Death; Communication; Death; Speech; Stress; adolescent; 80 and over; Empirical Approach; Non-U.S. Gov't; Research Support; bereavement; Caregivers/psychology; Death and Euthanasia; Interviews; Psychological/etiology/psychology; Terminally Ill/psychology
Creator
An entity primarily responsible for making the resource
Emanuel EJ; Fairclough DL; Wolfe P; Emanuel LL
Description
An account of the resource
BACKGROUND: Discussing end-of-life issues with terminally ill patients is often considered distressing and harmful. This study was conducted to assess whether interviewing terminally ill patients and their caregivers about death, dying, and bereavement is stressful and/or helpful. METHODS: Patients from 6 sites in the United States who were estimated to have 6 months or less to live were interviewed in person and reinterviewed 2 to 6 months later. Their caregivers were interviewed separately. At the end of the interviews, patients and caregivers were asked how stressful and how helpful the interview had been. Of 1131 eligible patients, 988 (87.4%) were interviewed, and of 915 eligible caregivers, 893 (97.6%) were interviewed. RESULTS: At the end of the first interview, 1.9% of the patients reported having experienced a great deal of stress, 7.1% some stress, and 88.7% little or no stress from the interview. Among the caregivers, 1.5% reported a great deal of stress, 8.4% some stress, and 89.7% little or no stress. Slightly more stress was reported to have been caused by the reinterview. Overall, 16.9% of the patients reported the initial interview as very helpful, 29.6% as somewhat helpful, and 49.6% as offering little or no help. Among the caregivers, 19.1% reported the initial interview as very helpful, 34.3% as somewhat helpful, and 44.9% as offering little or no help. The reported helpfulness of the second interview was slightly less. Patients experiencing pain (odds ratio [OR], 1.26; 95% confidence interval [CI], 1.02-1.56), more personal meaning in dying (OR, 3.05; 95% CI, 2.02-4.59), and less ease with talking about the end of life (OR, 1.32; 95% CI, 1.09-1.60) were significantly more likely to report stress. Patients who were from an ethnic minority (OR, 1.85; 95% CI, 1.31-2.63), anxious about the end of their life (OR, 1.39; 95% CI 1.16-1.67), more spiritual (OR, 1.30; 95% CI, 1.06-1.61), and serene (OR, 1.25; 95% CI, 1.08-1.45) were significantly more likely to report the interview helpful. There was no relationship between stress and helpfulness. CONCLUSIONS: Terminally ill patients and their caregivers can discuss death, dying, and bereavement in a structured interview with minimal stress and report that the interview was helpful. Institutional review boards should not preemptively restrict surveys with terminally ill patients without reliable evidence that they will be stressful or otherwise harmful.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archinte.164.18.1999" target="_blank" rel="noreferrer">10.1001/archinte.164.18.1999</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
80 And Over
Adolescent
Adult
Aged
Archives Of Internal Medicine
Attitude To Death
Backlog
Bereavement
Caregivers/psychology
Communication
Death
Death and Euthanasia
Emanuel EJ
Emanuel LL
Empirical Approach
Fairclough DL
Female
Humans
Interviews
Journal Article
Male
Middle Aged
Non-U.S. Gov't
Prospective Studies
Psychological/etiology/psychology
Research Support
Speech
Stress
Terminal Care
Terminally Ill/psychology
United States
Wolfe P
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1046/j.1532-5415.2002.50622.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1532-5415.2002.50622.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Managing end-of-life care: comparing the experiences of terminally Ill patients in managed care and fee for service
Publisher
An entity responsible for making the resource available
Journal Of The American Geriatrics Society
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Female; Humans; Male; Physician-Patient Relations; Adult; Aged; Middle Aged; Health Services Accessibility; Outcome Assessment (Health Care); adolescent; 80 and over; Empirical Approach; Non-U.S. Gov't; Professional Patient Relationship; Research Support; Caregivers/psychology; Death and Euthanasia; Comparative Study; Health Services/utilization; Health Care and Public Health; Fee-for-Service Plans; Managed Care Programs; Terminal Care/economics
Creator
An entity primarily responsible for making the resource
Slutsman J; Emanuel LL; Fairclough D; Bottorff D; Emanuel EJ
Description
An account of the resource
There have been no published empirical studies comparing the experiences of terminally ill patients in managed care organizations (MCOs) and those in fee for service (FFS). This investigation represents the first empirical study to systematically compare substantive outcomes between populations of terminally ill patients enrolled in MCO and FFS healthcare delivery systems. The investigators interviewed 988 patients whose physicians judged them to be terminally ill and 893 of their caregivers. Outcomes assessments were made in six domains: patient-physician relationship; access to care and use of health care; prevalence of symptoms; and planning for end-of-life care, care needs, and economic burdens. Overall, the two populations of terminally ill patients were found to have comparable outcomes, but several significant differences were present. MCO patients were more likely than their FFS counterparts to use an inconvenient hospital (P =.02), spend more than 10% of their income on medical care (P =.02), and have been bedridden more than 50% of the time during the last 4 weeks of life (P =.03). Caregivers of MCO patients were as likely as the caregivers of FFS patients to report a substantial caregiving burden (P =.59). Despite concerns about the threats of MCOs to the physician-patient relationship, few differences in the quality of the relationship between the two cohorts were found. Finally, terminally ill patients in MCOs did not show better experiences than those in FFS on any outcome measure. Additional research is required to explore how MCOs may improve upon the care available to dying patients.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1046/j.1532-5415.2002.50622.x" target="_blank" rel="noreferrer">10.1046/j.1532-5415.2002.50622.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
80 And Over
Adolescent
Adult
Aged
Backlog
Bottorff D
Caregivers/psychology
Comparative Study
Death and Euthanasia
Emanuel EJ
Emanuel LL
Empirical Approach
Fairclough D
Fee-for-Service Plans
Female
Health Care and Public Health
Health Services Accessibility
Health Services/utilization
Humans
Journal Article
Journal Of The American Geriatrics Society
Male
Managed Care Programs
Middle Aged
Non-U.S. Gov't
Outcome Assessment (health Care)
Physician-patient Relations
Professional Patient Relationship
Research Support
Slutsman J
Terminal Care/economics
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0140-6736(05)62952-2" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0140-6736(05)62952-2</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Care for dying patients.
Publisher
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Lancet
Date
A point or period of time associated with an event in the lifecycle of the resource
1997
Subject
The topic of the resource
Humans; Palliative Care; Advance Directives; Physician-Patient Relations; Family; Euthanasia; Communication; Physicians; decision making; advance care planning; DNAR; Withholding Treatment; Terminal Care; Passive
Creator
An entity primarily responsible for making the resource
Emanuel EJ
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0140-6736(05)62952-2" target="_blank" rel="noreferrer">10.1016/s0140-6736(05)62952-2</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1997
1997
Advance Care Planning
Advance Directives
Backlog
Communication
Decision Making
DNAR
Emanuel EJ
Euthanasia
Family
Humans
Journal Article
Lancet
Palliative Care
Passive
Physician-patient Relations
Physicians
Terminal Care
Withholding Treatment
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0140-6736(98)90329-4" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0140-6736(98)90329-4</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The promise of a good death
Publisher
An entity responsible for making the resource available
Lancet
Date
A point or period of time associated with an event in the lifecycle of the resource
1998
Creator
An entity primarily responsible for making the resource
Emanuel EJ; Emanuel LL
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0140-6736(98)90329-4" target="_blank" rel="noreferrer">10.1016/s0140-6736(98)90329-4</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1998
1998
Backlog
Emanuel EJ
Emanuel LL
Journal Article
Lancet
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1056/NEJM200002033420506" target="_blank" rel="noreferrer">http://doi.org/10.1056/NEJM200002033420506</a>
<a href="http://dx.doi.org/10.1056/NEJM200002033420506" target="_blank" rel="noreferrer">http://dx.doi.org/10.1056/NEJM200002033420506</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Symptoms and Suffering at the End of Life in Children with Cancer
Publisher
An entity responsible for making the resource available
New England Journal Of Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Child; Humans; Terminal Care; Health Care Surveys; Parents; Withholding Treatment; Logistic Models; Questionnaires; Physicians; Boston; Longitudinal Studies; Quality of Health Care; quality of life; Empirical Approach; Non-U.S. Gov't; P.H.S.; Professional Patient Relationship; Research Support; U.S. Gov't; Death and Euthanasia; Psychological; Stress; Clodronate; Neoplasms/complications/therapy; Oncology at EOL; Pain/etiology/therapy; Anorexia/etiology/therapy; home care services; Children's Hospital (Boston); Constipation/etiology/therapy; Dana-Farber Cancer Institute (Boston); Diarrhea/etiology/therapy; Dyspnea/etiology/therapy; Fatigue/etiology/therapy; Palliative Care/standards/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Wolfe J; Grier Holcombe E; Klar Neil; Levin SB; Ellenbogen JM; Salem-Schatz S; Emanuel EJ; Weeks Jane C
Description
An account of the resource
Cancer is the leading cause of nonaccidental death in childhood.1 There has, however, been little evaluation of the overall experience at the end of life of children who are dying of cancer or of their symptoms other than pain.2,3 A number of studies have demonstrated that among adults, the quality of care at the end of life is suboptimal.4–8 For example, one study of elderly patients found that there was considerable suffering at the end of life, with up to 25 percent of patients experiencing moderate-to-severe pain in the last three days of life.7 It is not known . . .
2000-02
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1056/NEJM200002033420506" target="_blank" rel="noreferrer">10.1056/NEJM200002033420506</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2000
Anorexia/etiology/therapy
Backlog
Boston
Child
Children's Hospital (Boston)
Clodronate
Constipation/etiology/therapy
Dana-Farber Cancer Institute (Boston)
Death and Euthanasia
Diarrhea/etiology/therapy
Dyspnea/etiology/therapy
Ellenbogen JM
Emanuel EJ
Empirical Approach
Fatigue/etiology/therapy
Grier Holcombe E
Health Care Surveys
home care services
Humans
Journal Article
Klar Neil
Levin SB
Logistic Models
Longitudinal Studies
Neoplasms/complications/therapy
New England Journal Of Medicine
Non-U.S. Gov't
Oncology at EOL
P.H.S.
Pain/etiology/therapy
Palliative Care/standards/statistics & Numerical Data
Parents
Physicians
Professional Patient Relationship
Psychological
Quality Of Health Care
Quality Of Life
Questionnaires
Research Support
Salem-Schatz S
Stress
Terminal Care
U.S. Gov't
Weeks Jane C
Withholding Treatment
Wolfe J