1
40
2
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Text
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Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216312450124" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216312450124</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Learning from paediatric palliative care: Lessons for adult practice
Publisher
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Palliative Medicine
Date
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2012
Creator
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Spathis A; Harrop E; Robertshaw C; Elverson J; Lapwood S
Identifier
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<a href="http://doi.org/10.1177/0269216312450124" target="_blank" rel="noreferrer">10.1177/0269216312450124</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2012
Backlog
Elverson J
Harrop E
Journal Article
Lapwood S
Palliative Medicine
Robertshaw C
Spathis A
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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August 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August List 2023
URL Address
<a href="http://doi.org/10.1136/spcare-2023-PCC.196" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1136/spcare-2023-PCC.196</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Sharing care at the End of life for adolescent patients with neuro-disability: A case series
Publisher
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BMJ Supportive and Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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child; Adolescent; adult; female; hospital admission; human; male; palliative therapy; patient care; terminal care; young adult; clinical article; hospital discharge; groups by age; adolescent; deterioration; conference abstract; learning; adulthood; case study; neurodisability; bereavement support; community health nursing; family support; health hazard
Creator
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Elverson J; Aspey H; Bond E; Mackerness C; Hoskins R; Shiell A
Description
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Background Adolescents with long term conditions are recognised to have unique needs and to experience particular health risks as they transfer to adult services. Some young people with complex neuro-disability may live years following transfer to adult services; for others however, reaching adulthood coincides with a significant deterioration in their health. Identifying the best team to support the patient in this situation can be controversial. Community and hospital adult palliative care teams may have an important role to play in supporting these patients, yet clinicians may lack experience working with this age group or managing the symptoms associated with paediatric neurodisability. We present reflections from a series of 6 young adults who received shared-care from adult and paediatric palliative teams and raise discussion about the strengths and learning needs of the different teams involved. Intervention Over a period of 2 years, patients who were between the age of 15 and 19 years and experiencing a significant deterioration in their health were referred to the children's palliative care team for the North East North Cumbria region. Where appropriate, the children's team identified a local adult palliative care team and established a model of shared-care with this team. Findings Across the region 3 adult hospital palliative liaison teams and 4 adult community palliative care teams were involved in shared end of life care. Cross-team debriefs identified benefits including * Improved continuity of care * Access to out of hours support * Avoiding hospital admission/Safe discharge planning * Confidence with medication for symptom management * Access to local family support and bereavement services * Building relationships for future joint working * Support for adult and children's community nursing teams Conclusion Sharing end of life care between adult and paediatric palliative care services can improve the experience of young adults and their families.
Identifier
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<a href="http://doi.org/10.1136/spcare-2023-PCC.196" target="_blank" rel="noreferrer noopener">10.1136/spcare-2023-PCC.196</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Adolescent
Adult
ADULTHOOD
Aspey H
August List 2031
Bereavement Support
BMJ Supportive and Palliative Care
Bond E
Case Study
Child
Clinical Article
Community Health Nursing
conference abstract
Deterioration
Elverson J
family support
Female
groups by age
health hazard
Hoskins R
Hospital Admission
hospital discharge
Human
Learning
Mackerness C
Male
Neurodisability
Palliative Therapy
Patient Care
Shiell A
Terminal Care
Young Adult