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Text
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<a href="http://doi.org/10.1200/JCO.2007.15.4864" target="_blank" rel="noreferrer">http://doi.org/10.1200/JCO.2007.15.4864</a>
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Title
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Predictors of Referral for Specialized Psychosocial Oncology Care in Patients With Metastatic Cancer: The Contributions of Age, Distress, and Marital Status
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Journal Of Clinical Oncology
Date
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2008
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Ellis J; Lin J; Walsh A; Lo C; Shepherd FA; Moore M; Li M; Gagliese L; Zimmermann C; Rodin G
Description
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PURPOSE: This study examines the rate and prediction of referral for specialized psychosocial oncology care in 326 patients with metastatic GI or lung cancer. PATIENTS AND METHODS: Referral information was abstracted from medical records and hospital databases. Patients completed measures of psychosocial and physical distress and functioning. RESULTS: Routine referral occurred in 33% of patients, and in 42% and 44%, respectively, of those scoring high on measures of depression (Beck Depression Inventory [BDI]-II >/= 15) and hopelessness (Beck Hopelessness Scale >/= 8). Univariate analyses indicated that referral was associated with younger age, unmarried status, living alone, presence of more depressive symptoms, hopelessness, and attachment anxiety, and with less social support, self-esteem, and spiritual well-being (all P /= 15), 100% of those less than 40 years of age, but only 22% of those age 70 years or older were referred. Multivariate analyses indicated that referral was associated with younger age, unmarried status, and presence of more depressive symptoms. Moreover, increasing age was associated with a progressively lower likelihood of referral independent of the level of distress. CONCLUSION: Routine referral of patients with metastatic cancer for psychosocial oncology care was predicted by presence of more severe depressive symptoms, younger age, and unmarried status. The rate of referral progressively declined with each decade of age, even among those with significant distress. These findings are consistent with some aspects of Andersen's model of health care utilization. The extent to which referred patients represent those who are most likely to benefit deserves further investigation.
2008
Identifier
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<a href="http://doi.org/10.1200/JCO.2007.15.4864" target="_blank" rel="noreferrer">10.1200/JCO.2007.15.4864</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2008
Backlog
Ellis J
Gagliese L
Journal Article
Journal Of Clinical Oncology
Li M
Lin J
Lo C
Moore M
Rodin G
Shepherd FA
Walsh A
Zimmermann C
-
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November 2022 List
Text
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<a href="http://doi.org/10.1089/pmr.2021.0072" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1089/pmr.2021.0072</a>
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Primary Caregivers Caring for a Child at End of Life in Saudi Arabia
Publisher
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Palliative Medicine Reports
Date
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2022
Subject
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Saudi Arabia; Children at End of Life; End of Life; End of Life Care; Primary Caregivers
Creator
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Hafez SA; Snethen JA; Taani M; Ngui E; Ellis J; Baothman AA
Description
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BACKGROUND: Caring for children at end of life (EOL) can be devastating for primary caregivers who are responsible for the physical, social, and emotional needs of their dying child. Limited information was found on resources in Saudi Arabia to manage the impact on primary caregivers from caring for a child receiving end of life care (EOLC). PURPOSE: The purpose of this study was to explore the experiences of primary caregivers caring for a child receiving EOLC within the Saudi Arabian health care system. METHODS: A descriptive phenomenological study was conducted, and 24 female primary caregivers were interviewed individually. Participants were recruited from three hospitals and the surrounding community in Jeddah, Saudi Arabia. The data were collected over a period of seven weeks between August and September of 2019. Individual in-depth interviews were conducted using an 11-item investigator-developed interview guide derived from the literature on EOL. Thematic analysis was completed using transcripts from all interviews. RESULTS: The findings suggest that primary caregivers caring for a child receiving EOLC were impacted psychologically, physically, socially, and financially. Primary caregivers expressed their heartbreak, lack of sleep, isolation, and financial challenges while caring for their child at EOL. CONCLUSIONS: Similar to what has been reported in the literature, primary caregivers caring for a child at EOL experience biopsychosocial and financial challenges. In addition, this study has implications for nursing education, practice, policy, and research regarding EOLC. Also, the findings can guide future research on EOL in Saudi Arabia and worldwide.
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<a href="http://doi.org/10.1089/pmr.2021.0072" target="_blank" rel="noreferrer noopener">10.1089/pmr.2021.0072</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
End of Life Care
2022
Baothman AA
children at end of life
Ellis J
End Of Life
Hafez SA
Ngui E
November 2022 List
Palliative Medicine Reports
primary caregivers
Saudi Arabia
Snethen JA
Taani M