1
40
2
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1007/s10803-006-0293-9" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s10803-006-0293-9</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Development of a video-based evaluation tool in Rett syndrome
Publisher
An entity responsible for making the resource available
Journal of Autism and Developmental Disorders
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Male; Diagnosis Differential; Child; Humans; Adult; Adolescent; Female; Phenotype; Feasibility Studies; Videotape Recording; Movement Disorders/diagnosis/etiology; Rett Syndrome/complications/diagnosis; feeding difficulties; tone and motor problems; Rett syndrome; tool development; scale development; filming and coding protocol
Creator
An entity primarily responsible for making the resource
Fyfe S; Downs J; McIlroy O; Burford B; Lister J; Reilly S; Laurvick C L; Philippe C; Msall M; Kaufmann W E; Ellaway C; Leonard H
Description
An account of the resource
This paper describes the development of a video-based evaluation tool for use in Rett syndrome (RTT). Components include a parent-report checklist, and video filming and coding protocols that contain items on eating, drinking, communication, hand function and movements, personal care and mobility. Ninety-seven of the 169 families who initially agreed to participate returned a videotape within 8 months of the first request. Subjects whose videos were returned had a similar age profile to those who did not provide a video but were more likely to have classical than atypical RTT. Evidence of the content and social validity and inter-rater reliability on 11 videos is provided. Video may provide detailed, objective assessment of function and behaviour in RTT.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s10803-006-0293-9" target="_blank" rel="noreferrer noopener">10.1007/s10803-006-0293-9</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2007
Adolescent
Adult
Burford B
Child
Diagnosis Differential
Downs J
Ellaway C
Feasibility Studies
feeding difficulties
Female
filming and coding protocol
Fyfe S
Humans
Journal of Autism and Developmental Disorders
Kaufmann W E
Laurvick C L
Leonard H
Lister J
Male
McIlroy O
Movement Disorders/diagnosis/etiology
Msall M
Phenotype
Philippe C
Reilly S
Rett syndrome
Rett Syndrome/complications/diagnosis
scale development
tone and motor problems
tool development
Videotape Recording
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1016/s0387-7604(01)00356-4" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/s0387-7604(01)00356-4</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Sleep dysfunction in Rett syndrome: lack of age related decrease in sleep duration
Publisher
An entity responsible for making the resource available
Brain and Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Age Factors; Child; Humans; Adolescent; Cohort Studies; Female; Child Preschool; Brain; Sleep; Epilepsy; Movement Disorders; Sleep Wake Disorders; Rett Syndrome; sleep disturbance/disorders; trajectory; characteristics
Creator
An entity primarily responsible for making the resource
Peat J; Leonard H; Christodoulou J; Ellaway C
Description
An account of the resource
The sleep patterns of a cohort of 83 Rett syndrome females were characterized using a sleep diary for 7 consecutive days and nights and compared with normative sleep data. The mean total sleep time of the cohort was 10.75 h, daytime sleep 0.77 h, sleep efficiency 89.7%, and sleep latency 0.52 h. When subjects were categorized according to age and Rett syndrome classification, there was no significant difference in their sleep characteristics. There was a significant difference in the percentage predicted total sleep time (P<0.001) and Z scores for total sleep time (P<0.001), when subjects were categorized according to age and compared with normal children. The Rett syndrome subjects in this study did not show the age related decrease in total and daytime sleep time seen in normal children. The immature sleep pattern demonstrated in this cohort, may be a consequence of arrested brain development.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0387-7604(01)00356-4" target="_blank" rel="noreferrer noopener">10.1016/s0387-7604(01)00356-4</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2001
Adolescent
Age Factors
Brain
Brain and Development
characteristics
Child
Child Preschool
Christodoulou J
Cohort Studies
Ellaway C
Epilepsy
Female
Humans
Leonard H
Movement Disorders
Peat J
Rett syndrome
Sleep
sleep disturbance/disorders
Sleep Wake Disorders
Trajectory