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Text
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<a href="http://doi.org/10.1016/j.jcf.2009.05.004" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jcf.2009.05.004</a>
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Title
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Implementation of European standards of care for cystic fibrosis - provision of care
Publisher
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Journal Of Cystic Fibrosis
Date
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2009
Subject
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Humans; Practice Guidelines as Topic; Health Care Surveys; Questionnaires; Guideline Adherence; Europe; Adolescent Transitions; caregivers; Cystic Fibrosis/therapy; Patient Care/standards
Creator
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Elborn JS; Hodson M; Bertram C
Description
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BACKGROUND: Several guidelines for cystic fibrosis (CF) caregivers exist, but information about their implementation is lacking. METHODS: Adherence to European Consensus Guidelines for CF was studied by sending surveys to named healthcare professionals in 487 CF centres/units. Data were analysed qualitatively. RESULTS: Data were obtained from 177 CF clinics, providing care for 21,177 patients (33% response rate). Access to specialist healthcare professionals was good according to 80% of respondents, although only 59% reported access to specialist pharmacists. Of the respondents, 16% reported unlimited access to inpatient CF beds, however 22% reported a lack of availability of immediate care. Most respondents (84%) reviewed their patients quarterly as outpatients. Shared-care models were used by 84% of respondents. Availability and adequacy of funding presented an issue for many, although 8% of respondents indicated that key funding was derived from CF charities. CONCLUSIONS: The respondents demonstrated a high degree of implementation of European Consensus Guidelines. However, areas for improvement include shared care, access to care and funding inequalities.
2009
Identifier
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<a href="http://doi.org/10.1016/j.jcf.2009.05.004" target="_blank" rel="noreferrer">10.1016/j.jcf.2009.05.004</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2009
Adolescent Transitions
Backlog
Bertram C
Caregivers
Cystic Fibrosis/therapy
Elborn JS
Europe
Guideline Adherence
Health Care Surveys
Hodson M
Humans
Journal Article
Journal of Cystic Fibrosis
Patient Care/standards
Practice Guidelines As Topic
Questionnaires