Browse Items · Pediatric Palliative Care Library

Parental communication and children's behaviour following diagnosis of childhood leukaemia

2005

Tags: 2005, Acute/diagnosis/drug therapy/psychology Male Parent-Child Relations Research Support, Adaptation, Backlog, Clarke SA, Davies H, Eiser C, Glaser A, Jenney M, Journal Article, Lymphocytic, mean age = 7.33 years) newly diagnosed with acute lymphoblastic leukaemia (ALL) were interviewed about (i) the child's reactions and behaviour following diagnosis, parents differ in their views about what to tell the child. In this study 55 parents of children (36 boys and 19 girls, parents' perceptions of childhood cancer affect the way they communicate with their child. These findings may be used to inform training packages in order to facilitate improved communicatio n amongst health professionals., PedPal Lit, Psycho-Oncology, Psychological Affect Antineoplastic Agents/administration & dosage Child Child BehaviorCommunication Female Health Education Humans Interview, Psychological Leukemia, Truth Disclosure

Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales

BACKGROUND: In situations where children are unable or unwilling to respond for themselves, measurement of quality of life (QOL) is often obtained by parent proxy-report. However the relationship between child self and parent proxy-reports has been…

Tags: 2006, Backlog, Blades M, Cremeens J, Eiser C, Health And Quality Of Life Outcomes, Journal Article

Quality-of-life measures in chronic diseases of childhood

SCOPE OF THE REPORT: This report is concerned with the evaluation of measures broadly designed to measure quality of life (QoL) in children and adolescents, either by self-report or proxy raters. Four research questions were identified: (1) To what…

Tags: 2001, Adolescent, Backlog, Child, Chronic Disease, Disabled Children, Eiser C, Female, Great Britain, Health Services Research, Health Status Indicators, Health Technology Assessment (winchester, England), Humans, Journal Article, Male, Morse R, Preschool, Quality Of Life, Self Assessment (Psychology)

Siblings of a child with cancer

A total of 21 healthy siblings were interviewed about their experiences when a brother or sister is diagnosed with cancer. Information about the illness, opinions about who should inform siblings, social support, specific worries and worst memories…

Development of a measure of the health-related quality of life of children in public care