Development of an Institution-Wide Pediatric End-of-Life Summit
child; article; human; terminal care; school child; medical society; bereavement; teaching hospital; clinician; special situation for pharmacovigilance
End-of-life (EOL) care in pediatrics is a unique subspecialty lacking adequate provider education and training. Patient and family outcomes may improve when clinicians are provided with training in this care. Recognizing the need for this specialized education, a small group of bereavement coordinators created an institution-wide pediatric EOL summit at a large urban pediatric teaching hospital. One hundred forty-five clinicians from 14 diverse disciplines attended the first annual pediatric EOL summit. A survey was sent to the participants for feedback. The survey results suggested an overwhelmingly positive response to the summit. Continuing to provide this educational conference is critical to improving care for patients and families, particularly at the end of life.
Edson J; Abecassis L; Beke DM; McGorman T
Journal of Hospice and Palliative Nursing
2023
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1097/NJH.0000000000000982" target="_blank" rel="noreferrer noopener">10.1097/NJH.0000000000000982</a>
Evaluating the Benefit of Bereavement Mailings at a Large Pediatric Center
bereavement; Likert-type survey; palliative; parent; pediatric
The Boston Children's Hospital Hematology/Oncology Bereavement Program has supported bereaved parents for three decades following the death of their child from cancer or blood disorder. An analysis of the current bereavement program as well as a review of up-to-date literature is crucial to maintaining and continuously improving the program. To evaluate the current practice, a 22-item Likert-type survey was mailed to 216 bereaved parents who utilized the bereavement program during a four-year period. Results from the program evaluation, particularly the qualitative remarks from bereaved parents, along with analysis of current literature underscore the value bereaved families find having at least one meaningful contact with their child's healthcare team following the death.
Edson J
Journal of Hospice & Palliative Nursing
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1097/njh.0000000000000713" target="_blank" rel="noreferrer noopener">10.1097/njh.0000000000000713</a>