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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2018 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/10.1017/S1478951516001048" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1017/S1478951516001048</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Identifying domains of quality of life in children with cancer undergoing palliative care: A qualitative study with professionals
Publisher
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Palliative & Supportive Care
Date
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2017
Subject
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Adaptation Psychological; Middle Aged; Male; Humans; Palliative Care/mt [Methods]; Adult; Qualitative Research; Neoplasms/px [Psychology]; Female; Quality of Life/px [Psychology]; Palliative Care/px [Psychology]; Quebec; Pediatrics/st [Standards]; Health Personnel/px [Psychology]; Perception; Pediatrics/ma [Manpower]
Creator
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Avoine-Blondin J; Parent V; Lahaye M; Humbert N; Duval M; Sultan S
Description
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OBJECTIVE: The goal of pediatric palliative care (PPC) is to maintain the quality of life (QoL) of children whose lives are threatened. However, there are sparse scientific data on the domains of QoL in this particular context, and no measurement strategies are available. The present study aims to describe the domains of QoL in the context of PPC in oncology, according to the perceptions of professional caregivers. METHOD: Semistructured interviews were conducted with a random sample of 20 professional caregivers from the Division of Hematology/Oncology at Le Centre Hospitalier Universitaire Sainte-Justine (Montreal, Canada). The caregivers were asked about their perceptions about the QoL of the children they have cared for in this context. The data were analyzed using inductive thematic content analysis. RESULTS: The analysis allowed us to identify seven domains of QoL: "physical comfort," "alleviation of psychological suffering," "fun and the present moment," "sense of control," "feeling valued and appreciated," "feeling that life goes on," and "meaningful social relationships." SIGNIFICANCE OF RESULTS: Caregivers recount the regard that should be accorded to maintaining well-being and a sense of fun, as well as fostering the child's abilities, taking account of the progression of the disease, and to fulfilling his or her needs, especially social ones. Our results also demonstrate that all domains were positively referred to by professional caregivers. The data from our study will lead to better assessment of QoL according to the trajectory of a child with advanced cancer while undergoing PPC.
Identifier
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<a href="http://doi.org/%2010.1017/S1478951516001048" target="_blank" rel="noreferrer noopener">10.1017/S1478951516001048</a>
2017
Adaptation Psychological
Adult
Avoine-Blondin J
Duval M
Female
Health Personnel/px [psychology]
Humans
Humbert N
Lahaye M
Male
Middle Aged
Neoplasms/px [psychology]
Oncology 2018 List
Palliative & Supportive Care
Palliative Care/mt [methods]
Palliative Care/px [psychology]
Parent V
Pediatrics/ma [Manpower]
Pediatrics/st [standards]
Perception
Qualitative Research
Quality Of Life/px [psychology]
Quebec
Sultan S
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2018.10.418" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2018.10.418</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Quality of Life of Children with Advanced Cancer: The Perspective of Children and Parents
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
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advanced cancer; child; conference abstract; human; interdisciplinary communication; oncology; palliative therapy; physical well-being; pleasure; qualitative research; quality of life assessment; semi structured interview; thematic analysis
Creator
An entity primarily responsible for making the resource
Avoine-Blondin J; Fasse L; Lopez C; Daoust L; Humbert N; Duval M; Sultan S
Description
An account of the resource
Objective: Quality of Life (QoL) is the core of pediatric palliative care (PPC). The evaluation of QoL allows the adjustment of patient care. However, it remains difficult for clinicians to measure it in this population because there is very little empirical data on this topic. In order to identify dimensions of QoL in this context, we have, in a previous study, interviewed professionals who accompanied children with advanced cancer. The results highlighted the traditional dimensions of physical, psychological and social well-being, as well as original dimensions such as pleasure and the present moment. However, to provide an effective understanding of QoL, it is essential to capture the perspective of children and parents. This study aims to describe the QoL in the context of PPC in oncology according to children's and parents' the representations.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2018.10.418" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2018.10.418</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Advanced Cancer
Avoine-Blondin J
Child
conference abstract
Daoust L
Duval M
Fasse L
Human
Humbert N
Interdisciplinary Communication
Journal of Pain and Symptom Management
Lopez C
Oncology
Oncology 2019 List
Palliative Therapy
physical well-being
pleasure
Qualitative Research
quality of life assessment
Semi Structured Interview
Sultan S
Thematic Analysis