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Dublin Core
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May 2020 List
Text
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May 2020 List
URL Address
<a href="http://doi.org/10.1177/1367493520915134" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1367493520915134</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Experiencing place identity and place belongingness at a children's hospice: Parents' perspectives
Publisher
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Journal of Child Health Care
Date
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2020
Subject
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Children's hospice; parent perspective; place belongingness; place identity
Creator
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Dunbar H; Carter B
Description
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Children's hospices are key players in the provision of palliative care services for families with children with life-limiting conditions (LLCs). However, evidence suggests that some of the negative terminology/language which surrounds the notions of palliative and hospice care may contribute to the lack of uptake of hospice services by families. This article reports two elements of place bonding: parents' experiences of place identity and place belongingness at a children's hospice in a region in England. Underpinned by a constructivist grounded theory methodology, focus groups were undertaken with 24 parents of children with LLCs accessing a children's hospice. Despite initial reservations associated with the identity of the hospice, parents described how and why their view changed and therefore consequently how they were able to experience the hospice differently. This article demonstrates how parents' views of the identity of the hospice change and how the hospice becomes a place where parents experience a sense of belongingness.
Identifier
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<a href="http://doi.org/10.1177/1367493520915134" target="_blank" rel="noreferrer noopener">10.1177/1367493520915134</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Carter B
Children's Hospice
Dunbar H
Journal Of Child Health Care
May 2020 List
parent perspective
place belongingness
place identity
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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October 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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October 2020 List
URL Address
<a href="http://doi.org/10.1136/bmjspcare-2018-001543" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/bmjspcare-2018-001543</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Place bonding' in children's hospice care: a qualitative study
Publisher
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BMJ Supportive & Palliative Care
Date
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2020
Subject
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hospice; parent experiences; parent perspectives; parental experience; parental perspectives; pediatrics; place bonding
Creator
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Dunbar H; Carter B; Brown J
Description
An account of the resource
BACKGROUND: Limited knowledge exists of parents' perceptions and experiences of children's hospices and how these contribute to the varied access and uptake of services. AIM: This study aimed to explore parents' perspectives and experiences of a hospice, to understand the barriers and/or facilitators to accessing a hospice, and what characteristics parents wanted from hospice provision. METHOD(S): A two-phase qualitative study underpinned by a constructivist grounded theory methodology was employed. Phase 1 used focus groups to collect data from parents of children already accessing the hospice (n=24). Phase 2 used in-depth semistructured interviews with parents of children who did not use the hospice (n=7) and with parents who had previous experience of using a hospice (n=7). RESULT(S): A grounded theory of place bonding was developed which illustrates the cognitive journey taken by parents of children with life-limiting conditions considering/receiving hospice care for their child. CONCLUSION(S): Finding a place where they belonged and felt at 'home' made the decision to accept help in caring for their child with a life-limiting condition more acceptable. The theory of place bonding offers children's hospices a new perspective from which to view how parents access, accept and build relationships at the hospice. Copyright © Author(s) (or their employer(s)) 2020. No commercial re-use. See rights and permissions. Published by BMJ.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/bmjspcare-2018-001543" target="_blank" rel="noreferrer noopener">10.1136/bmjspcare-2018-001543</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
BMJ Supportive & Palliative Care
Brown J
Carter B
Dunbar H
Hospice
October 2020 List
Parent Experiences
parent perspectives
parental experience
Parental Perspectives
Pediatrics
Place bonding