Transitioning from paediatric to adult healthcare: Exploring the practices and experiences of care providers
paediatrics; adolescent; Chronic illness; transition to adult care; health personnel
Complex paediatric health conditions are increasingly associated with survival into adulthood resulting in more youth with complex care needs (CCN) transitioning from paediatric to adult healthcare. Current transition practices, when present, are disorganized, resulting in health status deterioration and complications due to unmet needs. The aim of this qualitative descriptive study is to develop a broader understanding of the current transition practices and experiences, as well as recommendations of care providers who support youth with CCN in the transition from paediatric to adult healthcare. Fifteen care providers from two Eastern Canadian provinces were interviewed using a semi-structured interview guide. The data collected were analyzed using inductive thematic analysis following the six phases outlined by Braun and Clarke (2006). The findings from this research demonstrate (1) a shortage of care providers, (2) inconsistent timing for transition initiation, and (3) lack of available community resources and services. Participant recommendations include (1) a designated transition coordinator; (2) transition policy implementation; (3) improved collaboration between and across care teams; and (4) the integration of virtual care to facilitate the transition process. The results of this study can potentially improve transition practices and policies and guide future research in this area. © The Author(s) 2023.
Splane J; Doucet S; Luke A
Journal of Child Health Care
2023
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<a href="http://doi.org/10.1177/13674935231202870" target="_blank" rel="noreferrer noopener">10.1177/13674935231202870</a>
Programs to Support Pediatric to Adult Healthcare Transitions for Youth with Complex Care Needs and their Families: A Scoping Review
Adult; Family; Healthcare; Pediatric; Programs; Scoping review
BACKGROUND An increasing number of children have complex care needs (CCN) that impact their health and cause limitations in their lives. More of these youth are transitioning from pediatric to adult healthcare due to complex conditions being increasingly associated with survival into adulthood. Typically, the transition process is plagued by barriers, which can lead to adverse health consequences. There is an increased need for transitional care interventions when moving from pediatric to adult healthcare. To date, literature associated with this process for youth with CCN and their families has not been systematically examined OBJECTIVES The objective of this scoping review is to map the range of programs in the literature that support youth with CCN and their families as they transition from pediatric to adult healthcare METHODS The review was conducted in accordance with the Joanna Briggs Institute’s methodology for scoping reviews. A search, last run in April 2021, located published articles in PubMed, CINAHL, ERIC, PsycINFO, and Social Work Abstracts databases RESULTS The search yielded 1,523 citations, of which 47 articles met the eligibility criteria. A summary of the article characteristics, program characteristics, and program barriers and enablers is provided. Overall, articles reported on a variety of programs that focused on supporting youth with various conditions, beginning in the early or late teenage years. Financial support and lack of training for care providers were the most common transition program barriers, while a dedicated transition coordinator, collaborative care, transition tools, and interpersonal support were the most common enablers. The most common patient-level outcome reported was satisfaction DISCUSSION This review consolidates available information about interventions designed to support youth with CCN transitioning from pediatric to adult healthcare. The results will help to inform further research, as well as transition policy and practice advancement.
Doucet S; Splane J; Luke A; Asher K; Breneol S; Pidduck J; Grant A; Dionne E; Scott C; Keeping-Burke L; McIsaac JL; Gorter JW; Curran J
Child: Care, Health and Development
2022
<a href="http://doi.org/10.1111/cch.12984" target="_blank" rel="noreferrer noopener">10.1111/cch.12984</a>