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Text
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Citation List Month
May 2017 List
Dublin Core
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Title
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Interactive Palliative And End-of-life Care Modules For Pediatric Residents
Publisher
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International Journal Of Paediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Internship And Residency; Palliative Care; Pilot Projects; Terminal Care
Creator
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Ross MK; Doshi A; Carrasca L; Pian P; Auger J; Baker A; Proudfoot JA; Pian MS
Description
An account of the resource
Background. There is a need for increased palliative care training during pediatric residency. Objective. In this pilot study, we created a comprehensive experiential model to teach palliative care skills to pediatric residents. Our Comfort Care Modules (CCMs) address pediatric palliative care (PPC) topics of breaking bad news, dyspnea, anxiety, pain management, and the dying child. We also evaluated a scoring system and gathered qualitative data. Methods. The CCMs are part of the University of California San Diego pediatric residency's second-year curriculum. Comparisons were made for statistical trends between residents exposed to the modules (n = 15) and those not exposed (n = 4). Results. Nineteen of 36 residents (52%) completed surveys to self-rate their preparedness, knowledge, and confidence about PPC before and after the intervention. Resident scores increased in all areas. All improvements reached statistical significance except confidence when breaking bad news. Overall, the resident feedback about the CCMs was positive. Conclusions. This study demonstrates that the CCMs can be performed effectively in an academic setting and can benefit residents' self-perception of preparedness, confidence, and knowledge about pediatric palliative care. In the future, we plan to implement the modules on a larger scale. We encourage their use in interprofessional settings and across institutions.
Identifier
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https://doi.org/10.1155/2017/7568091
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Auger J
Baker A
Carrasca L
Doshi A
International Journal of Paediatrics
Internship And Residency
May 2017 List
Palliative Care
Pian MS
Pian P
Pilot Projects
Proudfoot JA
Ross MK
Terminal Care
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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May 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2018 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2017.12.003" target="_blank" rel="noreferrer noopener">http://dio.org/10.1016/j.jpainsymman.2017.12.003</a>
Dublin Core
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Title
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Harnessing the power of telemedicine in palliative care from childhood to adulthood: The why and how
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
acute disease
Creator
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Ajayi T; Doshi A; Thienprayoon R; Bower K; Tate M; Short R
Description
An account of the resource
Objectives *Explain the rationale for incorporating telemedicine into the care of palliative care patients and its associated benefits. *Describe common challenges, proven strategies, and best practice recommendations for successful and sustainable integration of a telemedicine program into palliative medicine programs. *Appreciate the ease of telemedicine and discuss patient-centered benefits of implementing telemedicine into palliative care practice. Although Pediatric Palliative Care (PC) Programs are increasing in number across the country, "deserts" still exist in which access to PC interdisciplinary teams is challenged. Many families elect home-based PC, and the expectation of travel to a clinic or hospital for appointments is not universally appropriate, practical or patient-centered. Many children who receive PC are medically fragile and dependent on technology. Transporting these patients can increase stress, adversely impact quality of life, and increase caregiver burden and the risk of infectious exposure. The result is poor adherence with follow-up and, at times, delays in seeking care during acute illness. In this presentation we will propose a concise, evidence-based, and patient-tailored approach to overcoming these obstacles through the utilization of telemedicine (TM) encounters. Common challenges in the development and implementation of PC TM programs will be shared. Two pediatric institutions will compare and contrast the evolution of their TM programs, describe strategies employed to overcome challenges, and share outcomes. Through a casebased approach we will address billing, technological aspects, privacy and security of data, team engagement and program sustainability. We will demonstrate the ease of a TM encounter live during the session, and explore the perspective of a young adult PC patient in how TM has enhanced his care. A panel discussion will focus on successful and collaborative solutions to optimize care for children at home through TM and invite questions, success stories and challenges in the use of TM from attendees. Audience members will gain insight and appreciation for how TM can broaden and improve patient care, and will obtain concrete ideas for overcoming challenges in developing PC TM programs in their home institutions.
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2017.12.003" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2017.12.003</a>
2018
Acute Disease
Ajayi T
Bower K
Doshi A
Journal of Pain and Symptom Management
May 2018 List
Short R
Tate M
Thienprayoon R
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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November 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2021 List
URL Address
<a href="http://doi.org/10.1089/jpm.2021.0173" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/jpm.2021.0173</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Retrospective Pediatric Telepalliative Care Experience
Publisher
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Journal of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
pediatrics; pediatric palliative care; telehealth; telemedicine; telepalliative care
Creator
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Schmitt S; Ebby C; Doshi A; Bower K; Marc-Aurele K
Description
An account of the resource
Background: Rady Children's Hospital (RCH) offers an outpatient pediatric palliative clinic that began offering telepalliative care in 2016. Objectives: This study describes demographics of parents receiving pediatric telepalliative care, patient/family satisfaction with telepalliative care, and patient/family perspectives. Design: Retrospective electronic medical record chart review (2016-2020) of telepalliative patients at RCH (San Diego, USA), including satisfaction surveys. Documented quotes from telepalliative care consultations were analyzed thematically. Results: Fifty-six patients were seen through 181 telepalliative visits. Demographics: Forty-three percent were female and 32% were Hispanic/Latino. Ages ranged from 3 months to 25 years. Average Palliative Performance Scale was 47%. Seventy-nine percent used gastrostomy tubes for nutrition, but only 29% used home ventilation. Eighty-two percent completed a Physician Order for Life-Sustaining Treatment. Goals for 84% of patients were for life prolongation and attempt resuscitation. Visits averaged 86 minutes. Twenty-five surveys were returned: 92% felt very satisfied and 96% said the video visit was the same, better, or much better than an in-person visit. Sixty-four percent said the video visit was more convenient and 68% felt the video visit was safer. Identified themes from telepalliative consultations included advocacy for their child, challenges surrounding care for children with complex medical needs, medical team communication, caregiver support, facing uncertainty, and decision making. Conclusions and Implications: Pediatric patients receiving telepalliative care varied in demographics, functional status, and goals of care. Telepalliative care can provide good quality of care and patient satisfaction. In a telepalliative setting, parents were able to communicate challenging aspects of care including navigating uncertainty, finding support, and decision making.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2021.0173" target="_blank" rel="noreferrer noopener">10.1089/jpm.2021.0173</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Bower K
Doshi A
Ebby C
Journal of Palliative Medicine
Marc-Aurele K
November 2021 List
Pediatric Palliative Care
Pediatrics
Schmitt S
Telehealth
Telemedicine
telepalliative care
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
October 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2022 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2022.06.015">http://doi.org/10.1016/j.jpainsymman.2022.06.015</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Empowering Pediatric Palliative Homecare Patients and Caregivers with Symptom Management Plans
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
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Electronic health record; Home care; Pediatric palliative care; Quality improvement; Symptom management
Creator
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Larrow A; Doshi A; Fisher E; Patel A; Marc-Aurele K; Rhee KE; Beauchamp-Walters J
Description
An account of the resource
Pediatric palliative home-based care has been shown to improve symptoms, quality of life, and coordination of care. Despite these successes, hospital utilization in our own palliative home-based care population remained high as some caregivers lacked confidence to manage symptoms at home and had difficulty in recalling or accessing "sick care plans." Our team developed the Symptom Management Plan (SMP), a multi-system "sick care plan," as a quality improvement project with the aim of improving caregiver confidence to manage symptoms at home. An Electronic Health Record-based SMP template was created for common symptoms: respiratory distress, seizures, feeding intolerance, and constipation with core subspecialists' input. Individualized SMPs were created and reviewed with caregivers at every subsequent palliative home nursing visit. Caregivers were surveyed on their confidence 3 and 6-months post-implementation. Resource utilization was analyzed throughout implementation. At 6 months, 73% of caregivers reported "better" or "much better" confidence in managing their child's symptoms after using the SMP, and 76% of caregivers perceived the SMP prevented urgent care or emergency department (ED) visits. After the SMP was launched, the rate of ED visits decreased from 0.86 to 0.47 per 100 patient-days, and admissions decreased from 0.56 to 0.39 per 100 patient-days. These rates further decreased to 0.31 ED visits and 0.19 admissions per 100 patient-days within 4 and 6 months. Introducing the SMP for our home-based palliative care patients was associated with improved caregiver confidence in managing acute symptoms at home and a reduction in hospital utilization.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2022.06.015">10.1016/j.jpainsymman.2022.06.015</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Beauchamp-Walters J
Doshi A
electronic health record
Fisher E
Home Care
Journal of Pain and Symptom Management
Larrow A
Marc-Aurele K
October 2022 List
Patel A
Pediatric Palliative Care
Quality Improvement
Rhee KE
Symptom Management