1
40
15
-
Dublin Core
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Title
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2018 Oncology List
Text
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Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/10.1007/s00431-018-3170-6" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1007/s00431-018-3170-6</a>
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Title
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The timing and circumstances of the implementation of pediatric palliative care in Hungarian pediatric oncology
Publisher
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European Journal of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
child death; parent; family; terminal care; priority journal; psychologist; doctor patient relation; constructive feedback; childhood cancer; cancer palliative therapy; cohort analysis; oncologist; structured interview; human; article; female; male; adult; exploratory research; time to treatment; ambivalence; data analysis software; Hungarian (citizen); Hungary
Creator
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Nyiro J; Zorgo S; Eniko F; Hegedus K; Hauser P
Description
An account of the resource
Despite the continuous improvement of pediatric palliative care, medical professionals still face various barriers regarding its implementation; our aim was to investigate this question in Hungarian pediatric oncology practice. Structured interviews were carried out in person with physicians from the Hungarian Pediatric Oncology Group (n = 22). Codes were generated inductively with the aid of Atlas.ti 6.0 software. Most physicians placed the palliative care discussion at the end of curative treatment (n = 21) and preferred to conduct it in a team setting (n = 18), mainly in the presence of a psychologist. Preparing parents for the child's death can occur during the palliative care discussion (n = 3), in the child's final days/h (n = 6), gradually (n = 10), or never (n = 3). There are words consciously utilized and avoided during this discussion, with the word "death" proving to be the most ambivalent (utilized n = 5, avoided n = 6). Conclusions: There is no widely accepted unified practice among pediatric oncologists concerning the implementation of palliative care in Hungary. Despite the international recommendation, the common practice of timing is still at the end of curative treatment. Physicians rely on multidisciplinary teamwork, where the psychologist's role is the most prominent in this discussion.What is Known:* There is an international consensus that palliative care should commence at the diagnosis of a pediatric malignant disease regardless of illness outcome.* Barriers to the early implementation of palliative care in pediatric oncology involve resource-based and attitudinal factors.What is New:* In Hungary, where pediatric oncologists are sole decision-makers, early implementation of palliative care is rare.* There is a strong preference among physicians for working within a team, while also asserting that presence of team members may decrease the level of intimacy.
Identifier
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<a href="http://doi.org/%2010.1007/s00431-018-3170-6" target="_blank" rel="noreferrer noopener">10.1007/s00431-018-3170-6</a>
2018
Adult
ambivalence
Article
Cancer Palliative Therapy
Child Death
Childhood Cancer
Cohort Analysis
constructive feedback
Data Analysis Software
Doctor Patient Relation
Eniko F
European Journal of Pediatrics
Exploratory Research
Family
Female
Hauser P
Hegedus K
Human
Hungarian (citizen)
Hungary
Male
Nyiro J
Oncologist
Oncology 2018 List
Parent
Priority Journal
Psychologist
Structured Interview
Terminal Care
time to treatment
Zorgo S
-
Dublin Core
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Title
A name given to the resource
2018 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/10.1080/23294515.2016.1234519" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1080/23294515.2016.1234519</a>
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Title
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Decision making in pediatric oncology: Views of parents and physicians in two European countries
Publisher
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AJOB empirical bioethics
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
quality of life; Switzerland; doctor patient relation; parent; interpersonal communication; oncology; physician; oncologist; child parent relation; pediatrics; human; female; male; adult; qualitative research; middle aged; decision making; Romania; neoplasm/th [Therapy]; patient participation; clinical protocol
Creator
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Badarau DO; Ruhe K; Kuhne T; De CE; Colita A; Elger BS; Wangmo T
Description
An account of the resource
BACKGROUND: Decision making is a highly complex task when providing care for seriously ill children. Physicians, parents, and children face many challenges when identifying and selecting from available treatment options., METHODS: This qualitative interview study explored decision-making processes for children with cancer at different stages in their treatment in Switzerland and Romania., RESULTS: Thematic analysis of interviews conducted with parents and oncologists identified decision making as a heterogeneous process in both countries. Various decisions were made based on availability and reasonableness of care options. In most cases, at the time of diagnosis, parents were confronted with a "choiceless choice"-that is, there was only one viable option (a standard protocol), and physicians took the lead in making decisions significant for health outcomes. Parents' and sometimes children's role increased during treatment when they had to make decisions regarding research participation and aggressive therapy or palliative care. Framing these results within the previously described Decisional Priority in Pediatric Oncology Model (DPM) highlights family's more prominent position when making elective decisions regarding quality-of-life or medical procedures, which had little effect on health outcomes. The interdependency between oncologists, parents, and children is always present. Communication, sharing of information, and engaging in discussions about preferences, values, and ultimately care goals should be decision making's foundation., CONCLUSIONS: Patient participation in these processes was reported as sometimes limited, but parents and oncologists should continue to probe patients' abilities and desire to be involved in decision making. Future research should expand the DPM and explore how decisional priority and authority can be shared by oncologists with parents and even patients.
Identifier
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<a href="http://doi.org/%2010.1080/23294515.2016.1234519" target="_blank" rel="noreferrer noopener">10.1080/23294515.2016.1234519</a>
2017
Adult
AJOB empirical bioethics
Badarau DO
Child Parent Relation
clinical protocol
Colita A
De CE
Decision Making
Doctor Patient Relation
Elger BS
Female
Human
Interpersonal Communication
Kuhne T
Male
Middle Aged
neoplasm/th [Therapy]
Oncologist
Oncology
Oncology 2018 List
Parent
Patient Participation
Pediatrics
Physician
Qualitative Research
Quality Of Life
Romania
Ruhe K
Switzerland
Wangmo T
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
n/a
URL Address
<a href="http://doi.org/10.1002/pbc.26591" target="_blank" rel="noreferrer">http://doi.org/10.1002/pbc.26591</a>
Dublin Core
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Title
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Pediatric palliative care (PPC) access in Chile: Private practice health insurance law implementation
Publisher
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Pediatric Blood And Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Chile;health Insurance;palliative Therapy;private Practice; Analgesia; Central Nervous System Tumor; Child; Clinical Article; Counseling; Diagnosis; Doctor Patient Relation; Female; Home Visit; Human; Leukemia; Nurse; Outpatient; Overall Survival; Psychologist; School Child; Telephone
Creator
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Rojas N; Rosas A; Araya E; Varela J; Lopez P; Gallastegui A
Description
An account of the resource
Background: There are 600 new pediatric cancer cases in Chile in a year, with an overall survival of 70% and there are two systems that guarantee the access for patients to health providers: The public system, or national health fund (FONASA), and the private one, supported by insurance health institutions (ISAPRES), both financed by employees or contributors. Today in Chile the distribution of the population between both systems is 75% and 25% respectively. In 2004, in Chile, was enacted the law number 19.966 of explicit health guarantees (GES), that forces health systems to provide contributors the access, along with many other pathologies, to palliative care and pain relief for oncologic patients, despite the age. PPC is well developed and provided in the public system, but no precedents have being settled in the private area. Objectives: To show the results of the first PPC team focused on the private practice in Chile. Design/Method: According to data published by Chilean ministry of health pain relief and palliative care program, extrapolating the patient distribution in the private practice area, and assuming a similar overall survival, the estimated number of patients that could be beneficiated by this program should be between 20 and 25 per year. We count on an interdisciplinary team (nurses, kinesiologist, psychologist and physicians) able to offer care according to each patient needs: Home visit, outpatient consultation, telephone assistance, treating teams counseling, supplies provision, etc. Demographics and charateristics of our group are presented. Results: In the first 13 months of functioning, 21 cases have been evaluated (including 2 non oncologic patients) and 14 of them have been admitted to the program. Aveerage age of 8.6 years old. 8 female. Time fromadmission to program of 5 months (range 0.2-20) central nervous system tumors and relapsed leukemias are the main diagnoses. Conclusion: Chilean law guarantees a benefit to patients but their access is not properly assured. The mission of our team is to provide integral care to this patients and to become a reference team for the health insurance institions and their affiliated.
Identifier
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<a href="http://doi.org/10.1002/pbc.26591" target="_blank" rel="noreferrer">10.1002/pbc.26591</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Analgesia
Araya E
Central Nervous System Tumor
Child
Chile
Clinical Article
Counseling
Diagnosis
Doctor Patient Relation
Female
Gallastegui A
health Insurance
Home Visit
Human
Leukemia
Lopez P
Nurse
Outpatient
Overall Survival
Palliative Therapy
Pediatric Blood and Cancer
private Practice
Psychologist
Rojas N
Rosas A
School Child
Telephone
Varela J
-
Dublin Core
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Title
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Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.1002/pbc.26591" target="_blank" rel="noreferrer">http://doi.org/10.1002/pbc.26591</a>
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Title
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Utilization of palliative care in pediatric oncology: An interprofessional evaluation of knowledge, beliefs, perceived barriers, and involvement of services
Publisher
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Pediatric Blood And Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Childhood Cancer; Palliative Therapy; Adolescent; Child; Controlled Study; Data Analysis Software; Diagnosis; Doctor Patient Relation; E-mail; Family; Female; Hematology; Human; Male; Nurse; Pediatrics; Professional Standard
Creator
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Diver J; Prince-Paul M; Toly V; Bell C
Description
An account of the resource
Background: The care of pediatric patients with cancer and their families is complex and evolving. Despite significant advances in outcomes, symptoms of disease and complications of therapy continue to cause pain and other symptoms that could be improvedwith the involvement of pediatric palliative care (PPC) services. The American Academy of Pediatrics (AAP)1 and Institute of Medicine (IOM)2 have published statements and recommendations in support of collaboration with PPC services for all children with serious life-threatening and life-limiting illnesses. Additionally, PPC is recommended as a standard of care in pediatric oncology in addressing the psychosocial needs of children and adolescents with cancer and their families3. Objectives: The overall purpose of this study was to evaluate the knowledge and beliefs of pediatric oncology healthcare providers (HCPs) regarding involvement of PPC and to assess potential barriers that may interfere with its utilization. Additionally, this study evaluated the current involvement of PPC services in pediatric oncology programs that belonged to a statewide hematology alliance in a large Midwestern state. Design/Method: A cross sectional, descriptive survey design guided data collection and analysis. A survey consisting of 30 questions evaluated demographic factors, institutional resources, beliefs, perceived barriers, and current utilization practices. The Qualtrics survey was distributed via email. Data were collected from 156 HCPs (nurses, advanced practice professionals, and physicians). Analysis was completed using IBM SPSS version 24. Results: Significant variability was noted in perspectives regarding PPC and utilization when comparing respondents from various professional roles, practice environments, and among those with different education and professional experience. Over 99% of respondents stated that involving PPC benefits children, however 56% reported PPC was involved "never" or "rarely" in the care of oncology patients. The leading indications for PPC involvement were consistent with advanced disease, occurring late in the trajectory, rather than upon diagnosis as recommended. The influence of practice environments was identified in this study, with free-standing children's hospitals reporting fewer barriers and increased involvement of PPC services. Conclusion: Although progress has been made, care delivered is still not congruent with the recommendations of the AAP and IOM. Knowledge gained from this study emphasizes the important role for all HCPs in advocating for support of PPC programs, education of the public, and commitment to the involvement of PPC services while caring for pediatric oncology patients.
Identifier
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<a href="http://doi.org/10.1002/pbc.26591" target="_blank" rel="noreferrer">10.1002/pbc.26591</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Adolescent
Bell C
Child
Childhood Cancer
Controlled Study
Data Analysis Software
Diagnosis
Diver J
Doctor Patient Relation
E-mail
Family
Female
Hematology
Human
Male
Nurse
Oncology 2017 List
Palliative Therapy
Pediatric Blood and Cancer
Pediatrics
Prince-Paul M
Professional Standard
Toly V
-
Dublin Core
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Title
A name given to the resource
Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.1002/pon.4476" target="_blank" rel="noreferrer">http://doi.org/10.1002/pon.4476</a>
Dublin Core
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Title
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Preferences of advanced cancer patients for communication on anticancer treatment cessation and the transition to palliative care
Publisher
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Psycho-oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Advanced Cancer; Cancer Patient; Cancer Therapy; Female; Male; Palliative Therapy; Cancer Localization; Child; Diagnosis; Distress Syndrome; Doctor Patient Relation; Human; Life Expectancy; Major Clinical Study; Medical Record; Multiple Regression; Paternalism; Symptom
Creator
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Umezawa S; Fujimori M; Matsushima E; Kinoshita H; Uchitomi Y
Description
An account of the resource
The aim of this study was to clarify advanced cancer patients' communication preferences regarding ending anticancer treatment and transitioning to palliative care, and to explore variables associated with these preferences. Participants were 106 Japanese cancer patients who had been informed at least 1 week earlier of the cessation of their anticancer treatment. They completed a survey measuring their preferences for communication about ending anticancer treatment and transitioning to palliative care, as well as their demographic characteristics. Medical records were also examined to investigate medical characteristics. Results of the descriptive analysis indicated that patients strongly preferred their physicians to listen to their distress and concerns (96%), assure them that their painful symptoms would be controlled (97.1%), and explain the status of their illness and the physical symptoms that would likely occur in the future (95.1%). Multiple regression analyses indicated the factors associated with these preferences: telling patients to prepare mentally, and informing them of their expected life expectancy, was associated with cancer site; sustaining hope was associated with cancer site and children; and empathic paternalism was associated with duration since cancer diagnosis. The majority of patients preferred their physicians to be realistic about their likely future and to be reassured that their painful symptoms would be controlled. For patients with certain cancer sites, those with children, and those more recently diagnosed, physicians should communicate carefully and actively by providing information on life expectancy and mental preparation, sustaining hope, and behaving as empathic paternalism.
Identifier
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<a href="http://doi.org/10.1002/pon.4476" target="_blank" rel="noreferrer">10.1002/pon.4476</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Advanced Cancer
Cancer Localization
Cancer Patient
Cancer Therapy
Child
Diagnosis
Distress Syndrome
Doctor Patient Relation
Female
Fujimori M
Human
Kinoshita H
Life Expectancy
Major Clinical Study
Male
Matsushima E
Medical Record
Multiple Regression
Oncology 2017 List
Palliative Therapy
Paternalism
Psycho-Oncology
Symptom
Uchitomi Y
Umezawa S
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2016.09.012" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jpainsymman.2016.09.012</a>
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Title
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Home-Based Palliative Care for Children With Incurable Cancer: Long-term Perspectives of and Impact on General Practitioners
Publisher
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Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Cancer Epidemiology; General Practitioner; Palliative Therapy; Child; Controlled Study; Cross-sectional Study; Death; Distress Syndrome; Doctor Patient Relation; Fatigue; Human; Human Versus Animal Comparison; Major Clinical Study; Nonhuman; Pain; Panic; Powerlessness; Questionnaire; Sadness; Symptom; Thermometer
Creator
An entity primarily responsible for making the resource
van der Geest IMM; Bindels PJE; Pluijm SMF; Michiels EMC; van der Heide A; Pieters R; Darlington ASE; van den Heuvel-Eibrink MM
Description
An account of the resource
Context: Although a large percentage of children with advanced-stage cancer die at home, remarkably little information is available regarding the experience of general practitioners (GPs) with respect to providing home-based palliative care to children with incurable cancer. Objectives: The objective of this study was to explore the perspectives of GPs who care for children with advanced-stage cancer in a home-based setting. Methods: In this cross-sectional study, 144 GPs who provided home-based palliative care to 150 children with incurable cancer from 2001 through 2010 were invited to complete a questionnaire addressing their perspectives regarding: 1) symptom management, 2) collaboration with other health care professionals, 3) the child's death and care after death, and 4) impact of having provided palliative care, scored on distress thermometer (range 0-10). Results: A total of 112 GPs (78%) responded, and 91 GPs completed the questionnaire for 93 patients. The median interval between the child's death and completing the questionnaire was seven years. The most prevalent symptoms reported in the patients were fatigue (67%) and pain (61%). Difficulties with communicating with (14%), coordinating with (11%), collaborating with (11%), and contacting (2%) fellow members of the multidisciplinary treatment team were rare. Hectic (7%) and shocking (5%) situations and panic (2%) around the child's death were rare. GPs reported feelings of sadness (61%) and/or powerlessness (43%) around the time of the patient's death, and they rated their own distress level as relatively high during the terminal phase (median score 6, range 0-9.5). The majority of GPs (94%) reported that they ultimately came to terms with the child's death. Conclusion: In general, GPs appear to be satisfied with the quality of home-based palliative care that they provide pediatric patients with incurable cancer. Communication among health care professionals is generally positive and is considered important. Finally, although the death of a pediatric patient has a profound impact on the GP, the majority of GPs eventually come to terms with the child's death. Copyright _ 2017 American Academy of Hospice and Palliative Medicine.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2016.09.012" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2016.09.012</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Bindels PJE
Cancer Epidemiology
Child
Controlled Study
Cross-sectional Study
Darlington ASE
Death
Distress Syndrome
Doctor Patient Relation
Fatigue
General Practitioner
Human
Human Versus Animal Comparison
Journal of Pain and Symptom Management
Major Clinical Study
Michiels EMC
Nonhuman
Oncology 2017 List
Pain
Palliative Therapy
Panic
Pieters R
Pluijm SMF
Powerlessness
Questionnaire
Sadness
Symptom
Thermometer
van den Heuvel-Eibrink MM
van der Geest IMM
van der Heide A
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2017 List
URL Address
<a href="http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e22024" target="_blank" rel="noreferrer">http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e22024</a>
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Title
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Characterizing social worker and chaplain interactions with parents of critically ill children with cancer
Publisher
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Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Cancer Epidemiology; Clergy; Critically Ill Patient; Female; Male; Social Worker; Child; Clinical Article; Content Analysis; Doctor Patient Relation; Family Study; Human; Mortality; Palliative Therapy; Pediatric Intensive Care Unit
Creator
An entity primarily responsible for making the resource
Lentini N; Martinez E; Michelson K
Description
An account of the resource
Background: Parents of children with cancer admitted to the pediatric intensive care unit (PICU) often obtain support from social workers and/or chaplains (SWs/Cs). Yet, empirical work describing the roles and activities of SWs/Cs caring for patients in the PICU is lacking. This study examined the roles of SWs/Cs caring for critically ill children with cancer and their families. Methods: Parents of patients with cancer expected to have a PICU stay > 72 hours, ongoing involvement with palliative care, or a pediatric index of mortality score > 4 were invited to participate. These criteria were meant to identify patients with more complicated PICU admissions. The SWs/Cs caring for these families in the PICU were also invited to participate. SWs/Cs audio recorded information about their encounters with parents and patients, specifically, who was present, the kinds of supports provided, and the discussion topics. These recordings were analyzed using content analysis resulting in broad categories describing support provided to the families by SWs/Cs. Results: In total, 3 SWs and 3 Cs submitted recordings about 34 encounters with families of 9 patients. Categories of activities and supports identified from these recordings included: discussing the child's condition, assessing parent or child coping, assessing the role of faith, discussing communication between parents and the medical team or advocating for the family with the medical team, providing emotional support to patients and families, discussing concerns outside of the hospital (family, financial, work), and providing legal and/or logistical support. SWs/Cs, in general, provided very similar services to families. Conclusions: SWs and Cs caring for PICU patients with cancer and their families have overlapping roles in providing emotional, communication, and logistical support. Future work will identify barriers and facilitators to SWs and Cs providing support to critically ill children with cancer.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e22024" target="_blank" rel="noreferrer">e22024</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Cancer Epidemiology
Child
Clergy
Clinical Article
Content Analysis
Critically Ill Patient
Doctor Patient Relation
Family Study
Female
Human
Journal Of Clinical Oncology
Lentini N
Male
Martinez E
Michelson K
Mortality
Oncology 2017 List
Palliative Therapy
Pediatric Intensive Care Unit
Social Worker
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2017 List
URL Address
<a href="http://doi.org/10.1038/jp.2017.77" target="_blank" rel="noreferrer">http://doi.org/10.1038/jp.2017.77</a>
Notes
<p>Using Smart Source Parsing<br />( (pp 2017. Date of Publication: 01 Oct 2017</p>
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Title
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Approaches to end-of-life discussions with parents of a profoundly compromised newborn
Publisher
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Journal Of Perinatology
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Bioethics; Doctor Patient Relation; Parental Attitude; Terminal Care; Family Decision Making; Human; Interpersonal Communication; Newborn; Note; Patient Autonomy; Physician Attitude; Prognosis
Creator
An entity primarily responsible for making the resource
Paris JJ; Pai V; Cummings BM; Batten J; Benitz WE
Identifier
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<a href="http://doi.org/10.1038/jp.2017.77" target="_blank" rel="noreferrer">10.1038/jp.2017.77</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Batten J
Benitz WE
Bioethics
Cummings BM
December 2017 List
Doctor Patient Relation
Family Decision Making
Human
Interpersonal Communication
Journal Of Perinatology
Newborn
Note
Pai V
Parental Attitude
Paris JJ
Patient Autonomy
Physician Attitude
Prognosis
Terminal Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2017 List
URL Address
<a></a> <a href="http://doi.org/10.1177/1049909115617140" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049909115617140</a>
Notes
<p>Using Smart Source Parsing<br />( (pp Date of Publication: 01 Apr 2017</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Discussing Serious News
Publisher
An entity responsible for making the resource available
The American Journal Of Hospice & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Education; Interpersonal Communication; Procedures; Psychology; Adult; Bereavement; Doctor Patient Relation; Emotion; Empathy; Female; Hospital; Human; Male; Medical Education; Palliative Therapy; Parent; Pediatrics
Creator
An entity primarily responsible for making the resource
Flint H; Meyer M; Hossain M; Klein M
Description
An account of the resource
AIM: The ability to communicate serious news to patients and families in a caring and compassionate way is a critical skill for physicians. This study explores the impact of a novel communication skills workshop that included bereaved parents in role play on pediatric residents' confidence to communicate serious news. METHODS: Following the workshop, pediatric residents were surveyed to assess their perceived efficacy of the educational intervention. The survey included anchored response and open-ended questions to yield qualitative and quantitative results. RESULTS: After completing the workshop, residents' confidence in discussing goals, managing emotions, and expressing empathy all increased significantly. Residents reported that the inclusion of bereaved parents was beneficial since it made the experience more realistic. In addition, they believed their ability to communicate with patients and families had improved. CONCLUSIONS: Including bereaved parents in this communication skills workshop improved the residents' confidence in discussing serious topics and enhanced the reality of the experience.
Identifier
An unambiguous reference to the resource within a given context
<a></a> <a href="http://doi.org/10.1177/1049909115617140" target="_blank" rel="noreferrer">10.1177/1049909115617140</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Adult
Bereavement
December 2017 List
Doctor Patient Relation
Education
Emotion
Empathy
Female
Flint H
Hospital
Hossain M
Human
Interpersonal Communication
Klein M
Male
Medical Education
Meyer M
Palliative Therapy
Parent
Pediatrics
Procedures
Psychology
The American Journal of Hospice & Palliative Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2017 List
Notes
<p>Using Smart Source Parsing ( (pp 156), Date of Publication: Autumn 2006</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pain In Children
Publisher
An entity responsible for making the resource available
Pain Research And Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child Health Care; Pain/pc [prevention]; Canada; Childhood Disease; Clinical Research; Dermatome; Diagnostic Accuracy; Diagnostic Value; Doctor Patient Relation; Editorial; Education Program; Epidural Catheter; Human; Medical Literature; Nerve Block; Pain Assessment; Palliative Therapy; Patient Safety; Pediatric Anesthesia; Self Report
Creator
An entity primarily responsible for making the resource
Finley G A
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2006
Canada
Child Health Care
Childhood Disease
Clinical Research
Dermatome
Diagnostic Accuracy
Diagnostic Value
Doctor Patient Relation
Editorial
Education Program
Epidural Catheter
Finley G A
Human
Medical Literature
Nerve Block
Pain Assessment
Pain Research And Management
Pain/pc [prevention]
Palliative Therapy
Patient Safety
Pediatric Anesthesia
Self Report
September 2017 List
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Experience Of Providing End Of Life Care At A Children's Hospice: A Qualitative Study
Publisher
An entity responsible for making the resource available
Bmc Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Hospice; Qualitative Research; Terminal Care; Child; Clinical Article; Controlled Study; Doctor Patient Relation; Education; Human; Human Tissue; Interview; Model; Palliative Therapy; Sampling; Symptom; Thematic Analysis
Creator
An entity primarily responsible for making the resource
McConnell T; Porter S
Identifier
An unambiguous reference to the resource within a given context
10.1186/s12904-017-0189-9
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
April 2017 List
BMC Palliative Care
Child
Clinical Article
Controlled Study
Doctor Patient Relation
Education
Hospice
Human
Human Tissue
Interview
McConnell T
Model
Palliative Therapy
Porter S
Qualitative Research
Sampling
Symptom
Terminal Care
Thematic Analysis
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2017 List
Notes
<p>Using Smart Source Parsing<br />Date of Publication: 2017</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
End-of-life And Bereavement Care In Pediatric Intensive Care Units
Publisher
An entity responsible for making the resource available
Pediatric Clinics Of North America
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Bereavement Support; Child Death; Family Interaction; Pediatric Intensive Care Unit; Child; Clinical Study; Doctor Patient Relation; Female; Health; Human; Male; Pain; Sound; Terminal Care; United States
Creator
An entity primarily responsible for making the resource
Suttle M; Jenkins T L; Tamburro R F
Description
An account of the resource
Most childhood deaths in the United States occur in hospitals. Pediatric intensive care clinicians must anticipate and effectively treat dying children's pain and suffering and support the psychosocial and spiritual needs of families. These actions may help family members adjust to their loss, particularly bereaved parents who often experience reduced mental and physical health. Candid and compassionate communication is paramount to successful end-of-life (EOL) care as is creating an environment that fosters meaningful family interaction. EOL care in the pediatric intensive care unit is associated with challenging ethical issues, of which clinicians must maintain a sound and working understanding.
Identifier
An unambiguous reference to the resource within a given context
10.1016/j.pcl.2017.06.012
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Bereavement Support
Child
Child Death
Clinical Study
Doctor Patient Relation
Family Interaction
Female
Health
Human
Jenkins T L
Male
October 2017 List
Pain
Pediatric Clinics of North America
Pediatric Intensive Care Unit
Sound
Suttle M
Tamburro R F
Terminal Care
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
How Do Neonatal Units Support Siblings Following Loss?-a National Survey
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Sibling; Bereavement Support; Counselor; Doctor Patient Relation; England; Hospice; Human; Human Experiment; Model; Neonatal Intensive Care Unit; Newborn; Newborn Death; Nurse; Psychologist; Social Welfare; Terminal Care
Creator
An entity primarily responsible for making the resource
Henderson R; Minchella S; Vasudevan C
Description
An account of the resource
Background Supporting siblings following loss of an infant is increasingly recognised as an important aspect of neonatal bereavement support. The grief process in children is often complicated by feelings of loss, guilt as well insecurity about their parental wellbeing. There are some existing recommendations from both the Royal College of Paediatrics and Child Health and the British Association of Perinatal Medicine on the various aspects of family support but there is great variation in practice when it comes to supporting siblings following loss of a neonate. Aims/objectives The aim of this study was to explore the practices across all the Neonatal Intensive Care Units (NICUs) in England focussing on sibling support following neonatal loss. We studied the interventions, support systems and resources available for bereaved siblings within the neonatal service. Methodology We conducted a structured telephonic survey of all the 44 NICUs in England. A proforma was used and specific questions were asked from bereavement nurse within each neonatal service regarding resources, availability of multidisciplinary teams and written information on sibling support following neonatal loss. This study was completed over a period of 6 weeks between May and June 2016. The data was collected by the research team and analysed descriptively. Results Results from 39 out of the 44 NICUs. 34% of the units provide support for siblings after neonatal death. This was provided by a combination of counsellors, psychologists/family support nurse within the neonatal team. 60% involved external services including hospice or a charity organisation to provide long term support. Only 50% of units had any written materials or resources focussed on sibling support. 10% of the NICUs did not have an identified bereavement support/end of life care team. Conclusion This study identifies significant variation in practice across the NICUs in the country in terms of supporting siblings following neonatal death. It reiterates the need for a much more unified approach and sharing resources/good practice models across the different units. Sibling support should be an integral component of the bereavement support offered by neonatal services.
Identifier
An unambiguous reference to the resource within a given context
10.1136/archdischild-2017-313087.508
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Archives of Disease in Childhood
Bereavement Support
Counselor
Doctor Patient Relation
England
Henderson R
Hospice
Human
Human Experiment
Minchella S
Model
Neonatal Intensive Care Unit
Newborn
Newborn Death
Nurse
Psychologist
September 2017 List
Sibling
Social Welfare
Terminal Care
Vasudevan C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Neonatal Death In The Emergency Department: When End-of-life Care Is Needed At The Beginning Of Life
Publisher
An entity responsible for making the resource available
Clinical Pediatric Emergency Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Emergency Ward; Newborn Death; Terminal Care; Bereavement; Doctor Patient Relation; Family; Human; Infant; Newborn; United States
Creator
An entity primarily responsible for making the resource
Fry JT; Henner N
Description
An account of the resource
The death of a neonate is devastating for all involved. Each year, critically ill neonates present to emergency departments across the United States. These infants require acute medical interventions with a goal of stabilization. Despite these efforts, hundreds of infants die every year in emergency departments across the United States. Emergency care providers, unaccustomed to providing neonatal end-of-life care, may feel unsure about how to best care for families during resuscitative measures and after neonates die. There is literature to suggest that increased knowledge and advance preparation can calm fears of providers caring for patients in such tragic situations. We aim to provide in this article a broad overview of a variety of topics related to neonatal death and bereavement care. Copyright © 2016 Elsevier Inc.
Identifier
An unambiguous reference to the resource within a given context
10.1016/j.cpem.2016.04.001
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Bereavement
Clinical Pediatric Emergency Medicine
Doctor Patient Relation
Emergency Ward
Family
Fry JT
Henner N
Human
Infant
January 2017 List
Newborn
Newborn Death
Terminal Care
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Neonatal Palliative Care-alice's Journey
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Palliative Therapy; Bereavement; Bereavement Support; Child; Doctor Patient Relation; Holistic Care; Human; Infant; Infant Newborn; Medical Staff; Memory; Newborn; Newborn Intensive Care; Nursing Staff; Palliative Care; Patient Referral; Pilot Projects; Sibling; Terminal Care
Creator
An entity primarily responsible for making the resource
Rodger E; Halkett C; Murdoch E
Description
An account of the resource
Background: CHAS and NHS Lothian undertook a pilot project to review how joint working could enhance neonatal palliative care services' for families and staff. This case illustrates how collaborative working can enhance families' choices and experiences for their baby's end of life care. Aim: CHAS staff would work jointly with neonatal unit staff to deliver individualised, high quality palliative, end of life and bereavement care for babies', siblings and their families. Approach: When the neonatal team agreed that Alice had palliative care needs, a referral was made to CHAS.AA CHAS Family Support team member and the South East and Tayside (SEAT) Diana Children's Nurse agreed to work with the family and staff. Emotional and family support was provided and end of life wishes and choices were explored. The family were helped to capture memories and plans were made to help the family achieve their wish of taking Alice home to die. Outcomes: When neonatal intensive care was no longer in Alice's best interest, CHAS were able to offer choice and holistic care to the whole family. Alice's wider family were involved in memory making activities which provided them all with precious keepsakes and positive memories. With collaborative working between CHAS, NHS nursing staff, medical staff and the neonatal transport team, the family's wishes for end of life care which included taking Alice home to die were achieved. A Ongoing bereavement support for the family is available from CHAS. Conclusion: Collaborative working provides the opportunity for enhanced end of life care and support. With the support from CHAS, Alice was taken home to die and spent the last hour of her life in the loving care of her family for her first and last time in her own home.
Identifier
An unambiguous reference to the resource within a given context
https://doi.org/10.1177/0269216316631462
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Bereavement
Bereavement Support
Child
Doctor Patient Relation
Halkett C
Holistic Care
Human
Infant
Infant Newborn
May 2017 List
Medical Staff
Memory
Murdoch E
Newborn
Newborn Intensive Care
Nursing Staff
Palliative Care
Palliative Medicine
Palliative Therapy
Patient Referral
Pilot Projects
Rodger E
Sibling
Terminal Care