A music therapy model for pre-bereavement resiliency development in informal hospice caregivers: A grounded theory study.
Caregivers; Hospice; Music Therapy; Bereavement
This study was an exploratory inquiry into the role of music therapy for pre-bereaved informal hospice caregivers. Pre-bereavement has been an area of increased scholarly and clinical focus across multiple healthcare fields over the past decade, and a nascent area of interest in music therapy. The purpose of this study was to expand the existing knowledge base of what pre-bereavement needs are present for informal hospice caregivers, which of those needs were addressed in music, and the process by which music therapy addressed those needs. A constructivist grounded theory approach using situational analysis was used to establish an emergent, developing theoretical model about how music therapy can be most effective and meaningful for pre-bereaved caregivers. Fourteen currently bereaved informal caregivers who experienced joint music therapy sessions with the care recipient were interviewed about their pre-bereavement needs, which of those were addressed by music therapy, and how music therapy assisted in those areas of need. Analysis of this data resulted in a model of pre-bereavement resiliency development in informal hospice caregivers. Caregivers are at risk of losing touch with the meaning attached to their pre-illness relationship with the care recipient (e.g., spouse, parent or child), and music therapy is able to facilitate a clinical process whereby caregivers are able to reconnect with being spouse, parent or child. Once this connection is established, caregivers experience increased resilience in the face of daily caregiver responsibilities and challenges. (PsycINFO Database Record (c) 2017 APA, all rights reserved)
Potvin N
Dissertation Abstracts International: Section B: The Sciences And Engineering
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
n/a; <a href="https://idea.library.drexel.edu/islandora/object/idea%3A7129" target="_blank" rel="noreferrer">link</a>
Handprints on the soul: The impact of legacy building interventions on bereaved families.
Bereavement; Health Personnel; Family; Adulthood (18 Yrs & Older)
When a child has a terminal diagnosis, the intervention of legacy building is offered as a standard of care in all of the 77 teaching children's hospitals in the United States. Legacy building is a group of activities designed to create tangible items, such as hand and foot prints, locks of hair, or scrapbooks, to promote meaning making for dying individuals, while also providing support to family and friends. Nevertheless, research has yet to identify the benefits of such interventions for the surviving immediate family. Thus, the purpose of this study is to examine the impacts of legacy building interventions on bereaved parents and siblings. Specifically, how do legacy building interventions facilitated by healthcare professionals impact bereavement for the immediate family? A qualitative thematic analysis approach was taken to address the research question. A total of 16 participants representing 8 families, consisting of 11 parents and 5 siblings participated in semistructured interviews. Thematic analysis was utilized and developed into 4 major parent themes emerged: (a) Introduction of legacy building, (b) Experience of legacy building items, (c) Psycho-social care, and (d) Maintaining connection. Additionally, 4 major sibling themes emerged which are (a) Experiences with legacy building items, (b) Sibling grief, (c) Psycho-social care, and (d) Maintaining connection. Implications for clinical practice will be discussed as well as future research. (PsycINFO Database Record (c) 2017 APA, all rights reserved)
Leigh K
Dissertation Abstracts International: Section B: The Sciences And Engineering
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="https://search.proquest.com/docview/1868839964" target="_blank" rel="noreferrer">10246165</a>
The impact of palliative care on health status in HIV-positive children.
Hiv; Palliative Care; Drug Therapy; Childhood (birth-12 Yrs)
HIV-positive children in sub-Saharan Africa have numerous challenges to overcome. These challenges increase psychosocial stress as well as symptom burden including fatigue, weight loss, pain, and mental changes. The symptoms may persist even after initiation of antiretroviral therapy, so such children need additional care. Palliative care lays emphasis on holistic patient-centered care, including physical, psychological, social, and spiritual symptoms, alongside antiretroviral therapy. There is limited data on the impact of integrating palliative care with standard HIV care and treatment in children. The purpose of this study was to fill the gap in the literature by investigating the impact of palliative care on health status in HIV-positive children on antiretroviral therapy. The theoretical framework was based on the humanistic nursing theory. Using the Mann Whitney U and logistic regression tests, the health-related quality of life of 97 children who received palliative care in addition to standard HIV care was compared to 180 HIV-positive children who received standard HIV care only through chart reviews. According to study results, children receiving palliative care alongside antiretroviral therapy have better physical and psychosocial health compared to children receiving only antiretroviral therapy. Increasing age was a contributing factor to better psychosocial and physical health in patients receiving palliative care. Emotional, social, and school functioning are important factors that determine treatment outcomes in children on antiretroviral therapy, and addressing those factors through palliative care will create a positive social change by improving treatment outcomes, quality of life, and longevity. (PsycINFO Database Record (c) 2017 APA, all rights reserved)
Ahmed AA
Dissertation Abstracts International: Section B: The Sciences And Engineering
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://scholarworks.waldenu.edu/dissertations/3271/" target="_blank" rel="noreferrer">http://scholarworks.waldenu.edu/dissertations/3271/</a>
The lived experiences of nurses caring for patients at the end of life in clinical settings.
Life Experiences; Nurses; Palliative Care; Terminally Ill Patients; Health Maintenance Organizations; Adulthood (18 Yrs & Older)
Abstract. Background: End-of-life care has become the focus of most health care organizations due to the increasing number of patients who are living longer with chronic and terminal diseases. Today, patients are more involved in the discussion towards end-of-life care, and nurses are the ones who provide this care. Most studies that explore the experiences of nurses providing end-of-life care focused mostly on nurses working in oncology and pediatrics. These studies suggested that nurses caring for patients at the end of life lack formal training in end-of-life care. This lack of knowledge and training was perceived to have a negative impact on patients' care. These studies, however, lack generalization, as nurses in varies clinical settings other than oncology and pediatric will likely care for a dying patient at some point in their nursing career. Purpose: The purpose of this study explored the lived experiences of nurses who provide care to patients at the end of life. Exploring the nurses' experiences in various clinical settings, such as an acute care and long-term care facilities will bring more knowledge and a deeper understanding about the essence of the experience of nurses who provide end-of-life care to dying patients. This study has the potential to provide information on nurses’ experiences in order to develop end-of-life care educational programs for nursing students based on nurses’ needs. Methods: This study was guided by Moustakas's (1994) Transcendental Phenomenological approach to phenomenology. The target population was registered nurses and licensed practical nurses who experienced caring for dying patients and have had no prior education or training in palliative or hospice care, post nursing school graduation. Results: From the experiences of 16 nurses who provides end of life care in clinical settings, one primary theme and three subthemes were identified. Conclusion: Experiences of nurses’ generosity as described in kind acts and empathetic behavior and their commitment to patients who are dying, illustrates the essence of dedication. Daily interactions support their commitment to patients and competence increase their confidence and improve the skills needed to create a balance between daily work challenges and patient's care. The results of this study supports the need for nurse educators and employers to provide more opportunities to end life care educational programs for professional nurses and nursing students. (PsycINFO Database Record (c) 2017 APA, all rights reserved)
O'Connor D
Dissertation Abstracts International: Section B: The Sciences And Engineering
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="https://search.proquest.com/openview/1d3f712e02d91cac886888bfed0acdc1/1?pq-origsite=gscholar&cbl=18750&diss=y" target="_blank" rel="noreferrer">10260393</a>