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Tags: 2024, Adolescent, Adult, Alvey J, Ames SG, Child, Delaney RK, Delgado-Corcoran C, Developmental Medicine and Child Neurology, Disabled Children, Disabled Persons, February List 2025, Female, Houtrow AJ, Humans, Male, Middle Aged, Murphy N, Parents, Parents/px [psychology], Poverty, Qualitative Research, racism, Social Discrimination, Trust, United States, Watt MH
Tags: 2005, Adolescent, Backlog, Berman S, Child, Cohort Studies, Colorado, Costs And Cost Analysis, Disabled Children, Dryer LJ, Elias E, Exceptional, Female, Health Expenditures, Health Maintenance Organizations/economics/utilization, Health Resources/statistics & numerical data, Health Services Needs and Demand/economics, Hospital Costs, Hospital Departments/economics/utilization, Hospital/economics/utilization, Hospitalization/statistics & numerical data, Hospitals, Humans, Infant, Inpatients, Jones MD, Journal Article, Laboratories, Male, Medicaid/economics/utilization, Medical/economics, Moore L, Needs Assessment/economics, Newborn, Outpatient Clinics, Outpatients, Pediatric/economics/organization & administration, Pediatrics, Preschool, Primary Health Care/economics/utilization, Rannie M, Specialties
Tags: 2001, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Callahan ST, Chronic Disease/therapy, Continuity Of Patient Care/organization & Administration, Current Opinion In Pediatrics, Disabled Children, Humans, Internet, Journal Article, Keenan P, Models, Needs Assessment, Organizational, Professional-patient Relations, Self Care, United States, Winitzer RF
Tags: 2008, Backlog, Carnevale FA, Child Care, Cost Of Illness, Disabled Children, Health Services Needs And Demand, Healthcare Disparities, Home Nursing, Humans, Journal Article, Journal Of Child Health Care, Kirk S, Life Support Care, Long-Term Care, McKeever P, Parents, Patient Care Team, Pediatric Nursing, Rehm RS, Social Support, Special
Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan
Tags: 2006, Adolescent, Anthropometry, Backlog, Carr LJ, Cass H, Child, Cognition Disorders/epidemiology, Craig GM, Developmental Medicine and Child Neurology, Diet Records, Disabled Children, Female, Gastrostomy/statistics & numerical data, Hastings RP, Health Status, Humans, Infant, Journal Article, Lawson M, Male, Motor Skills Disorders/epidemiology, Nutritional Failure, Nutritional Status, Postoperative Complications/epidemiology, Preschool, Prospective Studies, Psychology, Reilly S, Ryan M, Spitz L, Townsend J
Tags: 2003, Backlog, Catastrophic Illness/nursing, Cheater F, Child, Child Health Services/organization & administration, Communication, Community Health Nursing/education/organization & administration, Community Networks/organization & administration, Continuity Of Patient Care, Danvers L, Disabled Children, England, Freshwater D, Humans, Journal Article, Journal of Clinical Nursing, Longitudinal Studies, Nursing Evaluation Research, Staff Development, Wilson A
Tags: (II) doing and being with others: expanding my social life, (III) improving my child's quality of life, (IV) household management: organizing time and resources, (V) balancing work, 2005, Adult Child, American Journal Of Occupational Therapy, and community responsibilities, Backlog, Crowe TK, Disabled Children, Donovan JM, Emotions, Employment Female, Goals Humans Middle Aged Mothers/, Home, Journal Article, Keefe EB, Non-U.S. Gov't Retrospective Studies, PedPal Lit, psychology New Mexico Research Support, Social Behavior, VanLeit BJ
Tags: 2001, Adolescent, Backlog, Child, Chronic Disease, Disabled Children, Eiser C, Female, Great Britain, Health Services Research, Health Status Indicators, Health Technology Assessment (winchester, England), Humans, Journal Article, Male, Morse R, Preschool, Quality Of Life, Self Assessment (Psychology)
Tags: 2018, Archives of Disease in Childhood, Cause Of Death, Congenital Abnormalities/mortality, congenital anomaly, Consanguinity, Death Certificates, Disabled Children, England/epidemiology, Ethnic Groups/statistics & numerical data, Ethnicity, Female, Firth C, Humans, Infant, Infant Death, Infant Mortality, Infant Mortality/ethnology, Male, Maternal Age, Newborn, Oddie SJ, Petherick E, Retrospective Studies, September 2019 List
Tags: 2000, Adolescent, Backlog, Biological Markers/blood, Bjerve KS, Case-Control Studies, Child, Child Nutrition, Dietary Supplements, Disabled Children, Ek J, Essential/administration & dosage/blood, Fatty Acids, Female, Hals J, Humans, Journal Article, Male, Mentally Disabled Persons, Nilsen H, Phospholipids/blood, Preschool, Prospective Studies, Svalastog AG, The British Journal Of Nutrition
Tags: 2015, Adolescent, Backlog, Brown E, Chambers L, Chesworth B, Child, Child Health Services, Children’s participation, Coad J, Disabled Children, Family, Focus Groups, Hacking S, Health Services Needs And Demand, Health Services Research, Humans, Hunt A, Interviews As Topic, Journal Article, Journal Of Child Health Care, Palliative Care, Quality Of Care, Referral And Consultation, Staniszewska S
Tags: 2004, Adolescent, Analgesia, Backlog, Brady M, Child, Communication Disorders, Crichton N, Developmental Medicine and Child Neurology, Disabled Children, Female, Goldman A, Humans, Hunt A, Infant, Journal Article, Male, Mastroyannopoulou K, Moffat V, Nervous System Diseases/complications, Non-U.S. Gov't, Operative, Oulton K, Pain Measurement/methods, Preschool, Q3 Scoping Review Results, Reproducibility of Results, Research Support, Seers K, Sensitivity and Specificity, Surgical Procedures
Tags: 2004, Adolescent, Adolescent Transitions, Adult, Attitudes, Backlog, Canada, Cardiology/statistics & numerical data, Congenital/therapy, Continuity Of Patient Care/statistics & Numerical Data, Cross-sectional Studies, Disabled Children, Female, Health Knowledge, Heart Defects, Humans, Irvine MJ, Journal Article, Male, McCrindle BW, Patient Transfer/statistics & numerical data, Pediatrics, Pediatrics/statistics & numerical data, Practice, Ritvo PG, Sananes R, Siu SC, Webb GD
Tags: 2000, Backlog, Child, Circadian Rhythm/drug effects, Circadian Rhythm/drug therapy/etiology, Disabled Children, Drug Administration Schedule, Female, Humans, Infant, Jan MM, Journal Article, Male, Melatonin/administration & dosage, Mental Retardation/drug therapy/etiology, Pediatric Neurology, Preschool, Prospective Studies, Q3 Scoping Review Results, Sleep Disorders, Wakefulness/drug effects
Tags: 2006, Adolescent, Adult, Backlog, Bone/etiology/nursing, Bower C, Caregivers/psychology, Child, de Klerk N, Disabled Children, Emotions, Employment, Family Health, Family Relations, Female, Fractures, Health Status, Humans, Journal Article, Laurvick CL, Leonard H, Male, Mental Health, Middle Aged, Mother-child Relations, Msall ME, Pediatrics, Preschool, Psychological, Rett Syndrome/complications/nursing, Silburn S, Social Support, Stress, Telemeres
Tags: 2009, Adolescent, Adolescent Transitions, Backlog, Cash A, Child, Child Health Services/standards/trends, Cross-sectional Studies, Delivery of Health Care/methods/standards/trends, Disabled Children, Female, Ghandour R, Health Care Surveys/methods/standards/trends, Health Planning/methods/standards/trends, Health Services Needs and Demand/standards/trends, Humans, Journal Article, Lotstein DS, Male, McGuire E, Needs Assessment/standards/trends, Newacheck P, Pediatrics, Strickland B, United States/epidemiology
Tags: 2016, Adaptation Psychological, Attitude Of Health Personnel, BMC Palliative Care, Child, Child Family Qualitative Research, Child Health Services, Claire Quinn, Critical Illness/psychology, Des Cawley, Disabled Children, Family/psychology, Female, Frances Howlin, Hospice And Palliative Care Nursing, Hospice Care/psychology, Humans, Interviews As Topic, Jay Berry, Male, Maria Brenner, Michael Connolly, Nurses/psychology, October 2016 List, Pilot Projects
Tags: 2022, 2024 SE2 - Parent Perspectives, Arai J, Caregivers, Child, Chronic Disease, Cross-sectional Studies, Disabled Children, Health Service, Hirasawa A, Humans, Japan/epidemiology, Matsuzawa A, Parents, Patient Acceptance of Health Care, Pediatrics International, Quality Of Life, Shiroki Y, Technology
Tags: 2018, Adolescent, Adult, Caregivers/psychology, Child, Child Preschool, Death, Decision Making, Decision-making, Disabled Children, Female, Golden SL, Gower WA, Grandparents/psychology, home care services, Humans, Infant, Journal of Pediatrics, King NMP, Life-sustaining treatments, Male, May 2019 List, Middle Aged, Nageswaran S, Outcomes, Parents/psychology, Pediatrics, Qualitative Research, Quality Of Life, Tracheostomy, Young Adult
Tags: 2024, Adult, Albertini FE, Career Choice, Child, Child Preschool, Disabled Children, Disabled Children/px [Psychology], Disabled Children/sn [Statistics & Numerical Data], Employment/px [Psychology], Employment/sn [Statistics & Numerical Data], February List 2025, Female, Humans, Middle Aged, Mothers, Mothers/px [Psychology], Mothers/sn [Statistics & Numerical Data], Norway, Osterud KL, Qualitative Research, Skjonsberg EE, Social Science and Medicine, Social Welfare/px [Psychology]
Tags: 2006, Activities of Daily Living, Backlog, Bjorbaekmo W, Caregivers, Carlberg EB, Child, Disability And Rehabilitation, Disability Evaluation, Disabled Children, Humans, Interpersonal Relations, Journal Article, Mobility Limitation, Østensjø S, PEDI Study, Psychometrics, Self Care, Vøllestad NK
Tags: 1998, Adolescent, Adult, Backlog, Cerebral Palsy/mortality, Child, Disabled Children, Enteral Nutrition, Female, Humans, Infant, Institutionalized, Journal Article, Kasnicka I, Lewis S, Male, Mental Retardation, Moller D, Nervous System Diseases/mortality, Plioplys AV, Preschool, Skilled Nursing Facilities, Southern Medical Journal, Survival Rate
Tags: 2006, Adolescent, Archives de Pediatrie, Backlog, Botulinum Toxin Type A/administration & dosage, Brain Damage, Capito C, Child, Chronic/complications/therapy, Disabled Children, Enteral Nutrition, Follow-up Studies, France, Fundoplication, Gastric Acidity Determination, Gastroesophageal Reflux/complications/therapy, Gastroscopy, Heloury Y, Humans, Infant, Injections, Intramuscular, Journal Article, Leclair MD, Podevin G, Preschool, Prospective Studies, Protein-Energy Malnutrition/etiology/therapy, Q3 Scoping Review Results, Treatment Outcome
Tags: 2004, Backlog, Child, Child Health Services/manpower/organization & administration, Disabled Children, Female, Health Personnel, Hospital Departments, Humans, Hundt GL, Infant, Journal Article, London, Male, Manaras I, Miller 2009 BMC HSR Refs, Parents/psychology, Patient Care Team, Patient Satisfaction, Pediatrics, Preschool, Questionnaires, Rahi JS, Social Work, Tuomainen H, Vision Disorders/diagnosis/psychology
Tags: 2005, Adaptation, Adult, Backlog, Brehaut J, Caregivers/psychology, Cerebral Palsy/psychology, Child, Child Behavior Disorders/etiology, Cohort Studies, Disabled Children, Family Health, Female, Foster Home Care, Humans, Journal Article, Longitudinal Studies, Male, Middle Aged, Models, O'Donnell M, Ontario, Parent-child Relations, Parents, Pediatrics, Professional-patient Relations, Psychological, Psychological/epidemiology/etiology, Questionnaires, Raina P, Rosenbaum P, Russell D, Self Concept, Severity Of Illness Index, Social Support, Stress, Swinton M, Theoretical, Walter SD, Wood E, Zhu Bin
Tags: 2004, Adaptation, Backlog, Bmc Pediatrics, Brehaut J, Caregivers/psychology, Child, Disabled Children, Humans, Journal Article, King G, King S, Longitudinal Studies, Models, Non-U.S. Gov't, O'Donnell ME, Parents/psychology, Psychological, Raina P, Research Support, Rosenbaum P, Russell D, Schwellnus H, Stress, Swinton M, Walter SD, Wong M, Wood E
Tags: 2003, Backlog, Child, Children W/SNI, Cognition Disorders/complications/nursing, Curley MA, Disabled Children, Humans, Infant, Journal Article, Journal of Pediatric Nursing, Male, Nonverbal Communication, Nursing Evaluation Research, Pain Measurement/instrumentation/nursing/standards, Pain/etiology/nursing, Parent-child Relations, Pediatric Nursing/instrumentation/methods, Preschool, Professional-family Relations, Reproducibility of Results, Solodiuk J
Tags: 2002, Adolescent, Anthropometry, Backlog, Brain Damage, Child, Child Nutrition Disorders/diagnosis, Chronic/diagnosis, Developmental Disabilities/diagnosis, Developmental Medicine and Child Neurology, Disabled Children, Eating Disorders/diagnosis/etiology, Failure to Thrive/diagnosis/etiology, Female, Ford-Adams ME, Humans, Johnson A, Journal Article, Juszczak E, Lambert BR, Male, Nutrition Assessment, Nutritional Failure, Preschool, Rose M, Sullivan P
Tags: 2000, Adolescent, Backlog, Child, Cross-sectional Studies, Developmental Medicine and Child Neurology, Disabled Children, Feeding and Eating Disorders of Childhood/epidemiology/etiology, Female, Ford-Adams ME, Griffiths P, Humans, Johnson A, Journal Article, Lambert B, Male, Nervous System Diseases/complications, Non-U.S. Gov't, Nutrition Disorders/epidemiology/etiology, Parent-child Relations, Preschool, Prevalence, Research Support, Rose M, Severity Of Illness Index, Sullivan P
Tags: 2024, Adult, Article, Bourque CJ, Canada, Canadian, Chartrand C, Child, Children With Medical Complexity, complex care, Complex care program, Couture K, Delivery of Health Care, Disabled child, Disabled Children, Doré-Bergeron MJ, emergency department visit, empowerment, Female, Fiscaletti M, Fregeau S, Gaucher N, Health Care Cost, Health Care Delivery, Hospitalization, Human, Interview, Kleiber N, Length Of Stay, Male, Marano M, Multidisciplinary team, November List 2024, Nurse, Paediatrics And Child Health, Patient centred care, person centered care, Saad L, Semi Structured Interview, Thematic Analysis, Thibault LP, University Hospital