1 40 1 Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month Backlog URL Address <a href="http://doi.org/10.1136/bmjspcare-2014-000653.17" target="_blank" rel="noreferrer">http://doi.org/10.1136/bmjspcare-2014-000653.17</a> <a href="http://spcare.bmj.com/content/4/1/110.3" target="_blank" rel="noreferrer">http://spcare.bmj.com/content/4/1/110.3</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Recruiting Parents to Paediatric Palliative Care Research: Impact of Low Invitation Rates on Sample Bias Publisher An entity responsible for making the resource available Bmj Supportive & Palliative Care Date A point or period of time associated with an event in the lifecycle of the resource 2014 Subject The topic of the resource Supportive care Creator An entity primarily responsible for making the resource Crocker JC; Beecham EC; Kelly P; Dinsdale AD; Hemsley J; Jones L; Bluebond-Langner M Description An account of the resource Introduction Recruitment in paediatric palliative care is widely reported as challenging, with low rates of invitation by clinicians. The impact of this on sample bias is unknown. Aim(s) and method(s) We studied recruitment to a qualitative interview study about parental decision making for children cared for by a specialist palliative care (PC) team. PC clinicians were encouraged to introduce the study to parents over 12 months. With ethical approval, we used information from the PC team database and feedback from clinicians to explore the impact of low invitation rates on sample bias. Results The families of 519 living and 73 deceased patients were retrospectively identified as potentially eligible for recruitment. Clinicians invited parents of 28 (5.4%) living patients compared to 21 (28.8%) deceased patients (p=0.0001). On multivariable analyses, there was no association between patient demographics and invitation, but for living patients, total and out-of-hours contact time between family and PC team while eligible were independently associated with invitation (p<0.05). The most common reasons clinicians gave for not inviting parents of living and deceased patients were little or no contact with them and perceived burden. Conclusion(s) Invitation rates were especially low among parents of living patients. There was no evidence that this led to major demographic bias. However, the strong influence of family contact may have introduced bias potentially relevant to the project (e.g. patient stability and parent-clinician relationships) that we were unable to measure. We recommend that researchers consider levels of patient contact when planning studies requiring recruitment via clinicians. 2014-03 Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1136/bmjspcare-2014-000653.17" target="_blank" rel="noreferrer">10.1136/bmjspcare-2014-000653.17</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). Type The nature or genre of the resource Journal Article 2014 Backlog Beecham EC Bluebond-Langner M BMJ Supportive & Palliative Care Crocker JC Dinsdale AD Hemsley J Jones L Journal Article Kelly P Supportive Care