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Text
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<a href="http://doi.org/10.1136/archdischild-2014-307384.951" target="_blank" rel="noreferrer">http://doi.org/10.1136/archdischild-2014-307384.951</a>
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Title
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PO-0300 ‘damaged’ Bodies In The Paediatric Intensive Care Unit
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Implications For Palliative Care
Date
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2014
Creator
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Falkenburg JL; Tibboel D; Dijk M
Description
An account of the resource
http://adc.bmj.com/content/99/Suppl_2/A342.2
Background and aims Health professionals in the PICU support both child and parents when the death of a child is imminent. The aim of this contribution is to emphasise that parents can suffer from the altered physical appearance of their child (e.g. severe oedema, bruises and cuts) but physical proximity in the final hours can help them cope. Methods Parents of 24 children who died 4 to 5 years ago in the ICU were invited for a semi-structured interview. Qualitative analysis was applied with Atlas-ti 7.0. Results Parents of 14 children (response rate 58.3%) participated. The children (aged 2 weeks to 13 years) were admitted in PICU from 2 h up to 7 months. The importance of the integrity of their child’s physical appearance stood out in their narratives. Parents spoke of the ‘damaged’ body as a result of necessary medical interventions, quote: “It was terrible, after the reanimation his ribs were broken. He was looking black. It was awful, really awful.” However, getting physically close to the child in the hour of death helped, quote: “We actually crept into bed with her bed, to hold her.” Caring for the body afterwards also helped parents, quote: “After she had died I brushed her teeth like I always did when the kids were smaller. That was so good to do.” Conclusions End-of-life care asks for awareness that the child’s damaged body deeply affects parents. Yet, being able to stay physically close helps them to be the parent they want to be.
Identifier
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<a href="http://doi.org/10.1136/archdischild-2014-307384.951" target="_blank" rel="noreferrer">10.1136/archdischild-2014-307384.951</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2014
Backlog
Dijk M
Falkenburg JL
Implications For Palliative Care
Journal Article
Tibboel D
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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<a href="http://doi.org/10.1136/archdischild-2014-307384.1354" target="_blank" rel="noreferrer">http://doi.org/10.1136/archdischild-2014-307384.1354</a>
<a href="http://adc.bmj.com/content/99/Suppl_2/A489.1" target="_blank" rel="noreferrer">http://adc.bmj.com/content/99/Suppl_2/A489.1</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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PO-0719 Care Around An Infant’s Death In The Nicu
Publisher
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Archives Of Disease In Childhood
Date
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2014
Creator
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van den Berg CMC; Alferink KTM; Latour J; Falkenburg JL; Dijk M
Description
An account of the resource
Introduction Health professionals in neonatal intensive care units (NICUs) are regularly confronted with an infant’s imminent death. The death of a child is unnatural to parents and intensely affects them. Providing end-of-life care and follow-up care is important to help parents cope. The aim of this study was to explore this type of supportive care in European NICUs. Methods We designed an online survey using Survey Monkey ® including questions about visiting hours, protocols around an infant’s death and follow-up care for parents. The survey was sent to 124 nurses, physicians and nurse managers working in 24 European countries. Descriptive statistics were applied to present the results. Results The response rate was 44% (55/124), concerning 47 NICUs in 20 countries. In most NICUs (91%), parents are welcome 22 to 24 h per day to be with their child. In 93% of the NICUs parents are invited to hold their child during the dying process; in 59% of NICUs parents usually wash their child after death. With respect to remembrances given to parents: items include photographs (91%), foot or handprints (83%), lock of hair (74%) or diaries kept by the nurses (35%). In 39 NICUs (83%) parents received follow-up care; in most cases in face-to-face meetings. Conclusion Most NICUs provide supportive services to parents during the dying process of their child. We suspect some selection bias because not all European countries were represented. This is a first attempt to benchmark this sensitive practice.
2014-10
Identifier
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<a href="http://doi.org/10.1136/archdischild-2014-307384.1354" target="_blank" rel="noreferrer">10.1136/archdischild-2014-307384.1354</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Alferink KTM
Archives of Disease in Childhood
Backlog
Dijk M
Falkenburg JL
Journal Article
Latour J
van den Berg CMC