Browse Items (93 total)
- Tags: Diagnosis
Rett's syndrome: Characterization of respiratory patterns and sleep
Tags: 1987, abnormal respiratory problems, abnormal sleep patterns, Annals Of Neurology, ataxia, Autism, breathing difficulties, Central Nervous System, characteristics, Child, Dementia, Diagnosis, etiology, Frost Jr J D, Glaze D G, heredity, Human, hyperpnea, Major Clinical Study, Percy A K, Priority Journal, Respiratory System, Rett syndrome, Seizure, Sleep, sleep disturbance, Trajectory, Zoghbi H Y
Starting out in haziness': Parental experiences surrounding the diagnosis of their child's non-malignant life-limiting condition in Ireland
Evaluation of End-of-Life Care Programs at Emily's House Children's Hospice
Trends in the aggressiveness of pediatric cancer near the end-of-life
Tags: 2018, Adult, aggressiveness, Artificial Ventilation, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Death, Diagnosis, Female, Fushimi K, Hematologic Malignancy, Human, Intubation, Japan, Major Clinical Study, Male, Matsumoto K, Oncology 2019 List, Pediatric Blood and Cancer, Resuscitation, School Child, Shinjo D, Terminal Care, Yotani N, Young Adult
Musculoskeletal Injections for Palliative Treatment of Neuromuscular Hip Dysplasia patients: How I Do It
Tags: 2024, Adolescent, Amaral JZ, April List 2024, Article, Cerebral Palsy, Child, Diagnosis, Drug Administration, Drug Therapy, hip dysplasia, hip joint, Human, Kan JH, Male, oral drug administration, Palliative Care, Palliative Therapy, Pediatric Radiology, Quality Of Life, Rosenfeld SB, School Child, Schultz RJ, steroid, Surgery
Neuromuscular disorders of childhood
Tags: 1999, Andersson PB, Backlog, Charcot-Marie-Tooth Disease/diagnosis/physiopathology, Child, Current Opinion In Pediatrics, Diagnosis, Differential, Human, Journal Article, Muscular Dystrophies/diagnosis/genetics, Myasthenia Gravis/diagnosis, Neuromuscular Diseases/diagnosis/physiopathology/therapy, Peripheral Nervous System Diseases/diagnosis, Rando TA, Spinal Muscular Atrophies of Childhood/diagnosis
Diagnostic evaluation using whole-body technetium bone scan in children with cerebral palsy and pain.
Tags: 2008, Adolescent, Adult, Backlog, Bajelidze G, Belthur MV, Bone and Bones/radionuclide imaging, Cerebral Palsy/complications/radionuclide imaging, Child, Dabney Kirk W, Diagnosis, Differential, Emission-Computed, Female, Humans, Journal Article, Journal Of Pediatric Orthopedics, Littleton AG, Male, Miller F, Pain Measurement, Pain/etiology/radionuclide imaging, Preschool, Reproducibility of Results, Retrospective Studies, Severity Of Illness Index, Single-Photon/methods, Technetium/diagnostic use, Tomography, Whole Body Imaging/methods
Problematic Symptoms In Children Attending For Short Breaks At A Children's Hospice; Are We Missing An Opportunity For Symptom Assessment And Management?
Tags: 2017, Archives of Disease in Childhood, Balfe J M, Booth A, Child, Clinical Article, Clinical Nurse Specialist, Diagnosis, Family Study, Female, Health Care Delivery, Hospice, Human, Information Processing, Irritability, Male, Nursing, Pain Assessment, Pediatrician, Ritchie B, School Child, Seizure, September 2017 List, Sleep, Symptom Assessment
Cerebral palsy and neurodegenerative disease
"Let's bring her home first." Patient Characteristics and Place of Death in Specialized Pediatric Palliative Home Care
An unusual clinical and biochemical presentation of ornithine transcarbamylase deficiency in a male patient
Tags: 2006, Amino Acid Metabolism, Amino Acids/blood, Backlog, Bellizzi A, Burlina AB, Burlina AP, Child, Di Palma A, Diagnosis, Differential, Fatal Outcome, Humans, Inborn Errors/diagnosis, Journal Article, Journal Of Inherited Metabolic Disease, Male, Morrone A, Ornithine Carbamoyltransferase Deficiency Disease/blood/diagnosis, Ornithine Carbamoyltransferase/deficiency, Orotic Acid/urine, Peduto A, Preschool, Q3 Scoping Review Results, Sperli D
Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management
Tags: 2010, Backlog, Birnkrant DJ, Bushby K, Case LE, Clemens PR, Constantin C, Cripe L, Diagnosis, Differential, DMD Care Considerations Working Group, Duchenne/diagnosis/genetics/therapy, Female, Finkel R, Glucocorticoids/administration & dosage/adverse effects/therapeutic use, Humans, Journal Article, Kaul A, Kinnett K, Lancet Neurology, Male, McDonald C, Muscular Dystrophy, Pandya S, Poysky J, Shapiro F, Tomezsko J
The caregivers' psychosocial and economic effects of caring for terminally ill patients: The case of hospice Africa Uganda
Pediatric palliative care in Sweden
Systemic carnitine deficiency--a treatable inherited lipid-storage disease presenting as Reye's syndrome
Tags: 1980, Angelini C, Backlog, Brown WJ, Carnitine/deficiency/metabolism/therapeutic use, Cederbaum SD, Chapoy PR, Child, Diagnosis, Differential, Humans, Inborn Errors/diagnosis, Journal Article, Lipid Metabolism, Liver/metabolism, Male, Muscles/metabolism, Preschool, Q3 Scoping Review Results, Reye Syndrome/diagnosis, Shug AL, Stiff JE, The New England Journal Of Medicine
The natural history of Unverricht-Lundborg disease: a report of eight genetically proven cases
Tags: 2008, Adolescent, Adult, Age Factors, Atrophy/complications/pathology, Auditory, Backlog, Bhatia KP, Brain Stem/physiology, Brain/pathology/physiopathology, Cerebellar Ataxia/complications/diagnosis, Cerebellum/pathology/physiopathology, Chew NK, Child, Chromosomes, Cordivari C, Dementia/complications/diagnosis, Diagnosis, Differential, Disease Progression, Dystonia/complications/diagnosis, Edwards MJ, Electroencephalography, Electromyography, Evoked Potentials, Evoked Potentials/physiology, Female, Human, Humans, Journal Article, Kim HT, Magnetic Resonance Imaging, Male, Martino D, Mir P, Movement Disorders: Official Journal Of The Movement Disorder Society, Myoclonus/complications/diagnosis, Neuropsychological Tests, Pair 21/genetics, Q3 Scoping Review Results, Quinn NP, Schneider SA, Seizures/complications/diagnosis, Severity Of Illness Index, Unverricht-Lundborg Syndrome/diagnosis/genetics/physiopathology
Clinical spectrum of children receiving palliative care in Malaysian Hospitals
Tags: 2017, Abdul Manaf AM, Abdul Shukor INC, Acute Lymphoblastic Leukemia, Adolescent, Adult, Alias E, Bereavement, Caregiver, Cerebral Palsy, Chieng CH, Child, Child Care, Chong LA, Chromosome, Chromosome Aberration, Clinical Trial, Congenital Malformation, Controlled Clinical Trial, Controlled Study, Cross Sectional Study, Diagnosis, Duchenne Muscular Dystrophy, Education, Female, Follow Up, Hedra ZS, Hospital, Hospital Admission, Human, Icd-10, Infant, Khalid F, Khoo TB, Kuan GL, Major Clinical Study, malaysia, Male, Malignant Neoplasm, Medical Journal Of Malaysia, Multicenter Study, Needs Assessment, Newborn, Observational Study, Ong GB, Palliative Therapy, Patient Referral, Pediatrician, Prognosis, Razali H, Review, Spinal Muscular Atrophy, Teh SH, Wang JJ
Providing cost-effective and coordinated care for children with medical complexity
Tags: 2019, administrative personnel, Adolescent, Archives of Disease in Childhood, Artificial Ventilation, Caregiver, Cerebral Palsy, Child, Chow C, conference abstract, Congenital Heart Disease, Controlled Study, Diagnosis, Fatigue, Female, Gastrostomy, Home Care, Human, limited mobility, machine, Major Clinical Study, Male, Medical Technology, Multicenter Study, Multidisciplinary team, Neuromuscular Disease, Nurse, October 2019 List, Outpatient, Pediatrician, salary, Shahdadpuri R, Stress, Tracheostomy, ventilator, working time
Fetal alcohol spectrum disorder: Canadian guidelines for diagnosis
Tags: 2005, Abnormalities, Adult, Alcohol Drinking/prevention & control, Alcoholism/diagnosis/prevention & control, Backlog, Canada/epidemiology, Canadian Medical Association Journal, Child, Chudley AE, Conry J, Cook JL, Diagnosis, Differential, Ethanol, Female, Fetal Alcohol Syndrome/diagnosis/epidemiology/prevention & control, Humans, Infant, Journal Article, LeBlanc N, Loock C, Mass Screening/standards, Medical History Taking/standards, Multiple/diagnosis, Nervous System Diseases/diagnosis, Newborn, Non-U.S. Gov't, Physical Examination/standards, Pregnancy, Pregnancy Complications/diagnosis/prevention & control, Prenatal Exposure Delayed Effects, Public Health Agency of Canada's National Advisory Committee on Fetal Alcohol Spectrum Disorder, Referral and Consultation/standards, Research Support, Risk Factors, Rosales T
Role of palliative care in fetal neurological consultations: Guiding through uncertainty and hope
Tags: 2023, August List 2029, Brain, Consultation, Cortezzo DE, Counseling, Decision Making, Diagnosis, encephalocele, Fetus, Frontiers in Pediatrics, Grief, Human, Infant, Medical Care, Neurology, Palliative Care, Palliative Therapy, Patient Care, Pregnancy, prenatal period, Prognosis, Referral And Consultation, Review, shared decision making, Shoaib A, social belief, Uncertainty, Vawter-Lee M, Venkatesan C, vignette
Frequency and Clinical Characteristics Associated With Pediatric Deaths In a Tertiary Hospital in a Developing Country - Opportunities for Pediatric Palliative Care
Tags: 2018, antibiotic therapy, Artificial Ventilation, Brain Death, Cause Of Death, Child, Clinical Feature, Comfort, conference abstract, Controlled Study, Cuervo Suarez M I, Demography, developing country, Developing World 2019 List, Diagnosis, Drug Withdrawal, Female, Garcia X, Health Care Quality, Hospital Patient, Human, Human Tissue, inotropism, Journal of Pain and Symptom Management, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record, Munoz M, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, pediatric patient, Resuscitation, Retrospective Study, Sedation, statistical analysis, Terminal Care, tertiary care center
A Survey Of Perinatal Palliative Care Programs In The United States: Structure, Processes, And Outcomes.
Perinatal palliative care (PPC) programs are proliferating nationwide, but little is known about their structure, process, or desired outcomes, to inform future program development.
OBJECTIVE:
To explicate structure, processes, and…
Utilization of palliative care in pediatric oncology: An interprofessional evaluation of knowledge, beliefs, perceived barriers, and involvement of services
Tags: 2017, Adolescent, Bell C, Child, Childhood Cancer, Controlled Study, Data Analysis Software, Diagnosis, Diver J, Doctor Patient Relation, E-mail, Family, Female, Hematology, Human, Male, Nurse, Oncology 2017 List, Palliative Therapy, Pediatric Blood and Cancer, Pediatrics, Prince-Paul M, Professional Standard, Toly V
Characteristics of a Perinatal Palliative Care Program Over 10 years
Tags: 2018, Child, Comfort, conference abstract, Controlled Study, Diagnosis, Doherty M, Dumond LG, February 2019 List, Female, Genetics, Hospice, Human, Infant, Journal of Pain and Symptom Management, Major Clinical Study, Male, Medical Record, Neonatal Intensive Care Unit, Neonatologist, obstetrician, Palliative Therapy, Patient Referral, positive end expiratory pressure, Resuscitation, Retrospective Study, Stoppels N, Williams R
New guidelines for the management of migraine in primary care
Tags: 2002, algorithms, Backlog, Current Medical Research And Opinion, Diagnosis, Differential, Dowson AJ, Humans, Journal Article, Lipscombe S, Medical History Taking, Migraine Disorders/diagnosis/prevention & control/therapy, Migraine In Primary Care Advisors (MIPCA) - Migraine Guidelines Development Group, Non-U.S. Gov't, Patient Care Team, Patient Education, Primary Health Care, Questionnaires, Rees T, Referral And Consultation, Research Support, Sender J, Watson D
Disputes over Diagnosing Death: Is It Ethical to Test for Death by Neurologic Criteria over Parental Objection?
Attention Bias Modification Treatment for Pediatric Anxiety Disorders: A Randomized Controlled Trial
Tags: 2012, Adolescents, American Journal Of Psychiatry, Anxieties, Anxiety in children, Apter A, Attentional bias, Backlog, Bar-Haim Y, Care And Treatment, Child & adolescent psychiatry, childhood, Children, Clinical outcomes, Depression, Diagnosis, Eldar S, FACIAL EXPRESSIONS, Fox NA, INDIVIDUALS, Influence, Journal Article, Lotan D, Management, MANIPULATION, Naim R, Perez-Edgar K, Pine DS, Psychiatry, THREAT, VULNERABILITY
Shared decision-making in pediatric palliative care in the Netherlands
Tags: 2024, Aae V, Advance Care Planning, Article, Child, Clinical Article, Current Problems in Pediatric and Adolescent Health Care, Cy J, Decision Making, Diagnosis, Em M, evidence based practice, Health Care Personnel, Human, Jl A, March List 2024, Mc K, Netherlands, Palliative Care, Palliative Therapy, shared decision making
Use of opioids in palliative care of children with advanced cancer
Tags: 2016, 52-26-6 (morphine), 53663-61-9 (opiate), 57-27-2 (morphine), 8002-76-4 (opiate), 8008-60-4 (opiate), Adjuvant, Advanced Cancer, Analgesia, Article, Child, Childhood Cancer, Cid Barria L, Constipation, Diagnosis, Drug Efficacy, Drug Safety, Female, Fernandez Urtubia B, Human, Major Clinical Study, Male, Medical Record, Morphine, Morphine/dt [drug Therapy], Nonsteroid Antiinflammatory Agent, Nonsteroid Antiinflammatory Agent/dt [drug Therapy], Oncology 2017 List, Opiate/dt [drug Therapy], Pain Intensity, Pain/dt [drug Therapy], Palliative Therapy, Palma Torres C, Retrospective Study, Revista Chilena De Pediatria, Rodriguez Zamora N, School Child, Sedation, Trevigno Bravo A, Visual Analog Scale
Practice parameter: screening and diagnosis of autism: report of the Quality Standards Subcommittee of the American Academy of Neurology and the Child Neurology Society
Tags: 2000, Accardo PJ, Ashwal S, Asperger Syndrome/diagnosis, Autistic Disorder/diagnosis/genetics, Backlog, Baranek GT, Child, Childhood/diagnosis, Cook EH, Dawson G, Developmental Disabilities/diagnosis, Diagnosis, Differential, Disease Management, Electrophysiology, Filipek PA, Gordon B, Gravel JS, Humans, Infant, Johnson CP, Journal Article, Kallen RJ, Lead Poisoning, Levy SE, Mass Screening/methods/standards, Minshew NJ, Nervous System, Neurology, Neuropsychological Tests, Non-U.S. Gov't, Ozonoff S, P.H.S., Predictive Value of Tests, Preschool, Prizant BM, Rapin I, Research Support, Risk Assessment, Rogers SJ, Stone WL, Teplin SW, Tuchman RF, U.S. Gov't, Volkmar FR
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis
Tags: 2023, Article, Atkin K, care behavior, Caregiver, Child, Clinical Article, Content Analysis, Diagnosis, Ewing G, Father, February List 2024, Female, Fisher V, Fraser LK, Grande G, Human, Male, Needs Assessment, Palliative Medicine, Palliative Therapy, Parent, School Child, Secondary Analysis, social media, special situation for pharmacovigilance
"I don't want this to be in my biography": A qualitative study of the experiences of grandparents losing a grandchild due to a neurological or oncological disease
Tags: 2018, August 2018 List, Becker G, Bergstrasser E, Cause Of Death, Child, Clinical Article, Comfort, conference abstract, Diagnosis, Flury M, friend, grandchild, grandparent, Human, literature, Male, Memory, Oncology, Orellana-Rios C, Palliative Medicine, Palliative Therapy, Qualitative Research, Semi Structured Interview, son, Switzerland, Terminal Care
A Qualitative Study of Parents' Experiences of Bonding in End-of-Life Care in a Neonatal Intensive Care Unit
Tags: 2023, Adult, Article, Child, Clinical Article, Content Analysis, Decision Making, Diagnosis, Edner A, February List 2024, Funkquist EL, Health Care Personnel, Human, Infant, Interview, Journal of Perinatal & Neonatal Nursing, Lindquist A, Neonatal Intensive Care Unit, Newborn, Newborn Intensive Care, Parent, parenthood, Pilot Study, Powerlessness, Qualitative Research, shame, Terminal Care
Infantile neuroaxonal dystrophy (Seitelberger's disease)
Tags: 2002, Auditory, Backlog, Brain Stem/physiology, Brain/pathology/physiopathology, Developmental Medicine and Child Neurology, Diagnosis, Differential, Disease Specific, Electroencephalography, Evoked Potentials, Gordon N, Humans, Journal Article, Magnetic Resonance Imaging, Neuroaxonal Dystrophies/complications/diagnosis, Pantothenate Kinase-Associated Neurodegeneration/diagnosis, Seizures/diagnosis/etiology, Visual/physiology
Lung disease in Niemann-Pick disease
Tags: 2007, Backlog, Biopsy, Bronchoalveolar Lavage, Bronchoalveolar Lavage Fluid/cytology, Child, Clement A, de Villemeur TB, Diagnosis, Differential, Fauroux B, Female, Guillemot N, Humans, Infant, Interstitial/diagnosis/etiology/physiopathology, Journal Article, Lung Diseases, Male, Niemann-Pick Diseases/complications, Pediatric Pulmonology, Preschool, Prognosis, Q3 Scoping Review Results, Radiography, Respiratory Function Tests, Severity Of Illness Index, Thoracic, Troadec C
Decisions in diagnosing and managing chronic gastroesophageal reflux disease in children
Discerning differences: gastroesophageal reflux and gastroesophageal reflux disease in infants
Tags: 2004, Advances in Neonatal Care, Backlog, Diagnosis, Differential Directories Gastroesophageal Reflux, Henry SM, Journal Article, Newborn Infant, Nursing, PedPal Lit, physiology Internet Nursing Assessment%X Gastroesophageal reflux (GER) is a frequently encountered problem in infancy, physiopathology, Premature, therapy Health Education Humans Infant Infant
Quality Of Care Collaborative For Paediatric Palliative Care In Australia (quocca)
Tags: 2017, anxiety, Australia, Baggio S, Burr C, Child, Clinical Trial, Delaney A, Diagnosis, Donovan L, Duc J, Duffield J, Dyspnea, Education, Family Study, Female, Fleming S, Herbert A, Heywood M, Human, Hynson J, Irving H, Johnson S, Major Clinical Study, Male, McLarty A, Momber S, Nausea, Nurse, October 2017 List, Pain, Palliative Therapy, Patient Referral, Pedersen LA, Pediatric Blood and Cancer, Phillips M, Questionnaire, Ryan S, Seizure, Slater P, Staff, Symptom, Telehealth, Terminal Care, Trethewie S