Browse Items (93 total)
- Tags: Diagnosis
Palliative care in children with spinal muscular atrophy type 1: How do they die? Results from a French multicentric study (National Hospital clinical Research Program)
Tags: 2017, 50-48-6 (amitriptyline), 52-26-6 (morphine), 549-18-8 (amitriptyline), 57-27-2 (morphine), Amitriptyline, Barnerias C, benzodiazepine derivative, Child, Clinical Article, Clinical Practice, Clinical Research, Desguerre I, Diagnosis, Drug Therapy, European Journal of Paediatric Neurology, Female, Follow Up, Hully M, Human, Infant, Intensive Care Unit, Interview, January 2018 List, Male, Morphine, Multicenter Study, nasogastric tube, Noninvasive Ventilation, Palliative Therapy, Psychologist, quantitative analysis, Resuscitation, time of death, Vanesse S, Viallard ML, Werdnig Hoffmann disease
Challenges in assessing the need for beds in palliative care-The example of inpatient hospice care for children, adolescents and young adults
Tags: 2018, Adult, Artificial Ventilation, August 2018 List, calculation, Child, conference abstract, Death, Diagnosis, disabled person, Female, Funding, Germany, Home Care, Hospice Care, Hospital Patient, Human, Jansky M, Jaspers B, Length Of Stay, Likert scale, Long Term Care, Major Clinical Study, Male, Mortality, Nauck F, occupation, Palliative Medicine, Palliative Therapy, Politics, Prevalence, psychosocial care, quantitative analysis, Resident, Semi Structured Interview, Statistics, Young Adult
Cataplexy in variant forms of Niemann-Pick disease
Tags: 1982, Adult, Annals Of Neurology, Backlog, Cataplexy/complications/diagnosis, Child, Diagnosis, Differential, Electroencephalography, Emerson RG, Epilepsy/diagnosis, Female, Humans, Journal Article, Kandt RS, Male, Moser HW, Niemann-Pick Diseases/complications/diagnosis, Ophthalmoplegia/complications, Preschool, REM, Singer HS, Sleep, Splenomegaly/complications, Valle DL
Update on genetic disorders affecting white matter
Communication and the Appraisal of Uncertainty: Exploring Parents' Communication with Credible Authorities in the Context of Chronic Childhood Illness
Palliative care referral patterns for children with cancer: A three-year retrospective study
Tags: 2018, Cancer Patient, Central Nervous System, Child, conference abstract, Diagnosis, Emergency Ward, Female, Hospice, Hospital Patient, Human, Infant, Intensive Care Unit, Kim CH, Kim MS, Korea, Leukemia, Lymphoma, Major Clinical Study, Male, Moon YJ, Oncology, Oncology 2018 List, outpatient department, Palliative Therapy, Patient Referral, Pediatric Blood and Cancer, pediatric ward, Quality Of Life, Resuscitation, Retrospective Study, School Child, Shin HY, solid malignant neoplasm, Song IG, statistical analysis, Terminal Care, time of death
Physician perspectives on end-of-life care and pediatric palliative care for children in the Republic of Korea
Tags: 2017, Adult, Advance Care Planning, Child, Cogent Medicine, conference abstract, Death, Deterioration, Diagnosis, Female, financial management, Human, Interview, June 2018 List, Kim C H, Kim M S, Life Sustaining Treatment, Male, Organization, Palliative Therapy, Perception, psychosocial care, Questionnaire, Song IG, South Korea, tertiary care center, Yu J
Early peripheral nervous system manifestations of infantile Krabbe disease
Tags: 2003, Backlog, Biopsy, Demyelinating Diseases/pathology/physiopathology, Diagnosis, Differential, Dor-Wollman T, Family Health, Female, Globoid Cell/pathology/physiopathology, Humans, Hurvitz H, Inclusion Bodies/pathology, Infant, Journal Article, Korn-Lubetzki I, Leukodystrophy, Male, Nevo Y, Pediatric Neurology, Peripheral Nervous System/pathology/physiopathology, Raas-Rothschild A, Retrospective Studies, Schwann Cells/pathology, Soffer D
Relevance of Potential Contributing Factors for the Development and Maintenance of Irritability of Unknown Origin in Pediatric Palliative Care
Myopathy with mitochondrial changes presenting as respiratory failure in two brothers
Tags: 1999, Backlog, Biopsy, Child, Diagnosis, Differential, Fatal Outcome, Humans, Interstitial/diagnosis/pathology, Journal Article, Lemos AB, Lung Diseases, Male, Mate A, Mitochondrial Myopathies/diagnosis/genetics/pathology, Mosquera J, Needle, Nuclear Family, Pediatric Pulmonology, Q3 Scoping Review Results, Respiratory Function Tests, Respiratory Insufficiency/etiology, Sirvent J
Palliative Care in the Neonatal Intensive Care Unit: An Evolutionary Concept Analysis of Uncertainty in Anticipated Loss
Tags: 2024, Advances in Neonatal Care, Article, Complication, Concept analysis, Confusion, Diagnosis, Dick T, Drug Administration, Dudding KM, Fazeli PL, Genetic Disorder, genetic screening, Human, Infant, Infant Newborn, Lenington K, March List 2024, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn Intensive Care, Nurse, Palliative Care, Palliative Therapy, Patrician P, Prognosis, Uncertainty
Improving Prenatal Palliative Care Consultation Using Diagnostic Trigger Criteria: Improving Prenatal Palliative Care Consultation through Quality Improvement
Tags: 2023, Ackerman O, Andescavage N, Article, Child, Congenital Malformation, Consultation, Controlled Study, Diagnosis, eligibility, February List 2024, Female, Fisher D, Human, Journal of Pain and Symptom Management, Lanzel AF, Lin M, Mahmood LA, outcome assessment, Palliative Therapy, Patient Referral, Pregnancy, Rholl E, Total Quality Management
Parents' perspectives on losing a child due to life-limiting diagnoses: A population-based study
Tags: 2018, Adult, August 2018 List, Cause Of Death, Child, conference abstract, Denmark, Diagnosis, directory, Distress Syndrome, Ekholm O, Female, Human, Lykke C, Major Clinical Study, Male, Malignant Neoplasm, Olsen M, Palliative Medicine, Palliative Therapy, Quality Of Life, Questionnaire, Schmiegelow K, Sjogren P, Wales, Young Adult
Surgical Intervention In Trisomy 18-supporting Pallative Care
Tags: 2017, Archives of Disease in Childhood, Birth Weight, Clinical Article, Cragie R, Diagnosis, Edi-Osagie N, Female, Gastrointestinal Symptom, Heart, Hospital, Human, Infant, Intestine Obstruction, Male, Masood Y, Meningomyelocele, Palliative Therapy, Pathology, Pregnancy, Prognosis, September 2017 List, Spiers H, Surgery, Tracheoesophageal Fistula, Trisomy 18
Dysphagia in Rett Syndrome: A Descriptive Study
Tags: 2017, Adolescent, Annals of Otology, Rhinology and Laryngology, apraxia, Bronchitis, Caregiver, characteristics, Child, Cocca S, Complication, De Felice C, Deterioration, Diagnosis, drug fatality, Dysphagia, Feeding, feeding difficulties, Female, hand movement, Human, Human Tissue, Livi W, Major Clinical Study, Mezzedimi C, neuropsychiatry, Normal Human, Otorhinolaryngology, Prevention, progressive feeding deterioration, Psychosexual Development, Rett syndrome, Speech, tongue, Trajectory
Gastroesophageal reflux
Tags: 2007, Adolescent, Backlog, Child, Diagnosis, Diagnostic Techniques, Differential, Digestive System, Enzyme Inhibitors/therapeutic use, Gastroesophageal Reflux/complications/diagnosis/physiopathology/therapy, Histamine H2 Antagonists/therapeutic use, Humans, Infant, Journal Article, Medical History Taking/methods, Michail S, Nervous System Diseases/complications, Nutritional Failure, Pediatrics In Review / American Academy Of Pediatrics, Pediatrics/methods, Preschool, Prognosis, Proton Pumps/antagonists & inhibitors, Respiratory Tract Diseases/etiology/prevention & control, Vomiting/diagnosis/etiology
The Rett Syndrome Behaviour Questionnaire (RSBQ): refining the behavioural phenotype of Rett syndrome
Tags: 2002, Adolescents, behavioral problems, behavioural phenotype, breathing difficulties, Cass H, Charman T, Children, cpg-binding protein-2, Diagnosis, Epidemiology, Hastings R P, Intellectual Disability, Journal Of Child Psychology And Psychiatry, mecp2, mecp2 mutations, Mental Retardation, mental-retardation, Mount R H, population prevalence, Psychiatry, Psychology, psychopathology, Questionnaire, Reilly S, Rett syndrome, RSBQ, scale development, sleep disturbance, tone and motor problems, tool development, x-chromosome inactivation
End of life care experience at the peadiatic oncology unit at the uganda cancer institute: What role can oncology nurses play?
Tags: 2018, Adolescent, Adult, Advanced Cancer, Cancer Chemotherapy, Cancer Diagnosis, Cancer Patient, Cancer Survival, Child, Clinical Article, Clinician, conference abstract, Coordination, Developing World 2018 List, Diagnosis, Dying, Female, Human, Male, Mortality Rate, Multidisciplinary team, Mulyowa I, oncology nurse, Palliative Therapy, Pediatric Blood and Cancer, pediatric patient, Pediatrics, Quality Of Life, Terminal Care
Beyond mortality: Assessing pediatric palliative needs
Tags: 2018, August 2018 List, Bone Marrow Transplantation, Child, conference abstract, Controlled Study, Diagnosis, Female, General Practitioner, Gielissen K, Hematology, heme, Hospital Patient, Human, Journal of Palliative Medicine, Major Clinical Study, Male, Marquez A, Massaro S, Morbidity, Mortality, Murtha TD, Nausea, Needs Assessment, Neonatal Intensive Care Unit, Oncology, Pain, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Prozora S, Questionnaire, Resident, Surgery, tertiary health care
Changing landscape of paediatric palliative care
Tags: 2018, Adult, August 2018 List, catering service, Child, conference abstract, Developmental Medicine and Child Neurology, Diagnosis, Epilepsy, Female, Hills M, Hospice, Human, landscape, life event, Major Clinical Study, Male, Medical Care, Morbidity, Mortality, muscle spasm, Nallapeta N, Palliative Therapy, Retrospective Study, Young Adult
Aspects Of Palliative Care In Child Neurology
Tags: 2016, Bereavement Counseling, Central Nervous System Tumor, Child, Child Care, Chromosome Aberration, Controlled Study, Coordination, Diagnosis, Family Study, Germany, Human, Human Experiment, June 2017 List, Metabolic Disorder, Neurologic Disease, Neurology, Neuropediatrics, Nolte-Buchholtz S, Only Child, Pain, Palliative Care, Palliative Therapy, Quality Of Life, Spiritual Care, Terminal Care, Von Der Hagen M
Peripheral blood mononuclear cell beta-endorphin concentration is decreased in chronic fatigue syndrome and fibromyalgia but not in depression: preliminary report
Tags: 2002, Adult, Backlog, beta-Endorphin/blood/immunology/metabolism, Biomarkers of Pain, Chronic/blood/diagnosis/immunology, Depression/blood/diagnosis, Diagnosis, Differential, Fatigue Syndrome, Female, Fibromyalgia/blood/diagnosis/immunology, Giamberardino MA, Humans, Journal Article, Leukocytes, Male, Meroni P, Mononuclear/immunology/metabolism, Panerai AE, Panzeri P, Pizzigallo E, Reproducibility of Results, Sacerdote P, Scarone S, Sensitivity and Specificity, The Clinical Journal Of Pain, Vecchiet J
Lack of utility of abdominal x-rays in the evaluation of children with constipation: comparison of different scoring methods
Tags: 2010, Abdominal/methods, Backlog, Buonomo C, Child, Chitkara D, Colon/physiopathology/radiography, Colonic Diseases, Constipation/physiopathology/radiography, Diagnosis, Differential, Fecal Incontinence/physiopathology/radiography, Feces, Female, Fishman L, Functional/physiopathology/radiography, Gastrointestinal Transit, Humans, Journal Article, Journal Of Pediatric Gastroenterology And Nutrition, Male, Nurko S, Observer Variation, Pensabene L, Radiography, Retrospective Studies, ROC Curve, X-Rays
Pediatric palliative care (PPC) access in Chile: Private practice health insurance law implementation
Tags: 2017, Analgesia, Araya E, Central Nervous System Tumor, Child, Chile, Clinical Article, Counseling, Diagnosis, Doctor Patient Relation, Female, Gallastegui A, health Insurance, Home Visit, Human, Leukemia, Lopez P, Nurse, Outpatient, Overall Survival, Palliative Therapy, Pediatric Blood and Cancer, private Practice, Psychologist, Rojas N, Rosas A, School Child, Telephone, Varela J
Facilitating communication in children with multiple disabilities: three case studies of girls with Rett syndrome
Tags: 2004, Abnormalities, Akermanis M, Backlog, Diagnosis, Disability And Rehabilitation, however, increased communication opportunities provided by caregivers did not elicit increased responses from the girls. CONCLUSION: There is a difference in cueing by teachers in their interactions with children with multiple disabilities. Also, Journal Article, McGregor F, means findings should be viewed cautiously and that more research is indicated., more frequent communicative interactions did not necessarily lead to increased student responses. It is suggest ed that amount and type of cueing may need to be considered to be effective in generating student responses. The small number of participants, Multiple/diagnosis/rehabilitation Child Behavior/physiology Child, Non-U.S. Gov't Rett Syndrome, PedPal Lit, Preschool Communication Disorders/diagnosis/rehabilitation Female Follow-Up Studies Humans Infant Interpersonal Relations Language Development Disorders/diagnosis/rehabilitation Research Support, Ramke M, rehabilitation Risk Factors Sampling Studies Severity of Illness Index Sickness Impact Profile Treatment Outcome, Ryan D, Southwell K, Woodyatt G
The qualitative study on the experience and perception of healthcare professionals in pediatric palliative care
Tags: 2018, August 2018 List, Awareness, Child, conference abstract, constant comparative method, Death, Diagnosis, Grounded Theory, Home Care, Hospice, Human, Interview, Ireland, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, pediatric nurse, Pediatric Nursing, Perception, Qualitative Research, Quality Of Life, Salvaggio E
Classification and definition of disorders causing hypertonia in childhood
Tags: 2003, Backlog, Child, Delgado MR, Diagnosis, Differential, Dystonia/complications/diagnosis, Gaebler-Spira D, Hallett M, Humans, Infant, Journal Article, Mink JW, Muscle Hypertonia/classification/etiology/physiopathology, Muscle Rigidity/complications/diagnosis, Muscle Spasticity/complications/diagnosis, Pediatrics, Preschool, Reproducibility of Results, Sanger TD, Severity Of Illness Index, Task Force on Childhood Motor Disorders
Psychological, behavioral, and family characteristics of pediatric patients with chronic pain: a 1-year retrospective study and cluster analysis
Tags: 2005, Adolescent Child Chronic Disease Cluster Analysis Comorbidity, another with relatively low scores on distress and disability, as well as demographic and pain characteristic information. A cluster analysis was conducted to identify 3 distinct subgroups of patients to replicate similar studies of adult chronic pain sufferers. RESULTS: Overall, Backlog, Diagnosis, epidemiology/psychology Pain/classification/, epidemiology/psychology Prevalence Retrospective Studies Risk Assessment/, Family Relations Female Humans Male Massachusetts/epidemiology Mental Disorders/, Journal Article, Langan N, Masek B, McDonald-Nolan L, mean scores were within population norms on measures of distress and family functioning, PedPal Lit, Rotter N, Scharff L, Schenck C, Scott-Sutherland J, Tayor N, The Clinical Journal Of Pain, with somatic symptoms at a level of clinical significance. The cluster analysis identified the 3 subgroups that were strikingly similar to those identified in adult chronic pain populations: one with high levels of distress and disability
An update on the leukodsytrophies
Tags: 2001, Adult, Backlog, Boespflug-Tanguy O, Brain Diseases, Child, Current Opinion in Neurology, Diagnosis, Differential, Diseases/diagnosis/genetics, Glial Fibrillary Acidic Protein/genetics, Hereditary Central Nervous System Demyelinating, Human, Inborn/diagnosis/genetics, Journal Article, Metabolic, Myelin Proteolipid Protein/genetics, P.H.S., Schiffmann R, Support, U.S. Gov't
Are pediatric patients just short adults? most commonly prescribed drugs for pediatric hospice patients
Tags: 2018, acid, Adult, Cancer Patient, central nervous system cancer, Chi Square Test, Child, conference abstract, Constipation, Controlled Study, Corticosteroid, Death, Diagnosis, diazepam, diphenhydramine, drug formulation, Drug Therapy, Dyspnea, Female, Genetic Disorder, Haloperidol, Hospice Care, hospice patient, Human, hyoscyamine, Institutional Review, laxative, Length Of Stay, levetiracetam, Lorazepam, macrogol, Major Clinical Study, McPherson ML, metoclopramide, Morgan J, Morphine, Nausea, November 2018 List, ondansetron, Opiate, Pain, Paracetamol, patient information, pediatric patient, Postgraduate Medicine, Practice Guideline, Preschool Child, prochlorperazine, Retrospective Study, salbutamol, Seizure, Sera L, Unclassified Drug, vitamin
Impact of Pediatric palliative care initiative at tertiary cancer care hospital of nepal
Tags: 2018, Analgesia, Brain Tumor, cancer center, Case Study, Child, conference abstract, Developing World 2018 List, Diagnosis, Dyspnea, Female, Gastrointestinal Symptom, Hematologic Malignancy, Hospice, Human, Major Clinical Study, Male, Nepal, Palliative Therapy, Panthee S, Pediatric Blood and Cancer, Practice Guideline, Quality Of Life, Sarcoma, Sharma KS, Terminal Care, wound
Prevalence and management of dystonia in a paediatric palliative care cohort
Tags: 2017, 302-17-0 (chloral hydrate), 4205-90-7 (clonidine), 4205-91-8 (clonidine), 57066-25-8 (clonidine), benzodiazepine derivative, Child, chloral hydrate, Clinical Article, clonidine, Cohort Analysis, Cross-sectional Study, Developmental Medicine and Child Neurology, Diagnosis, Documentation, Dystonia, England, Female, Hughes G, Human, joint, Laddie J, Lumsden DE, Male, March 2018 List, Neurology, Palliative Therapy, precancer, Preschool Child, Prevalence, Seizure, Slater T
Supporting parental caregivers of children living with life-threatening or life-limiting illnesses: A Delphi study
Tags: 2018, Article, Bally JMG, Basic Needs, Caregiver, Child, Consensus, Delphi Study, Diagnosis, Family Nursing, Feasibility Study, February 2019 List, Female, Hodgson-Viden H, Holtslander L, Human, Human Experiment, Journal for specialists in pediatric nursing : JSPN, Major Clinical Study, Male, Mpofu C, Nurse, Peacock S, Pediatrics, Physician, Self Care, Smith NR, Social Worker, Spurr S, theoretical study, Zimmer M
Autism traits in children and adolescents with Cornelia de Lange syndrome
Tags: 2014, Aberrant Behavior Checklist, adaptive behavior, Adolescent, Adult, Age, American Journal of Medical Genetics Part A, Article, Autism, behavior disorder, Behavioral phenotype, behavioral problems, characteristics, Checklist, Child, Childhood Autism Rating Scale, Clark B, Clinical Article, Communication, communication disorder, compulsion, Cornelia de Lange syndrome, daily life activity, De Lange syndrome, Diagnosis, Disease Severity, Emotion, Female, Grados M A, Human, hyperactivity, Intellectual Impairment, Interpersonal Communication, Irritability, Kline A D, Landy-Schmitt C, Language, lethargy, limb, maladjustment, Male, Phenotype, Priority Journal, psychological rating scale, Rating Scale, Repetitive behaviors, rigidity, Skill, social cognition, Socialization, Specht M, Srivastava S, stereotypy, Trajectory, Verbal Communication, Vineland Adaptive Behaviors Scales
Evaluation Of Temporal Health System Factors Influencing Parallel Palliative Care Referral For Children With Complex Cardiorespiratory Diagnosis And Treatment
Tags: 2023, Adolescent, Aidoo E, apparent life threatening event, Archives of Disease in Childhood, Artificial Ventilation, Awareness, Chan-Dominy A, Child, Clinical Article, Clinical Nurse Specialist, community care, conference abstract, Consultation, Controlled Study, Decision Making, Demographics, Diagnosis, E-mail, Education, Female, Follow Up, Freitas D, heart graft, Hospice, hospital discharge, Human, Infant, Length Of Stay, Life Sustaining Treatment, Male, Nkulu G, Nurse, Nursing Staff, October List 2031, organizational restructuring, outcome assessment, Oxygenation, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Practice Guideline, Quality Of Life, Retrospective Study, Subhash S, Surgery, Trust, writing
Bereavement follow-up: Listening and learning
Tags: 2018, Bereavement, Child, Clinical Article, conference abstract, Consterdine K, Consultation, Diagnosis, Female, Follow Up, genetic transcription, Human, Intensivist, Learning, Male, Memory, November 2018 List, Nurse, Pediatric Critical Care Medicine, Ryan C, Staff, Subramanian G, Terminal Care
The Use of Cannabinoids in Pediatric Palliative Care-A Retrospective Single-Center Analysis
Tags: 2024, add on therapy, Adolescent, Adverse Drug Reaction, anxiety, April List 2024, Article, Cannabinoid, Cannabinoids, Child, Children, Clinical Article, decreased appetite, Diagnosis, drug combination, drug dose increase, Drug Therapy, Epilepsy, Female, Gravou-Apostolatou C, Human, Human Tissue, Loss Of Appetite, Male, Nausea, Outpatient, Pain, Palliative Care, Palliative Therapy, paresis, pediatric patient, Quality Of Life, restlessness, Retrospective Study, School Child, Side Effect, Spasticity, special situation for pharmacovigilance, Tagsold D, Therapy, Toni I, Trollmann R, Woelfle J