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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s11136-004-2575-z" target="_blank" rel="noreferrer">http://doi.org/10.1007/s11136-004-2575-z</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: a European perspective
Publisher
An entity responsible for making the resource available
Quality of Life Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Epilepsy; PedPal Lit; emotion; 'Independence'; 'Physical'; 'Social Exclusion') with acceptable internal consistency.; 'Social Inclusion'; 13-16 years) with different chronic health conditions (asthma; Adolescent Child Chronic Disease/psychology Disabled Children/psychology Europe Health Status Humans Pilot Projects Quality of Life/psychologyQuestionnaires Research Support; and cystic fibrosis) as well as their families were included. Data were analysed according to predefined psychometric and content criteria. Psychometric an alyses resulted in a 56-item chronic generic HRQOL questionnaire with six domains ('Medication'; and implement European instruments for the assessment of HRQOL of children and adolescents with disabilities and their families. The current paper describes the development and pilot testing of a chronic generic HRQOL measure. Using literature searches; Arthritis; atopic dermatitis; Cerebral Palsy; Diabetes; expert consulting and focus groups with children/adolescents and their families; items of the instruments were developed and translated into the respective languages. A pilot test with 360 children and adolescents was conducted. Children and adolescents (8-12; Non-U.S. Gov'tSickness Impact Profile%X Health-related quality of life (HRQOL) assessment in children and adolescents with chronic health conditions is increasingly considered as a relevant topic. The aim of the EU-funded DISABKIDS project is to develop; test
Creator
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Petersen C; Schmidt S; Power M; Bullinger M
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s11136-004-2575-z" target="_blank" rel="noreferrer">10.1007/s11136-004-2575-z</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
'Independence'
'Physical'
'Social Exclusion') with acceptable internal consistency.
'Social Inclusion'
13-16 years) with different chronic health conditions (asthma
2005
Adolescent Child Chronic Disease/psychology Disabled Children/psychology Europe Health Status Humans Pilot Projects Quality of Life/psychologyQuestionnaires Research Support
and cystic fibrosis) as well as their families were included. Data were analysed according to predefined psychometric and content criteria. Psychometric an alyses resulted in a 56-item chronic generic HRQOL questionnaire with six domains ('Medication'
and implement European instruments for the assessment of HRQOL of children and adolescents with disabilities and their families. The current paper describes the development and pilot testing of a chronic generic HRQOL measure. Using literature searches
Arthritis
atopic dermatitis
Backlog
Bullinger M
Cerebral Palsy
Diabetes
Emotion
Epilepsy
expert consulting and focus groups with children/adolescents and their families
items of the instruments were developed and translated into the respective languages. A pilot test with 360 children and adolescents was conducted. Children and adolescents (8-12
Journal Article
Non-U.S. Gov'tSickness Impact Profile%X Health-related quality of life (HRQOL) assessment in children and adolescents with chronic health conditions is increasingly considered as a relevant topic. The aim of the EU-funded DISABKIDS project is to develop
PedPal Lit
Petersen C
Power M
Quality of Life Research
Schmidt S
test
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/jpepsy/jsv004" target="_blank" rel="noreferrer">http://doi.org/10.1093/jpepsy/jsv004</a>
<a href="http://jpepsy.oxfordjournals.org/content/early/2015/02/11/jpepsy.jsv004" target="_blank" rel="noreferrer">http://jpepsy.oxfordjournals.org/content/early/2015/02/11/jpepsy.jsv004</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Promoting Resilience in Stress Management: A Pilot Study of a Novel Resilience-Promoting Intervention for Adolescents and Young Adults With Serious Illness
Publisher
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Journal of Pediatric Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
cancer; coping; psychosocial outcomes; health outcomes; adolescent young adult; AYA; Diabetes; Intervention; Resilience
Creator
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Rosenberg AR; Yi-Frazier JP; Eaton L; Wharton C; Cochrane K; Pihoker C; Baker KS; McCauley E
Description
An account of the resource
Objective To examine the feasibility and format of the Promoting Resilience in Stress Management (PRISM) intervention among two groups of adolescents and young adults (AYAs) at-risk for poor outcomes: those with Type 1 diabetes (T1D) or cancer. Methods PRISM consists of two long or four short skills-based modules. English-speaking patients 12–25 years old were eligible if they had T1D for >6 months or cancer for >2 weeks. Feasibility was defined as an 80% completion rate and high satisfaction. Ongoing monitoring shaped iterative refinement of disease-specific approach. Results 12 of 15 patients with T1D (80%) completed the two-session intervention. 3 of 15 patients with cancer declined to complete the two-session version, citing prohibitive length of individual sessions. 12 (80%) completed the four-session version. Patient-reported satisfaction was high across groups. Conclusions The PRISM intervention is feasible and well-accepted by AYAs with cancer or T1D. Differences in patient populations warrant differences in approach.
2015-02
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/jpepsy/jsv004" target="_blank" rel="noreferrer">10.1093/jpepsy/jsv004</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2015
adolescent young adult
AYA
Backlog
Baker KS
Cancer
Cochrane K
Coping
Diabetes
Eaton L
health outcomes
Intervention
Journal Article
Journal of Pediatric Psychology
McCauley E
Pihoker C
psychosocial outcomes
Resilience
Rosenberg AR
Wharton C
Yi-Frazier JP