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Dublin Core
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Title
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December 2022 List
Text
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December List 2022
URL Address
<a href="http://doi.org/10.3390/children9101594" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3390/children9101594</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Extremely Preterm Babies-Legal Aspects and Palliative Care at the Border of Viability
Publisher
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Children
Date
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2022
Subject
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court decision; extremely preterm babies; palliative care; rights of parents; viability
Creator
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Dettmeyer R
Description
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There are various legal considerations and rare decisions of courts in western countries concerning palliative care and the border of viability in cases of extremely preterm babies. Nevertheless, on the one hand, regulations and decisions of courts describe the conditions physicians have to accept. On the other hand, courts are also able to accept that every case can be special, and needs a unique answer. Therefore, the framework can be described as well as the medical disciplines, which should be involved in a particular case.
Identifier
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<a href="http://doi.org/10.3390/children9101594" target="_blank" rel="noreferrer noopener">10.3390/children9101594</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Children
court decision
December List 2022
Dettmeyer R
extremely preterm babies
Palliative Care
rights of parents
Viability
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
June 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2021 List
URL Address
<a href="http://doi.org/10.3389/fped.2021.654531" target="_blank" rel="noreferrer noopener">http://doi.org/10.3389/fped.2021.654531</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Gastrointestinal Symptoms in Children With Life-Limiting Conditions Receiving Palliative Home Care
Publisher
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Frontiers in Pediatrics
Date
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2021
Subject
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children; home-based palliative care; constipation; vomiting; symptom burden
Creator
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Hauch H; Kriwy P; Hahn A; Dettmeyer R; Zimmer KP; Neubauer B; Brill S; Vaillant V; de Laffolie J; Schaefer K; Tretiakowa I; Hach M; Sibelius U; Berthold D
Description
An account of the resource
Context: Children with life-limiting diseases suffer from gastrointestinal (GI) symptoms. Since the introduction of specialized palliative home care (SPHC) in Germany, it is possible to care for these children at home. In phase 1 of care the aim is to stabilize the patient. In phase 2, terminal support is provided. Objectives: Analysis were performed of the differences between these phases. The causes and modalities/outcome of treatment were evaluated. Methods: A retrospective study was performed from 2014 to 2020. All home visits were analyzed with regard to the abovementioned symptoms, their causes, treatment and results. Results: In total, 149 children were included (45.9% female, mean age 8.17 ± 7.67 years), and 126 patients were evaluated. GI symptoms were common in both phases. Vomiting was more common in phase 2 (59.3 vs. 27.1%; p < 0.001). After therapy, the proportion of asymptomatic children in phase 1 increased from 40.1 to 75.7%; (p < 0.001). Constipation was present in 52.3% (phase 1) and 54.1% (phase 2). After treatment, the proportion of asymptomatic patients increased from 47.3 to 75.7% in phase 1 (p < 0.001), and grade 3 constipation was reduced from 33.9 to 15% in phase 2 (p < 0.05). Conclusion: Painful GI symptoms occur in both palliative care phases but are more common in phase 2. The severity and frequency can usually be controlled at home. The study limitations were the retrospective design and small number of patients, but the study had a representative population, good data quality and a unique perspective on the reality of outpatient pediatric palliative care in Germany.
Identifier
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<a href="http://doi.org/10.3389/fped.2021.654531" target="_blank" rel="noreferrer noopener">10.3389/fped.2021.654531</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Berthold D
Brill S
Children
Constipation
de Laffolie J
Dettmeyer R
Frontiers in Pediatrics
Hach M
Hahn A
Hauch H
home-based palliative care
June 2021 List
Kriwy P
Neubauer B
Schaefer K
Sibelius U
symptom burden
Tretiakowa I
Vaillant V
Vomiting
Zimmer KP