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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1016/j.jpeds.2004.06.023" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jpeds.2004.06.023</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Economic and psychologic costs for maternal caregivers of gastrostomy-dependent children
Publisher
An entity responsible for making the resource available
The Journal Of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Female; Humans; Adult; Socioeconomic Factors; Cost of Illness; quality of life; Depression/etiology; Mothers/psychology; Caregivers/economics/psychology; Enteral Nutrition/economics/psychology; Gastrostomy/economics/psychology; Home Nursing/economics/psychology
Creator
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Heyman MB; Harmatz P; Acree M; Wilson L; Moskowitz JT; Ferrando S; Folkman S
Description
An account of the resource
OBJECTIVE: To examine the economic and psychologic costs of care provided by maternal caregivers to children with gastrostomy tube (GT) feedings. STUDY DESIGN: We conducted a 3-site study of primary maternal caregivers of 101 chronically ill children, with (n = 50) and without (n = 51) enteral nutrition support by GT to determine the time spent providing technical care, nontechnical care, and health care management and to assess depressive mood and quality of life. Associated costs were determined. RESULTS: Caregivers spent 339.7 +/- 34.1 (SEM) min/d to provide all care. Children with a GT required more than twice as much care time as children without a GT: 484.5 +/- 54.6 versus 197.8 +/- 30.6 min/d ( P < .0001). The mean annual total value of home care by the primary caregiver for a child with a GT was 37,232 dollars, compared with 15,004 dollars for the child without a GT. Caregivers of children with GT were no more depressed or less satisfied with their lives than caregivers of children without GT. CONCLUSIONS: Use of a GT for enteral nutrition support is associated with significant increased care time by the primary caregiver but not at additional psychologic cost compared with caring for chronically ill children.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpeds.2004.06.023" target="_blank" rel="noreferrer">10.1016/j.jpeds.2004.06.023</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Acree M
Adult
Backlog
Caregivers/economics/psychology
Child
Cost Of Illness
Depression/etiology
Enteral Nutrition/economics/psychology
Female
Ferrando S
Folkman S
Gastrostomy/economics/psychology
Harmatz P
Heyman MB
Home Nursing/economics/psychology
Humans
Journal Article
Moskowitz JT
Mothers/psychology
Quality Of Life
Socioeconomic Factors
The Journal Of Pediatrics
Wilson L
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1017/s0033291704002740" target="_blank" rel="noreferrer">http://doi.org/10.1017/s0033291704002740</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Anxiety and depression in parents 4-9 years after the loss of a child owing to a malignancy: a population-based follow-up.
Publisher
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Psychological Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Parent-Child Relations; Aged; Middle Aged; Death; Age Factors; Longitudinal Studies; Risk Factors; Morbidity; Case-Control Studies; Preschool; Non-U.S. Gov't; Research Support; bereavement; Depression/etiology; Psychological; Stress; Neoplasms; Anxiety Disorders/etiology
Creator
An entity primarily responsible for making the resource
Kreicbergs U; Valdimarsdottir U; Onelov E; Henter JI; Steineck G
Description
An account of the resource
BACKGROUND: Some consider the loss of a child as the most stressful life event. When the death is caused by a malignancy, the parents are commonly exposed not only to their own loss, but also to the protracted physical and emotional suffering of the child. We investigated parental risk of anxiety and depression 4-9 years after the loss of a child owing to a malignancy. METHOD: In 2001, we attempted to contact all parents in Sweden who had lost a child due to a malignancy during 1992--1997. We used an anonymous postal questionnaire and utilized a control group of non-bereaved parents with a living child. RESULTS: Participation among bereaved parents was 449/561 (80 %); among non-bereaved 457/659 (69%). We found an increased risk of anxiety (relative risk 1.5, 95 % confidence interval 1.1-1.9) and depression (relative risk 1.4, 95 % confidence interval 1.1-1.7) among bereaved parents compared with non-bereaved. The risk of anxiety and depression was higher in the period 4-6 years after bereavement than in the 7-9 years period, during which the average excess risks approached zero. Psychological distress was overall higher among bereaved mothers and loss of a child aged 9 years or older implied an increased risk, particularly for fathers. CONCLUSIONS: Psychological morbidity in bereaved parents decreases to levels similar to those among non-bereaved parents 7-9 years after the loss. Bereaved mothers and parents who lose a child 9 years or older have on average an excess risk for long-term psychological distress.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1017/s0033291704002740" target="_blank" rel="noreferrer">10.1017/s0033291704002740</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adult
Age Factors
Aged
Anxiety Disorders/etiology
Backlog
Bereavement
Case-Control Studies
Child
Death
Depression/etiology
Female
Henter JI
Humans
Journal Article
Kreicbergs U
Longitudinal Studies
Male
Middle Aged
Morbidity
Neoplasms
Non-U.S. Gov't
Onelov E
Parent-child Relations
Preschool
Psychological
Psychological Medicine
Research Support
Risk Factors
Steineck G
Stress
Valdimarsdottir U
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.156.11.1138" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.156.11.1138</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Physical functioning in female caregivers of children with physical disabilities compared with female caregivers of children with a chronic medical condition
Publisher
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Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; Adult; Aged; Middle Aged; Disabled Persons; Regression Analysis; Caregivers/psychology; Chronic disease; Back Pain/etiology; Depression/etiology; Mothers/psychology; Physical Fitness
Creator
An entity primarily responsible for making the resource
Tong HC; Kandala G; Haig AJ; Nelson VS; Yamakawa KS; Shin KY
Description
An account of the resource
OBJECTIVES: To evaluate if physical functioning is different in female caregivers of children with physical disabilities compared with female caregivers of children with nondisabling medical illnesses, and to investigate the factors associated with functioning level. DESIGN: Cross-sectional survey. SETTING: University-based clinics. PATIENTS: Ninety consecutive female caregivers of children presenting to a pediatric physical medicine and rehabilitation (PM&R) clinic, and 23 presenting to a pediatric endocrine clinic. INTERVENTION: Fifteen-minute self-administered survey. MAIN OUTCOME MEASURES: The dependent variable measured was physical functioning (physical functioning subscale of the Short Form-36). Independent variables measured were the average back pain severity over the last week (100-mm visual analog scale), mood (using the Center for Epidemiologic Studies-Depression Scale), work status, amount of lifting at work, caregiver demographics, child demographics, and the physical functioning ability of the child (measured using the WeeFIM scale). RESULTS: The mean (SD) physical functioning score of caregivers of children in the pediatric PM&R clinic was 80.6 (21.9), which was less than the score of 90.2 (17.6) for caregivers in the pediatric endocrine clinic (mean difference, 9.6; 95% confidence interval, -0.9 to -18.4). The physical functioning score of 77.7 (22.9) in caregivers of PM&R clinic children with a WeeFIM scale score of 1 to 4 was significantly worse than the 90.5 (14.8) in female caregivers of children with a WeeFIM score of 5 to 7 (mean difference, 12.8; 95% confidence interval, -2.0 to -23.6). This decrease is associated with the average pain severity, mood, and total length of time of back pain in the previous 12 months. Regression analysis shows that pain severity and caregiver mood are significantly related to the physical functioning status of the caregiver. CONCLUSIONS: Physical functioning is decreased in female caregivers of children with a physical disability. This decrease is associated with caregiver pain severity and mood.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.156.11.1138" target="_blank" rel="noreferrer">10.1001/archpedi.156.11.1138</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Adult
Aged
Archives Of Pediatrics & Adolescent Medicine
Back Pain/etiology
Backlog
Caregivers/psychology
Child
Chronic Disease
Cross-sectional Studies
Depression/etiology
Disabled Persons
Female
Haig AJ
Humans
Journal Article
Kandala G
Middle Aged
Mothers/psychology
Nelson VS
Physical Fitness
Regression Analysis
Shin KY
Tong HC
Yamakawa KS