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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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<a href="http://doi.org/10.1111/j.1467-8519.2011.01939.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1467-8519.2011.01939.x</a>
Dublin Core
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Title
A name given to the resource
End-of-life decision-making in Canada: the report by the Royal Society of Canada expert panel on end-of-life decision-making.
Publisher
An entity responsible for making the resource available
Bioethics
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Humans; United States; Palliative Care; Advance Directives; Adult; Canada; Deep Sedation; Withholding Treatment; Aged; Euthanasia; Europe; Suicide; decision making; Active; DNAR; Assisted/lj [Legislation & Jurisprudence]; Terminal Care; Voluntary; Bioethical Issues; Public Opinion
Creator
An entity primarily responsible for making the resource
Schuklenk U; van Delden JJM; Downie Jocelyn; McLean SAM; Upshur R; Weinstock D
Description
An account of the resource
This report on end-of-life decision-making in Canada was produced by an international expert panel and commissioned by the Royal Society of Canada. It consists of five chapters. Chapter 1 reviews what is known about end-of-life care and opinions about assisted dying in Canada. Chapter 2 reviews the legal status quo in Canada with regard to various forms of assisted death. Chapter 3 reviews ethical issues pertaining to assisted death. The analysis is grounded in core values central to Canada's constitutional order. Chapter 4 reviews the experiences had in a number of jurisdictions that have decriminalized or recently reviewed assisted dying in some shape or form. Chapter 5 provides recommendations with regard to the provision of palliative care in Canada, as well as recommendations for reform with respect to the various forms of assisted death covered in this document.Copyright © 2011 Blackwell Publishing Ltd.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1467-8519.2011.01939.x" target="_blank" rel="noreferrer">10.1111/j.1467-8519.2011.01939.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Active
Adult
Advance Directives
Aged
Assisted/lj [Legislation & Jurisprudence]
Backlog
Bioethical Issues
Bioethics
Canada
Child
Decision Making
Deep Sedation
DNAR
Downie Jocelyn
Europe
Euthanasia
Humans
Journal Article
McLean SAM
Palliative Care
Public Opinion
Schuklenk U
Suicide
Terminal Care
United States
Upshur R
van Delden JJM
Voluntary
Weinstock D
Withholding Treatment
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s11019-012-9444-2" target="_blank" rel="noreferrer">http://doi.org/10.1007/s11019-012-9444-2</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Continuous sedation until death: moral justifications of physicians and nurses--a content analysis of opinion pieces
Publisher
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Medicine, Health Care And Philosophy
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Humans; Palliative Care; Terminal Care; Deep Sedation; Physicians; Morals; Terminology as Topic; Ethics; Conscious Sedation; Nursing
Creator
An entity primarily responsible for making the resource
Rys S; Mortier F; Deliens L; Deschepper R; Battin MP; Bilsen J
Description
An account of the resource
Continuous sedation until death (CSD), the act of reducing or removing the consciousness of an incurably ill patient until death, often provokes medical-ethical discussions in the opinion sections of medical and nursing journals. A content analysis of opinion pieces in medical and nursing literature was conducted to examine how clinicians define and describe CSD, and how they justify this practice morally. Most publications were written by physicians and published in palliative or general medicine journals. Terminal Sedation and Palliative Sedation are the most frequently used terms to describe CSD. Seventeen definitions with varying content were identified. CSD was found to be morally justified in 73% of the publications using justifications such as Last Resort, Doctrine of Double Effect, Sanctity of Life, Autonomy, and Proportionality. The debate over CSD in the opinion sections of medical and nursing journals lacks uniform terms and definitions, and is profoundly marked by 'charged language', aiming at realizing agreement in attitude towards CSD. Not all of the moral justifications found are equally straightforward. To enable a more effective debate, the terms, definitions and justifications for CSD need to be further clarified.
2013-08
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s11019-012-9444-2" target="_blank" rel="noreferrer">10.1007/s11019-012-9444-2</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Backlog
Battin MP
Bilsen J
Conscious Sedation
Deep Sedation
Deliens L
Deschepper R
Ethics
Humans
Journal Article
Medicine, Health Care And Philosophy
Morals
Mortier F
Nursing
Palliative Care
Physicians
Rys S
Terminal Care
Terminology as Topic
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s10147-013-0521-1" target="_blank" rel="noreferrer">http://doi.org/10.1007/s10147-013-0521-1</a>
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Title
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Safe lumbar puncture under analgo-sedation in children with acute lymphoblastic leukemia
Publisher
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International Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
adolescent; Child; Female; Humans; infant; Male; Pain; Pain Measurement; Deep Sedation; Propofol; Precursor Cell Lymphoblastic Leukemia-Lymphoma; Central Nervous System; Preschool; Injections; Spinal; Spinal Puncture
Creator
An entity primarily responsible for making the resource
Maurizi P; Russo I; Rizzo D; Chiaretti A; Coccia P; Attinà G; Ruggiero A; Riccardi R
Description
An account of the resource
BACKGROUND: Children with acute lymphoblastic leukemia (ALL) undergo multiple lumbar punctures (LPs) during their course of treatment for diagnostic and therapeutic purposes. LP is a stressful and painful procedure, affecting the quality of life of these children. Procedural analgo-sedation might improve the child's comfort and prevent the child's movements, reducing the risk of traumatic lumbar puncture with blasts (TLP+), mainly at diagnosis, when higher numbers of blast cells are circulating in the peripheral blood. The aim of this study was to evaluate the safety and efficacy of procedural analgo-sedation in children with ALL. METHODS: From September 2006 to November 2008, we performed a total of 252 lumbar punctures under deep sedation with propofol and ketamine in 25 children with ALL treated at our division. During the procedures, vital parameters were monitored and side effects were recorded. The efficacy of deep sedation was evaluated using Ramsay and Children's Hospital Eastern Ontario Pain scales. Cerebrospinal fluid was collected for chemical and cytological examinations. RESULTS: In all patients a satisfactory sedation and analgesia were achieved. The evaluation of vital parameters did not show any significant variation compared to baseline values. No side effects were recorded. Only 3 (1.2 %) of 252 lumbar punctures resulted in traumatic effects. CONCLUSION: To strongly improve comfort and quality of life of children with ALL and reduce the risk of TLP+ mainly at diagnosis, we recommend performing the lumbar punctures under analgo-sedation because it is a safe and effective procedure.
2014-02
Identifier
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<a href="http://doi.org/10.1007/s10147-013-0521-1" target="_blank" rel="noreferrer">10.1007/s10147-013-0521-1</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Adolescent
Attinà G
Backlog
Central Nervous System
Chiaretti A
Child
Coccia P
Deep Sedation
Female
Humans
Infant
Injections
International Journal Of Clinical Oncology
Journal Article
Male
Maurizi P
Pain
Pain Measurement
Precursor Cell Lymphoblastic Leukemia-Lymphoma
Preschool
Propofol
Riccardi R
Rizzo D
Ruggiero A
Russo I
Spinal
Spinal Puncture
-
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Title
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May 2023 List
Text
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Citation List Month
May List 2023
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2022.12.006" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.jpainsymman.2022.12.006</a>
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Title
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Nationwide Study of Continuous Deep Sedation Practices Among Pediatric Palliative Care Teams
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Deep Sedation; Pediatrics; Terminal Care; Adolescent; Child; Female; Humans; Hypnotics and Sedatives/tu [Therapeutic Use]; Male; Palliative Care; Retrospective Studies
Creator
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Ridley A; Vial-Cholley E; Robert G; Jounis-Jahan F; Lervat C; Betremieux P; Viallard ML; Frache S; Cojean N
Description
An account of the resource
Abstract Context: Palliative sedation practices evolved in France when the Claeys-Leonetti law passed in 2016 authorized patient-requested continuous deep sedation (CDS) until death. Its implementation in the pediatric setting is less frequently encountered and can pose several clinical and ethical challenges for health care teams and families. Objectives: Our study aimed to describe CDS requests and practices of patients receiving specialized pediatric palliative care in France since its legalization in 2016. Methods: We conducted a nationwide multicentric, descriptive, retrospective study using a self-report questionnaire completed by all Pediatric Palliative Care (PPC) Teams that were involved in a CDS case between January 2017 and December 2019. Results: Six PPC teams had cared for six patients that had requested CDS, predominantly male adolescents/young adults diagnosed with a solid tumour. The refractory symptoms were diverse (pain, bleeding, and sensory loss) and always coupled with psycho-existential suffering. Each request was analyzed in multidisciplinary collegial meetings. Parental consent was always obtained regardless of age. Sedation typically required the use of multiple drugs including Midazolam (n = 5 cases), Chlorpromazine (n = 3), Ketamine (n = 2), and Propofol (n = 2). Despite close monitoring, achieving a satisfactory level of deep sedation was challenging and most patients unexpectedly awoke during CDS. Death occurred between 27 and 96 hours after induction. Conclusion: Managing patient-requested CDS in pediatrics is challenging due to its rarity, multi-factorial refractory symptoms and drug tolerance despite polytherapy. Few recommendations exist to guide CDS practice for pediatricians. Further studies investigating pediatric CDS practices across various cultural and legal settings, refractory symptom management and specific pharmacology are warranted.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2022.12.006" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2022.12.006</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Adolescent
Bétrémieux P
Child
Cojean N
Deep Sedation
Female
Frache S
Humans
Hypnotics and Sedatives/tu [Therapeutic Use]
Jounis-Jahan F
Journal of Pain and Symptom Management
Lervat C
Male
May List 2023
Palliative Care
Pediatrics
Retrospective Studies
Ridley A
Robert G
Terminal Care
Vial-Cholley E
Viallard ML